Guest guest Report post Posted July 5, 2001 Hello, and welcome to the list. Where are you from? Kirsten Mum to (23 months) Step-mom to Shelby (6yrs) Trainee ANT, and Memb-sec Woking and Knaphill Branches. Hello >Hello, I've just come across a list of Nct egroups and thought this >one looked good. My name is Lucy and I am a mother of three - >6, 41/2 and 4months. I am on the committee of my local >nct branch and have been an nct member for 5 years. I run a bumps >and babies coffee group locally. > >My two younger children were born at home, and was breastfed >until two. I am a nurse by profession although I stay at home at the >moment. I don't know what else to say as I don't want to waffle, so >I'll shut up for now! I've just read a few recent messages and the >alternative burials sound really interesting. I didn't get married >in church, and my children aren't christened. We are just deciding >what to do with , as my older children have been to two >christenings and think will be christened. Not quite got >round to sorting it out yet! > >Bye for now > >Lucy > > >*** NCT enquiry line - 0 *** > >Live chat http://www.yahoogroups.com/chat/nct-coffee > >Have you found out about all the other groups for the NCT online? > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 6, 2001 Hi Lucy Hope you enjoy the list. Where abouts are you? I hope you find it fun chatting or listening in. We even get together from time to time for real coffee ! Todman Treasurer, Stansted Branch (R5) Mum to , 3½ > Hello, I've just come across a list of Nct egroups and thought this > one looked good. My name is Lucy and I am a mother of three - > 6, 41/2 and 4months. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 6, 2001 Hi Lucy Hope you enjoy the list. Where abouts are you? I hope you find it fun chatting or listening in. We even get together from time to time for real coffee ! Todman Treasurer, Stansted Branch (R5) Mum to , 3½ > Hello, I've just come across a list of Nct egroups and thought this > one looked good. My name is Lucy and I am a mother of three - > 6, 41/2 and 4months. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 23, 2002 Welcome to our group. It would be nice to have your name. I like this group. It is very caring, loving and supportive. Have a question? Ask away. Someone is more than likely to have the answer. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 23, 2002 Welcome to our group. It would be nice to have your name. I like this group. It is very caring, loving and supportive. Have a question? Ask away. Someone is more than likely to have the answer. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 27, 2002 Welcome, to our list. We are a very good list, in my opinion. Loving, caring and very supportive. I do hope that we can help you to find ways to manage your fibro. For a lot of us, that is difficult to do. We are barely able to cope. So I am happy for you that you have found a way to manage this fibro. If you have any other questions, please ask. Someone usually knows the answer. And once again. Welcome aboard. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 27, 2002 Welcome, to our list. We are a very good list, in my opinion. Loving, caring and very supportive. I do hope that we can help you to find ways to manage your fibro. For a lot of us, that is difficult to do. We are barely able to cope. So I am happy for you that you have found a way to manage this fibro. If you have any other questions, please ask. Someone usually knows the answer. And once again. Welcome aboard. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 I have had just about every test that there is and the abnormal results that I had is an ANA titer of 1:320, lesions on my brain, and Chiari Malformation. I haven't had any recent tests and I was wondering if they could change. I haven't had any CBC or lab work in quite awhile. I am getting desperate and would like any input on what I should do. Thanks for all replies. > Lonnie in Soonerland Lonnie, Yes, your test results can change. I had a positive ANA titer before, with speckled blood, indicating and auto-immune disfunction. When I had this test done again a few weeks ago, it came back completely negative. So, it's always a good idea to have your blood rechecked. Also, just so you know, there are differing opinions as to how high the ANA titer has to be to indicate Lupus. The official Lupus site indicates that anything over 1.2 is positve, and a 1.6 is extremely high. Then I found another website that said the ANA shouldn't be considered positve for Lupus unless the resluts were higher than 1.8. Mine was 1.4 something. Now it's not. I hope this information helps. Take care, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 I have had just about every test that there is and the abnormal results that I had is an ANA titer of 1:320, lesions on my brain, and Chiari Malformation. I haven't had any recent tests and I was wondering if they could change. I haven't had any CBC or lab work in quite awhile. I am getting desperate and would like any input on what I should do. Thanks for all replies. > Lonnie in Soonerland Lonnie, Yes, your test results can change. I had a positive ANA titer before, with speckled blood, indicating and auto-immune disfunction. When I had this test done again a few weeks ago, it came back completely negative. So, it's always a good idea to have your blood rechecked. Also, just so you know, there are differing opinions as to how high the ANA titer has to be to indicate Lupus. The official Lupus site indicates that anything over 1.2 is positve, and a 1.6 is extremely high. Then I found another website that said the ANA shouldn't be considered positve for Lupus unless the resluts were higher than 1.8. Mine was 1.4 something. Now it's not. I hope this information helps. Take care, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 I have had just about every test that there is and the abnormal results that I had is an ANA titer of 1:320, lesions on my brain, and Chiari Malformation. I haven't had any recent tests and I was wondering if they could change. I haven't had any CBC or lab work in quite awhile. I am getting desperate and would like any input on what I should do. Thanks for all replies. > Lonnie in Soonerland Lonnie, Yes, your test results can change. I had a positive ANA titer before, with speckled blood, indicating and auto-immune disfunction. When I had this test done again a few weeks ago, it came back completely negative. So, it's always a good idea to have your blood rechecked. Also, just so you know, there are differing opinions as to how high the ANA titer has to be to indicate Lupus. The official Lupus site indicates that anything over 1.2 is positve, and a 1.6 is extremely high. Then I found another website that said the ANA shouldn't be considered positve for Lupus unless the resluts were higher than 1.8. Mine was 1.4 something. Now it's not. I hope this information helps. Take care, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 Thanks I am trying to get in to take some more tests. Have a Great Day! Lonnie --- kithain kithain@...> wrote: > > I have had just about every test that there is and > the abnormal > results that I had is an ANA titer of 1:320, lesions > on my brain, and > Chiari Malformation. I haven't had any recent tests > and I was > wondering if they could change. I haven't had any > CBC or lab work in > quite awhile. I am getting desperate and would like > any input on what > I should do. Thanks for all replies. > > Lonnie in Soonerland > > > Lonnie, > > Yes, your test results can change. I had a positive > ANA titer before, > with speckled blood, indicating and auto-immune > disfunction. When I > had this test done again a few weeks ago, it came > back completely > negative. So, it's always a good idea to have your > blood rechecked. > Also, just so you know, there are differing opinions > as to how high > the ANA titer has to be to indicate Lupus. The > official Lupus site > indicates that anything over 1.2 is positve, and a > 1.6 is extremely > high. Then I found another website that said the ANA > shouldn't be > considered positve for Lupus unless the resluts were > higher than 1.8. > Mine was 1.4 something. Now it's not. I hope this > information helps. > > Take care, > > > > ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 Thanks I am trying to get in to take some more tests. Have a Great Day! Lonnie --- kithain kithain@...> wrote: > > I have had just about every test that there is and > the abnormal > results that I had is an ANA titer of 1:320, lesions > on my brain, and > Chiari Malformation. I haven't had any recent tests > and I was > wondering if they could change. I haven't had any > CBC or lab work in > quite awhile. I am getting desperate and would like > any input on what > I should do. Thanks for all replies. > > Lonnie in Soonerland > > > Lonnie, > > Yes, your test results can change. I had a positive > ANA titer before, > with speckled blood, indicating and auto-immune > disfunction. When I > had this test done again a few weeks ago, it came > back completely > negative. So, it's always a good idea to have your > blood rechecked. > Also, just so you know, there are differing opinions > as to how high > the ANA titer has to be to indicate Lupus. The > official Lupus site > indicates that anything over 1.2 is positve, and a > 1.6 is extremely > high. Then I found another website that said the ANA > shouldn't be > considered positve for Lupus unless the resluts were > higher than 1.8. > Mine was 1.4 something. Now it's not. I hope this > information helps. > > Take care, > > > > ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 First of all, Lonnie, welcome to our list. Secondly, you should have lab work done as soon as you can and any other workups that the doctor feels is necessary. I am assuming that you do have a doctor or are you looking for one. I really think that you should see one and find out if anything has changed. Although the illness that you have are highly unlikely to have changed. Go see your doctor. It is better to be safe than sorry. > I haven't had any CBC or lab work in quite awhile. I am getting desperate > and would like any input on what I should do. Thanks for all replies. > Lonnie in Soonerland > > Take care, Irene Books may well be the only true magic Alice Hoffman Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 3, 2002 Hi Irene Thanks for your post. I have got several docs for different things. I am going to get tested as soon as I can. Thanks again, Lonnie http://www.activexamerica.com/at.cgi/187007/Arthritis ===== FREE Subscription Arthritis Chronicle Newsletter http://www.activexamerica.com/at.cgi/187007/Newsletter __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 8, 2002 Dear Shirley, I don't know what to say... " Good for you " or " I'm sorry, bad luck " ; I guess both! " They have taken my medical away from me and gave me medicare and they will be taking 54 dollars of my money which is only 510 dollars to begin with. Funny thing is it won't pay anything on perscriptions, guess I am lucky it will help some on doctor visits-LOL. " I have posted some info on different pharmacy/lab sites which give patient assistance. Why not look into them? I will be getting on the Enbrel waiting list through them. " I weighed 360 and now down to 332, low carbing and it sure seems to help with the swelling some. I have a long way to go, seems like such a struggle, tring not to get discouraged! Don't give up Shirley...I know its hard, but I am in agreement with you: that the " country life " will brighten your spirits and help you in your fight! LOVE & LIGHT, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 8, 2002 Dear Shirley, I don't know what to say... " Good for you " or " I'm sorry, bad luck " ; I guess both! " They have taken my medical away from me and gave me medicare and they will be taking 54 dollars of my money which is only 510 dollars to begin with. Funny thing is it won't pay anything on perscriptions, guess I am lucky it will help some on doctor visits-LOL. " I have posted some info on different pharmacy/lab sites which give patient assistance. Why not look into them? I will be getting on the Enbrel waiting list through them. " I weighed 360 and now down to 332, low carbing and it sure seems to help with the swelling some. I have a long way to go, seems like such a struggle, tring not to get discouraged! Don't give up Shirley...I know its hard, but I am in agreement with you: that the " country life " will brighten your spirits and help you in your fight! LOVE & LIGHT, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 8, 2002 Dear Shirley, I don't know what to say... " Good for you " or " I'm sorry, bad luck " ; I guess both! " They have taken my medical away from me and gave me medicare and they will be taking 54 dollars of my money which is only 510 dollars to begin with. Funny thing is it won't pay anything on perscriptions, guess I am lucky it will help some on doctor visits-LOL. " I have posted some info on different pharmacy/lab sites which give patient assistance. Why not look into them? I will be getting on the Enbrel waiting list through them. " I weighed 360 and now down to 332, low carbing and it sure seems to help with the swelling some. I have a long way to go, seems like such a struggle, tring not to get discouraged! Don't give up Shirley...I know its hard, but I am in agreement with you: that the " country life " will brighten your spirits and help you in your fight! LOVE & LIGHT, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 22, 2002 a My lower hips and butt are very painful all the time. They will keep me from walking far most of the time. DH and I have been walking about 4 blocks every night. I think this is helping. In the beginning my husband wasn't receptive at all. He thought a lot of it was exaggerated. He is now very receptive and very concerned. He can tell when I'm really hurting now and makes me stop and rest. There has been a lot of changes in both of our lives. Changes for the good. All I can say is to Pray for him. That's all I could do. We are here for you to vent. Don't hold your feelings in. It will only make matters worse. paulafayem wrote: > . But today is a good day besides my lower hips > and butt are soooooo sore, so I've been trying to walk around alot, > slowly of course. Just started walking per doctor's orders. Hope > this works as well. > > Any suggestions???? My husband is so distant when it comes to > talking about me getting fibro, he says he understands, but doesn't > want to talk it over very much, of course, I have to live with the > pain so it's constantly on my mind. Any suggestions here also??? Soft Hugs Grammie Aria Roanoke, Indiana Yahoo ID: BusyGrammie2002 Check out my groups when you get a chance. Something for everyone. http://groups.yahoo.com/group/QuiltingIndianaHoosiers Do you live in Indiana? This is the group for you. http://groups.yahoo.com/group/WannaBeeCreativeJustQuilt Classes on quilting & general sewing, swaps, mystery quilt WBCJQ website: http://wannabeecreativejustquilt.faithweb.com/ http://groups.yahoo.com/group/BlockOfTheMonth Make each block and you'll end up with a great sampler quilt http://groups.yahoo.com/group/UFOsInTheQuiltWorld Encouragement to get those UFO's finished up Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 22, 2002 Friday, I started taking Elavil and Ultracet with some comfort and 2 nights sleep, but last night I awoke 3 times hurting. Has anyone taken these medications and had good luck??????? -------------------------------------------------------------------------------- Hi a, I have been diagnosed with FMS/CFS since 1999. I take Elavil at night to sleep (2.5 Mgs) I am a little sensitive to sedatives. Yes, it works. However, I have a tough time getting up in the morning when taking it. I am very groggy. How about you? I have stopped taking it recently to see if I can feel a little less dopey. I am less groggy, but do not sleep well at all! I used to be able to sleep on my left side because my right shoulder hurts so darn much. Now my left hip is in so much pain I can't even sleep on that side! I hate sleeping on my back and stomach, but that's all that's left. Unless someone has any tips on sleeping sitting or standing up! LOL I haven't tried Ultracet, but I use Darvocet and it helps a great deal. Of course it all comes down to choosing whether you want to be dopey or in pain. Not much of a choice. I have an appointment Wednesday with my Dr. regarding the hip. I really could use a little pep talk about asking for disability. Help folks! BTW a, welcome to the group. Everyone here is very supportive and friendly. in So. Cal. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 6, 2002 In a message dated 08/06/2002 8:16:39 AM US Eastern Standard Time, sherry98@... writes: > I found it very humorous and I just > hope it will bring a smile to your face today! Thats cute g/f...very cute...made me smile thanks. Allicia Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 6, 2002 In a message dated 08/06/2002 8:16:39 AM US Eastern Standard Time, sherry98@... writes: > I found it very humorous and I just > hope it will bring a smile to your face today! Thats cute g/f...very cute...made me smile thanks. Allicia Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 6, 2002 In a message dated 08/06/2002 8:16:39 AM US Eastern Standard Time, sherry98@... writes: > I found it very humorous and I just > hope it will bring a smile to your face today! Thats cute g/f...very cute...made me smile thanks. Allicia Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 21, 2002 Hi , Welcome to the group. Yes I have both fatigue and depression and you're absolutely right. It is very hard to tell the difference! How long have you been diagnosed? What are your symptoms? I have SLE, FMS, MS and a Seizure Disorder from the Lupus. I would be happy to chat anytime. Email me whenever you want. Soft hugs, Annie C. from Mass. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 21, 2002 Hi , Welcome to the group. Yes I have both fatigue and depression and you're absolutely right. It is very hard to tell the difference! How long have you been diagnosed? What are your symptoms? I have SLE, FMS, MS and a Seizure Disorder from the Lupus. I would be happy to chat anytime. Email me whenever you want. Soft hugs, Annie C. from Mass. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 22, 2002 -What do you mean sheets-full of formaldehyde?? - In @y..., Eisenbeis wrote: > > > > >>>>--I think our environment is killing us. We have low levels of > pesticides in water on our food and it can even be found in breast > milk. Annies message made me think of this with her diagnosis of SLE, > FMS, and MS. These are all auto immune disorders. This is where our > own immune system is attacking our bodies. <<<<< > > I believe this as well. I've done a lot of research and recently converted my home to non-toxic products and superior health supplements and I am feeling better since the switch........no longer rolling around in sheets full of formaldehyde, or breathing toxic fumes when I run the dishwasher or clean the floors. > > > > > Quote Share this post Link to post Share on other sites
