Hello

[Guest guest]

Bievenido Beto,

Yo me llamo Cristobal Roche. Me operaron el 15 de Abril, 04. A

mi tambien me dijieron que esta surgeria era " expirimental " , y por

eso lo debo evitar. Pero la pregunta es asi: Que hay que perder? Si

no funciona la operacion, ud. siempre puede tener el THR. Pero si

la operacion tiene exito, ud. va tener anos sin dolor, y con la usa

completa de su cadera. Hay miles de peronas con mas de 6 anos de

exito con el BHr. Y mas de 90% de los que recibieron su bhr estan en

usa todavia. Eres joven para el THR. Que tal si el BHR le sirve 15 o

20 anos? Que bien seria!! Es importante evitar el THR proque cuando

ya no sierven (7-15 anos) las operaciones de componer tiene mas

riesgo y problemas. A mi me explicaron tambien que el BHR le carga

mas naturalmente al hueso. Y cortan menos hueso tambien. Con 39 anos

ud. tiene que considerar que hay muchos anos a vivir todavia.

Perdona mi espanol, a lo mejor he hecho errores gramaticas, pero

me gusta hacer el intento de escribir en espanol cuando tengo la

opertunidad. Buena suerte amigo, y le paso mi numero de telefono

agui en california si ud. quisiera platicar.

Cristobal Roche C+ 4-15-04

> First of all, sorry by my bad english.

>

> I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan

(Catalonia is a small country in Spain State), I live near to

Barcelona and I have a bilateral osteoarthritis in my hips.

>

> Recently I knew a patient who had a BHR (April/2004) in his left

hip. His surgeon is Dr. González-Adrio Wagner in Barcelona.

This patient is very happy with his new life: no pain and just now,

start work and sport (walking and cycling).

>

> I didn't know this devices, two or three years ago I visited a lot

of doctors and nobody told me this metod. Only says: " you must

resist all the time as a possible, the only solution is the THR, and

you are too young for this device "

>

> One month ago I visited Dr. González-Adrio and he show me this new

method (BHR) and he encouraged me. Anybody knows Dr. González-Adrio

Wagner?

>

> Now, I'm in study. I buy (and read) the book of Peggy

(congratulations Peggy) and I visisted a lot of webs, specially

www.activejoints.com (congratulations ), and I'm afraid.

>

> The " classical " doctors says: this is a experimental device (BHR),

this device produces debris: metal ions, etc. and, probably, needs

the same revision like THR with metal-poly.

>

> And now i not that to do...

>

>

> ---------------------------------

>

>

>

>

[Guest guest]

Beto,

Dr Koen De Smet regularly travels to Italy to perform BHR surgery. I suggest

you email him at his clinic - koen.desmet@... or Info@... and see

if you can see him. He performed my surgery almost 2 years ago and I have

returned to my very active life. If you wait too long you run the risk of not

being a candidate for the resurfacing procedure.

Best of luck,

Rock climbin' Jude

LBHR De Smet 09/11/02

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is a

small country in Spain State), I live near to Barcelona and I have a bilateral

osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is very

happy with his new life: no pain and just now, start work and sport (walking and

cycling).

I didn't know this devices, two or three years ago I visited a lot of doctors

and nobody told me this metod. Only says: " you must resist all the time as a

possible, the only solution is the THR, and you are too young for this device "

One month ago I visited Dr. González-Adrio and he show me this new method (BHR)

and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy (congratulations

Peggy) and I visisted a lot of webs, specially www.activejoints.com

(congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this device

produces debris: metal ions, etc. and, probably, needs the same revision like

THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Beto,

Dr Koen De Smet regularly travels to Italy to perform BHR surgery. I suggest

you email him at his clinic - koen.desmet@... or Info@... and see

if you can see him. He performed my surgery almost 2 years ago and I have

returned to my very active life. If you wait too long you run the risk of not

being a candidate for the resurfacing procedure.

Best of luck,

Rock climbin' Jude

LBHR De Smet 09/11/02

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is a

small country in Spain State), I live near to Barcelona and I have a bilateral

osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is very

happy with his new life: no pain and just now, start work and sport (walking and

cycling).

I didn't know this devices, two or three years ago I visited a lot of doctors

and nobody told me this metod. Only says: " you must resist all the time as a

possible, the only solution is the THR, and you are too young for this device "

One month ago I visited Dr. González-Adrio and he show me this new method (BHR)

and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy (congratulations

Peggy) and I visisted a lot of webs, specially www.activejoints.com

(congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this device

produces debris: metal ions, etc. and, probably, needs the same revision like

THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Hi

> The " classical " doctors says: this is a experimental device (BHR),

this device produces debris: metal ions, etc. and, probably, needs the

same revision like THR with metal-poly.

Lots of doctors say things like that. The majority opinion on

this board is that the doctors don't have a 20-year-history of the BHR

to back them up, so they are being very conservative. It's important

to note that if you do need a THR in the future, it will be a first

THR, not a revision (the latter has a shorter lifespan), and probably

the acetabular component will not need replacing. Most patients who

have had a resurfacing instead of a THR are very happy with their

choice, their quicker recovery time and reduced physical restrictions.

If nothing else, it buys time for a younger person like yourself.

Personally, the lack of pain and improved movement, compared to

the previous four years before my surgery, makes me very glad to be

one of the recipients of this " experimental " device. Of course, for a

few weeks after the surgery, one is weak and has muscle pains, but

after the first two months it is like getting one's normal life back.

The positive attitude (not to mention increased ability to exercise)

that results from this reprieve is definitely good for one's health,

and hopefully would negate any problems that might result from a

slight increase in metal ions. So I urge you not to be afraid.

Best wishes,

n

rBHR Oct.2003 McMinn

[Guest guest]

Hi Beto ( Everyone is a friend here)

Firstly Barcelona is the most beautiful city in the world (it beats London

and Paris easily and an added plus is it's warmer too!

Don't be put off resurfacing by negative comments from Orthopaedic Surgeons

who should educate themselves before offering advice. BHR is widely

accepted by surgeons in a large part of the world and in the UK by our

state health system. There has been metal to metal THR's (Total Hip

Replacement) in the UK since 1938 . If there was a problem with metal

debris it would have shown up by now.

I hope this e-mail helps

Rog BHR both hips 2001 Ronan Treacy

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is

a small country in Spain State), I live near to Barcelona and I have a

bilateral osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is

very happy with his new life: no pain and just now, start work and sport

(walking and cycling).

I didn't know this devices, two or three years ago I visited a lot of

doctors and nobody told me this metod. Only says: " you must resist all the

time as a possible, the only solution is the THR, and you are too young for

this device "

One month ago I visited Dr. González-Adrio and he show me this new method

(BHR) and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy

(congratulations Peggy) and I visisted a lot of webs, specially

www.activejoints.com (congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this

device produces debris: metal ions, etc. and, probably, needs the same

revision like THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Hi Beto ( Everyone is a friend here)

Firstly Barcelona is the most beautiful city in the world (it beats London

and Paris easily and an added plus is it's warmer too!

Don't be put off resurfacing by negative comments from Orthopaedic Surgeons

who should educate themselves before offering advice. BHR is widely

accepted by surgeons in a large part of the world and in the UK by our

state health system. There has been metal to metal THR's (Total Hip

Replacement) in the UK since 1938 . If there was a problem with metal

debris it would have shown up by now.

I hope this e-mail helps

Rog BHR both hips 2001 Ronan Treacy

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is

a small country in Spain State), I live near to Barcelona and I have a

bilateral osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is

very happy with his new life: no pain and just now, start work and sport

(walking and cycling).

I didn't know this devices, two or three years ago I visited a lot of

doctors and nobody told me this metod. Only says: " you must resist all the

time as a possible, the only solution is the THR, and you are too young for

this device "

One month ago I visited Dr. González-Adrio and he show me this new method

(BHR) and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy

(congratulations Peggy) and I visisted a lot of webs, specially

www.activejoints.com (congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this

device produces debris: metal ions, etc. and, probably, needs the same

revision like THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Hi Beto ( Everyone is a friend here)

Firstly Barcelona is the most beautiful city in the world (it beats London

and Paris easily and an added plus is it's warmer too!

Don't be put off resurfacing by negative comments from Orthopaedic Surgeons

who should educate themselves before offering advice. BHR is widely

accepted by surgeons in a large part of the world and in the UK by our

state health system. There has been metal to metal THR's (Total Hip

Replacement) in the UK since 1938 . If there was a problem with metal

debris it would have shown up by now.

I hope this e-mail helps

Rog BHR both hips 2001 Ronan Treacy

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is

a small country in Spain State), I live near to Barcelona and I have a

bilateral osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is

very happy with his new life: no pain and just now, start work and sport

(walking and cycling).

I didn't know this devices, two or three years ago I visited a lot of

doctors and nobody told me this metod. Only says: " you must resist all the

time as a possible, the only solution is the THR, and you are too young for

this device "

One month ago I visited Dr. González-Adrio and he show me this new method

(BHR) and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy

(congratulations Peggy) and I visisted a lot of webs, specially

www.activejoints.com (congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this

device produces debris: metal ions, etc. and, probably, needs the same

revision like THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Hi Beto

Once again I shall agree with on both counts – firstly, that resurfacing

is safe and as replied to you in Spanish (as far as I could understand

Spanish) what have you got to loose? If it is not a 100% success, you still

have the THR option available to you (that was the argument I used with my OS

when I asked him to refer me to a colleague who was performing resurfacing

instead of going ahead with his recommendation for a THR at my tender age of 53

at the time).

And, secondly, I agree with Rog that Barcelona is one of the most beautiful

cities in the world – it certainly beats both London (in which I live), and

Paris (in which I stayed for a period of time). And I don’t mean just La

Ramblas (I hope I spelt it correctly) and the beautiful women one can see there,

but many parts of this beautiful city with the exotic architecture of Gaudi and

the fantastic bars and restaurants. By the way, there was a chap, he may have

been a Brit, who had his resurfacing done in Belgium (with deSmet, I believe)

and who lived in Barcelona and created a web site about his resurfacing where he

outlined his experiences in a diary form – see if someone remembers his name

or web site as it had his home phone number as well.

Regards

Dan

mobile +44 (0)7974 981-407

email <******************************> dan.milosevic@...

_____

From: Frost

Sent: 28 June 2004 04:46

To: surfacehippy

Subject: Re: Hello

Hi Beto ( Everyone is a friend here)

Firstly Barcelona is the most beautiful city in the world (it beats London

and Paris easily and an added plus is it's warmer too!

Don't be put off resurfacing by negative comments from Orthopaedic Surgeons

who should educate themselves before offering advice. BHR is widely

accepted by surgeons in a large part of the world and in the UK by our

state health system. There has been metal to metal THR's (Total Hip

Replacement) in the UK since 1938 . If there was a problem with metal

debris it would have shown up by now.

I hope this e-mail helps

Rog BHR both hips 2001 Ronan Treacy

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is

a small country in Spain State), I live near to Barcelona and I have a

bilateral osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is

very happy with his new life: no pain and just now, start work and sport

(walking and cycling).

I didn't know this devices, two or three years ago I visited a lot of

doctors and nobody told me this metod. Only says: " you must resist all the

time as a possible, the only solution is the THR, and you are too young for

this device "

One month ago I visited Dr. González-Adrio and he show me this new method

(BHR) and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy

(congratulations Peggy) and I visisted a lot of webs, specially

www.activejoints.com (congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this

device produces debris: metal ions, etc. and, probably, needs the same

revision like THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Hi Beto

Once again I shall agree with on both counts – firstly, that resurfacing

is safe and as replied to you in Spanish (as far as I could understand

Spanish) what have you got to loose? If it is not a 100% success, you still

have the THR option available to you (that was the argument I used with my OS

when I asked him to refer me to a colleague who was performing resurfacing

instead of going ahead with his recommendation for a THR at my tender age of 53

at the time).

And, secondly, I agree with Rog that Barcelona is one of the most beautiful

cities in the world – it certainly beats both London (in which I live), and

Paris (in which I stayed for a period of time). And I don’t mean just La

Ramblas (I hope I spelt it correctly) and the beautiful women one can see there,

but many parts of this beautiful city with the exotic architecture of Gaudi and

the fantastic bars and restaurants. By the way, there was a chap, he may have

been a Brit, who had his resurfacing done in Belgium (with deSmet, I believe)

and who lived in Barcelona and created a web site about his resurfacing where he

outlined his experiences in a diary form – see if someone remembers his name

or web site as it had his home phone number as well.

Regards

Dan

mobile +44 (0)7974 981-407

email <******************************> dan.milosevic@...

_____

From: Frost

Sent: 28 June 2004 04:46

To: surfacehippy

Subject: Re: Hello

Hi Beto ( Everyone is a friend here)

Firstly Barcelona is the most beautiful city in the world (it beats London

and Paris easily and an added plus is it's warmer too!

Don't be put off resurfacing by negative comments from Orthopaedic Surgeons

who should educate themselves before offering advice. BHR is widely

accepted by surgeons in a large part of the world and in the UK by our

state health system. There has been metal to metal THR's (Total Hip

Replacement) in the UK since 1938 . If there was a problem with metal

debris it would have shown up by now.

I hope this e-mail helps

Rog BHR both hips 2001 Ronan Treacy

Hello

First of all, sorry by my bad english.

I'm Rigobert (Beto for the friends), 39 years old, I'm Catalan (Catalonia is

a small country in Spain State), I live near to Barcelona and I have a

bilateral osteoarthritis in my hips.

Recently I knew a patient who had a BHR (April/2004) in his left hip. His

surgeon is Dr. González-Adrio Wagner in Barcelona. This patient is

very happy with his new life: no pain and just now, start work and sport

(walking and cycling).

I didn't know this devices, two or three years ago I visited a lot of

doctors and nobody told me this metod. Only says: " you must resist all the

time as a possible, the only solution is the THR, and you are too young for

this device "

One month ago I visited Dr. González-Adrio and he show me this new method

(BHR) and he encouraged me. Anybody knows Dr. González-Adrio Wagner?

Now, I'm in study. I buy (and read) the book of Peggy

(congratulations Peggy) and I visisted a lot of webs, specially

www.activejoints.com (congratulations ), and I'm afraid.

The " classical " doctors says: this is a experimental device (BHR), this

device produces debris: metal ions, etc. and, probably, needs the same

revision like THR with metal-poly.

And now i not that to do...

---------------------------------

[Guest guest]

Hi Bonnie,

How are you doing??? Hope you arrived back home well and that you

have had some time to rest up now!!! I am still really JetLagged...

Takes me quite a while... I might have some bug or something like

that too, have been so nauseated and yucky for days. But it shall

pass, I am sure... When I feel a bit better, I will have to post a

lot, that's for sure... This conference was something else, that's

for sure!!! Sue, Kathy, Judy, Dawn and the others can for sure be

more than super-proud of themselves!!!! What an amazing job they

did!!!! And what an amazing bunch of people as usual... And to top it

all off, Mike and Darlene... Need I say more??? Mind blowing this

conference, that's for sure...

I was wondering if maybe something went wrong with this post of

yours. It only said " Hello " , then in the body of the mail

" Important! " , but nothing else at all... Didn't exactly make too much

sense, but maybe I missed something? Or did you forget to paste

something, an URL or something like that?

Take care and say hi to !!!

hugs,

Aase Marit

>Important!

>

[Guest guest]

Hi Bonnie,

How are you doing??? Hope you arrived back home well and that you

have had some time to rest up now!!! I am still really JetLagged...

Takes me quite a while... I might have some bug or something like

that too, have been so nauseated and yucky for days. But it shall

pass, I am sure... When I feel a bit better, I will have to post a

lot, that's for sure... This conference was something else, that's

for sure!!! Sue, Kathy, Judy, Dawn and the others can for sure be

more than super-proud of themselves!!!! What an amazing job they

did!!!! And what an amazing bunch of people as usual... And to top it

all off, Mike and Darlene... Need I say more??? Mind blowing this

conference, that's for sure...

I was wondering if maybe something went wrong with this post of

yours. It only said " Hello " , then in the body of the mail

" Important! " , but nothing else at all... Didn't exactly make too much

sense, but maybe I missed something? Or did you forget to paste

something, an URL or something like that?

Take care and say hi to !!!

hugs,

Aase Marit

>Important!

>

[Guest guest]

Hi Norma Jean,

I have not gone through trying to get records from Doctors who are dead....but have just recently started getting all my records from since I was diagnosed in 1997......I still am waiting for a few, but they should be in the Mail.

Didn't you say in a previous Email that you had had Lupus since you were a baby? I hope your new Rheumy understands, and gives you the treatment you need anyway.

Doctors can be such a hassle to deal with......I thought I had all my problems resolved with MY PCP.....yet today I spent all day long waiting for his nurse to either return my call or call in my Prescription refills to the Pharmacy I always call in the refills to the pharmacy first, and they have been trying to contact my doctor for 3 days now..

hello

Hello to everyone from my house to yours . Today was interesting we just moved here a few mo ago and I became ill today I recieved a call from my new Doctor asking if I would make a list of all the Doctors I have seen sence I was first diagnosed with Lupus . so all day I have tried to make a list alot of the Doctors are dead wow so were are my records . has any one ever gone through something like this. ? I pray that everyone in Florida is ok Norma Jean

Waterloo26@...

the4bess@...

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Dee, do you have Lupus or are you just doing research...to help your

patients? I am 36 and have had Lupus for 16 yrs. now and progressing

to brain involvement. You have MANY people here that have A LOT of

info; from experience. Welcome.

Blessings,

In Cali

> My name is Dee. I just joined today and wanted to say hello and thank

> you for being here for those of us who need the help and support of

> others in my position. I am a 44 year old nurse with 3 grown sons and

> 3 grandchildren. I just wanted to introduce myself and hope to get to

> know you all better and be able to learn a lot about this disease and

> be there for others who need the support.

[Guest guest]

Dee, do you have Lupus or are you just doing research...to help your

patients? I am 36 and have had Lupus for 16 yrs. now and progressing

to brain involvement. You have MANY people here that have A LOT of

info; from experience. Welcome.

Blessings,

In Cali

> My name is Dee. I just joined today and wanted to say hello and thank

> you for being here for those of us who need the help and support of

> others in my position. I am a 44 year old nurse with 3 grown sons and

> 3 grandchildren. I just wanted to introduce myself and hope to get to

> know you all better and be able to learn a lot about this disease and

> be there for others who need the support.

[Guest guest]

Dear Dawn, Hello, and again, welcome to the group. I know how it feels to be considered "mental"

about one's health, and to have doctors and family members, alike, tell you it's "all in your head".

That is a common theme with Lupus and other autoimmune patients. If they don't know the answers,

they tend to deny the existence of the problem...especially if it frightens them.

If you go to the main Lupies site, click on LINKS, then scroll down the articles listed, you will find

printable pages devoted to these issues. There is even one that explains in plain English what is

happening to your body, and it is directed at your family and friends for their education. What they

choose to believe is, of course, up to them, but if we have anything to say about it, it won't be due

to ignorance of the issues. LOL We periodically post the most up to the minute articles on testing,

reading results, explaining health issues to family and friends, medical trials, pharmaceuticals,

strategies for coping, and many more. Look for these articles on the main board, or if you are

receiving individual emails, in your mailbox. You can save them to read later, or print them for your

personal medical reference library. Very handy.

I think you will probably find your best bet to find medical help would be a teaching hospital in your

area. In many states, that is the only option for Lupus patients, since it is still not well understood.

You can also contact the Lupus Foundation of America for information on specialists in your area.

www.lupus.org is the web address.

Keep writing to the group, share your concerns, fears, laughs, tears. We all need this outlet in order

to cope with this disease. Because each patient manifests Lupus in a unique way, and responds to

each treatment differently, it is very difficult to diagnose and treat. It is largely a matter of trial

and error in terms of finding the right mix of physicians, drugs, and daily coping strategies. I know,

I've lived with this disease since I was ten, went undiagnosed until I was thirty, and am now fifty-five

and have developed congestive heart failure as another aspect of it.

I know this is getting long, but you might want to know a little about me: I live in No. California, about

50 miles from San Francisco. I am the adoptive mother of four, grandmother of two, and retired on

full disability pension from my job in education (25 years). I had to retire due to Rheumatoid Arthritis

and Lupus, Myofibrositis, Anemia, Sjogren's Syndrome, chronic Lyme Disease (tick bites that went

undiagosed for six years), non-insulin dependent Diabetes, and now an Ulcer, and the topper: CHF.

I have two boys still at home, ages 12 and 16. So, I have a major challenge just in getting them up

and independent. All of my children are special needs adoptions due to their fragile status as infants

from drug exposure, early birth, or other physical and developmental problems, so they are extra

challenging. I was, until my retirement, working full time, and am a single parent. Yup, I am insane

and an overachiever. LOL

So, tell us some more about YOU, and keep us posted on how you do in finding a good Rheumatologist. Hugs, MM aka: Mike, one of the Owner/Moderators

[Guest guest]

Welcome, & Kaitlin,

We're glad that you are here and decided to post!

Keep us updated on Kaitlin's progress!

Regards,

& (3-16-00)

left clubfoot

[Guest guest]

I'm glad to hear that things are going well for you and Kaitlin!

Pam and (8-12-01)

>

>

>

> Hi everyone,

>

> My name is Bennie and I live in South Africa. My little

girl

> was born with club feet. I just want to thank you guys. If I had

not

> found this website I would never of known about the Ponseti method.

> THANK YOU so much!!!!

>

> She only has to have her DBB'S on when she sleeps now.

>

> once again thank you so much.

>

> and Kaitlin

[Guest guest]

Hi and happy New Year to all of you too,

How wonderful to welcome a new one into your life at this time of year,

congratulations! I too have a new grandson that is 3 weeksold tomorrow. What a

blessing. I am down here with my daughter for the last 3 weeks, flew in 7

hours before she started labor. She was not due until Christmas day, so I am

VERY thankful that she listened to me and did not go into labor before I got

here! ha I was very worried that her muscles would not hold out through

pushing, but she did very well for a person with a myopathy.

I hope and pray you all are blessed abundantly this new year and have improved

health.

smiles to you all,

- william hawthorne whhawt@...> wrote:

>

> Hello,

> I hope everyone has had a wonderful New Year's Day and that 2005 will

> be the best year yet for each of you.

> Our holiday has been bright when we held, rocked and walked our 3 week

> old grandson and played with our 3 yr. old grandson. We are sad that

> our 30 yr. old daughter, with mito, hardly knew it was Christmas. At

> this point in her journey she has significant dementia.

> Hugs to all, Shelby

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Hi and happy New Year to all of you too,

How wonderful to welcome a new one into your life at this time of year,

congratulations! I too have a new grandson that is 3 weeksold tomorrow. What a

blessing. I am down here with my daughter for the last 3 weeks, flew in 7

hours before she started labor. She was not due until Christmas day, so I am

VERY thankful that she listened to me and did not go into labor before I got

here! ha I was very worried that her muscles would not hold out through

pushing, but she did very well for a person with a myopathy.

I hope and pray you all are blessed abundantly this new year and have improved

health.

smiles to you all,

- william hawthorne whhawt@...> wrote:

>

> Hello,

> I hope everyone has had a wonderful New Year's Day and that 2005 will

> be the best year yet for each of you.

> Our holiday has been bright when we held, rocked and walked our 3 week

> old grandson and played with our 3 yr. old grandson. We are sad that

> our 30 yr. old daughter, with mito, hardly knew it was Christmas. At

> this point in her journey she has significant dementia.

> Hugs to all, Shelby

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Congratulations on the new grandbaby.

laurie

>

> Reply-To:

> Date: Sat, 1 Jan 2005 22:14:33 -0500

> To:

> Subject: Re: Hello

>

> Hi and happy New Year to all of you too,

>

> How wonderful to welcome a new one into your life at this time of year,

> congratulations! I too have a new grandson that is 3 weeksold tomorrow. What

> a blessing. I am down here with my daughter for the last 3 weeks, flew in 7

> hours before she started labor. She was not due until Christmas day, so I am

> VERY thankful that she listened to me and did not go into labor before I got

> here! ha I was very worried that her muscles would not hold out through

> pushing, but she did very well for a person with a myopathy.

>

> I hope and pray you all are blessed abundantly this new year and have improved

> health.

>

> smiles to you all,

>

>

> - william hawthorne whhawt@...> wrote:

>>

>> Hello,

>> I hope everyone has had a wonderful New Year's Day and that 2005 will

>> be the best year yet for each of you.

>> Our holiday has been bright when we held, rocked and walked our 3 week

>> old grandson and played with our 3 yr. old grandson. We are sad that

>> our 30 yr. old daughter, with mito, hardly knew it was Christmas. At

>> this point in her journey she has significant dementia.

>> Hugs to all, Shelby

>>

>>

>>

>>

>> Medical advice, information, opinions, data and statements contained herein

>> are not necessarily those of the list moderators. The author of this e mail

>> is entirely responsible for its content. List members are reminded of their

>> responsibility to evaluate the content of the postings and consult with their

>> physicians regarding changes in their own treatment.

>>

>> Personal attacks are not permitted on the list and anyone who sends one is

>> automatically moderated or removed depending on the severity of the attack.

>>

>>

[Guest guest]

Shelby

Congratulation on the new grandbaby. I'm glad you got to be with your

grandsons.

Hang on to these joys.

Hugs,

laurie

>

> Reply-To:

> Date: Sat, 1 Jan 2005 20:42:41 -0500

> To: , adultmito

> Subject: Hello

>

> Hello,

> I hope everyone has had a wonderful New Year's Day and that 2005 will

> be the best year yet for each of you.

> Our holiday has been bright when we held, rocked and walked our 3 week

> old grandson and played with our 3 yr. old grandson. We are sad that

> our 30 yr. old daughter, with mito, hardly knew it was Christmas. At

> this point in her journey she has significant dementia.

> Hugs to all, Shelby

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>

[Guest guest]

Shelby

Congratulation on the new grandbaby. I'm glad you got to be with your

grandsons.

Hang on to these joys.

Hugs,

laurie

>

> Reply-To:

> Date: Sat, 1 Jan 2005 20:42:41 -0500

> To: , adultmito

> Subject: Hello

>

> Hello,

> I hope everyone has had a wonderful New Year's Day and that 2005 will

> be the best year yet for each of you.

> Our holiday has been bright when we held, rocked and walked our 3 week

> old grandson and played with our 3 yr. old grandson. We are sad that

> our 30 yr. old daughter, with mito, hardly knew it was Christmas. At

> this point in her journey she has significant dementia.

> Hugs to all, Shelby

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>

[Guest guest]

thank you Laurie,

Love,

---- Laureta Fitzgerald lfitzger@...> wrote:

>

>

>

> Congratulations on the new grandbaby.

>

> laurie

>

> >

> > Reply-To:

> > Date: Sat, 1 Jan 2005 22:14:33 -0500

> > To:

> > Subject: Re: Hello

> >

> > Hi and happy New Year to all of you too,

> >

> > How wonderful to welcome a new one into your life at this time of year,

> > congratulations! I too have a new grandson that is 3 weeksold tomorrow.

What

> > a blessing. I am down here with my daughter for the last 3 weeks, flew in

7

> > hours before she started labor. She was not due until Christmas day, so I am

> > VERY thankful that she listened to me and did not go into labor before I got

> > here! ha I was very worried that her muscles would not hold out through

> > pushing, but she did very well for a person with a myopathy.

> >

> > I hope and pray you all are blessed abundantly this new year and have

improved

> > health.

> >

> > smiles to you all,

> >

> >

> > - william hawthorne whhawt@...> wrote:

> >>

> >> Hello,

> >> I hope everyone has had a wonderful New Year's Day and that 2005 will

> >> be the best year yet for each of you.

> >> Our holiday has been bright when we held, rocked and walked our 3 week

> >> old grandson and played with our 3 yr. old grandson. We are sad that

> >> our 30 yr. old daughter, with mito, hardly knew it was Christmas. At

> >> this point in her journey she has significant dementia.

> >> Hugs to all, Shelby

> >>

> >>

> >>

> >>

> >> Medical advice, information, opinions, data and statements contained herein

> >> are not necessarily those of the list moderators. The author of this e mail

> >> is entirely responsible for its content. List members are reminded of their

> >> responsibility to evaluate the content of the postings and consult with

their

> >> physicians regarding changes in their own treatment.

> >>

> >> Personal attacks are not permitted on the list and anyone who sends one is

> >> automatically moderated or removed depending on the severity of the attack.

> >>

> >>

[Guest guest]

hello terri, well today was the first day back to work and what hell it was, i felt like every nerve was on fire in my lower back, knees, elbows, head, and from my jaw to my ears (which by the way wont stop ringing) it was truly the worst and longest day of my life (by the way i am a carpenter) and i love what i do but my hands are getting to the point that the dont like to do what i tell them to do. I have lost reflexes in both arms and now they want to tell me that its from carpell tunnel.but guess what they gave me steroids and it helped(lol) ofcorse it did thats what the treat everything with., i am seeing a V.A. doctor in hampton (dr hitchings) but i think i would do well to find another doc, i called him today to tell him about the problems im having and he never retured my call. im just so tired of the whole thing( worring that if i cant work that ill lose everything) i got to get to sleep,GOT TO WORK TOMORROW), LOVE TO ALL. NIGHT mosaicgirl1

wrote: Tony, It is great to have you join us. I live in Portsmouth so it is great to have someone in the area join the group. I have been going back and forth between the MS or NS diagnosis for some time, so I was wondering who your doctors are? If I ever get a diagnosis, I would like to have someone who has dealt with NS before. I see from your post that you are worried about working. What type of work do you do? Do you have a private disability policy through work? If you are worried this might happen talk to your HR benefits person. They can tell you about taking a short term disablity leave - mine was paid for three months. I ended up never going back but I did have a private long term disability that pays me 60% of my salary, so I am the lucky to

still have an income. Well, take care and let me know if you have both MS and NS. I can give you some resources for MS; they treated me for 6 months and I did get involved in some groups. Terri G.

Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.

[Guest guest]

hello terri, well today was the first day back to work and what hell it was, i felt like every nerve was on fire in my lower back, knees, elbows, head, and from my jaw to my ears (which by the way wont stop ringing) it was truly the worst and longest day of my life (by the way i am a carpenter) and i love what i do but my hands are getting to the point that the dont like to do what i tell them to do. I have lost reflexes in both arms and now they want to tell me that its from carpell tunnel.but guess what they gave me steroids and it helped(lol) ofcorse it did thats what the treat everything with., i am seeing a V.A. doctor in hampton (dr hitchings) but i think i would do well to find another doc, i called him today to tell him about the problems im having and he never retured my call. im just so tired of the whole thing( worring that if i cant work that ill lose everything) i got to get to sleep,GOT TO WORK TOMORROW), LOVE TO ALL. NIGHT mosaicgirl1

wrote: Tony, It is great to have you join us. I live in Portsmouth so it is great to have someone in the area join the group. I have been going back and forth between the MS or NS diagnosis for some time, so I was wondering who your doctors are? If I ever get a diagnosis, I would like to have someone who has dealt with NS before. I see from your post that you are worried about working. What type of work do you do? Do you have a private disability policy through work? If you are worried this might happen talk to your HR benefits person. They can tell you about taking a short term disablity leave - mine was paid for three months. I ended up never going back but I did have a private long term disability that pays me 60% of my salary, so I am the lucky to

still have an income. Well, take care and let me know if you have both MS and NS. I can give you some resources for MS; they treated me for 6 months and I did get involved in some groups. Terri G.

Yahoo! Autos. Looking for a sweet ride? Get pricing, reviews, more on new and used cars.