Re: /all anesthesia & sick kids

[Guest guest]

Darla,

Oh my, what a plate full of stress you have. So many areas of

critical concern....., regarding Luke and your other children and

their concern for Porrah also having Mito. Red & Ada both found it

very helpful to speak with " someone " else. I took them to a Grief

Support Center. I went with Ada because of her young age,and Red

attended a group with other young boys. I feel that we have a very

good relationship with our children. That they feel safe with us, and

that we all have a very open relationship, yet the benefit they both

received from speaking with others -- was very noticeable. Most

hospitals have some sort of family support center available through

their hospice program. Some have specialized services and/or groups

focusing on supporting all memebers of a family that has a medically

fragile child. Maybe you could link up with something through the

hospital in Des Moines (isn't that your closet large city?)Does Des

Moines have a Children's Hospital? They seem to offer the most

extensive services, including groups by age, individual sessions for

sibs & parents, and sometimes week end camps. At least here, all

services are free of charge, as they are supported by the hospital

foundations.

It is a stress on the entire family. My thoughts & prayers continue

to be with all of you.