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More on urine retention.

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This is something has begun having alot of problems with. It

began in the summer and now everytime has a crisis, which is

approximately every 3-5 weeks, he requires a foley catheter to be

placed for the duration of the crisis. His bowels cease working also

for a period of 2 -3 weeks and we usually take his foley out after

his bowels begin to work. Then usually the worst of the crisis is

past and we can take the foley out, cross our fingers and hope he

pee's. For the most part he does. We have been told that the

vomtiing, bladder retention, bowel issues, pupil dilation,

difficulties with O2 sats, heart rhythm irregularities are all due

to autonomic dysfunction which is getting worse. (or appears to be).

We would be unable to do catheterizations several times a day as he

requires sedation to put the catheter in. Just before christmas we

had a VAD put in so at least we don't have to find IV sites anymore.

The very difficult thing is that is developing a particular

bladder infection that requires IV antibiotics. It is happening

basically everytime we have to catheterize him.

Alison

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