Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Hello all! As most of you know, my daughter Grace is affected with a nonspecific mito. Up until lately, I felt so lucky that I had three other "healthy children." The oldest of my birth children, (6), has started having some strange problems. I do not know if it can be linked to mito or not. This is why I came to you, the experts. First of all she had some behavior problems in Kindergarten, but we switched her from full day to half day and life was fine. She is now in first grade, and her behavior is great. We get no bad reports from her teacher, until today. I got a phone call from her gym teacher. She tells me refuses to participate, telling her all the time she does not feel well. Her classroom teacher has told me that she does complain of headaches a lot, but it is not a problem in his class. Her gym class is late in the day, 2:30. When she gets home she is usually pretty irritable, until I give her a snack to hold her off until dinner. After dinner she is fine. Then when it comes to nighttime she has a ton of headaches. She really seems like she is in a lot of pain. They get so bad sometimes it will put her in tears. She will almost always be in bed with them. I do not think it is her eyes, she wears glasses and just got new ones. I hoped the new glasses would help, but they have not changed the situation at all. Also she gets leg spasms a lot. I have seen them and her legs just shake uncontrollably. She says it causes pain when this happens. Oh yeah and back to school. Her teacher also has referred her to an OT, because she is having a horrible time with handwriting. Her teacher and I both agree it is not lack of effort, she just cannot write neatly. He was concerned even before hearing of her sisters illness. I just wonder if some of this may be mito related. It seems odd that most of her problems start after 5 hours of school. On the weekends she is fine. She is never overly active, but plays. She spends a lot of time playing barbies and reading, all low energy activities. This is why I wonder if she could have a problem. I did make an appointment for tomorrow night with her pediatrician. If anyone has suggestions on some preliminary bloodwork, I would appreciate it. Thanks Again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Could it be low blood sugars? My husband is a diabetic and when his blood sugars get low, he has horrible headaches that turn into migraines. Just a thought since you mentioned she is a little better after a snack. Geri-Anne and Wyatt, Complex I > Hello all! As most of you know, my daughter Grace is affected with a > nonspecific mito. Up until lately, I felt so lucky that I had three other " healthy > children. " The oldest of my birth children, (6), has started having > some strange problems. I do not know if it can be linked to mito or not. This > is why I came to you, the experts. First of all she had some behavior > problems in Kindergarten, but we switched her from full day to half day and life was > fine. She is now in first grade, and her behavior is great. We get no bad > reports from her teacher, until today. I got a phone call from her gym teacher. > She tells me refuses to participate, telling her all the time she > does not feel well. Her classroom teacher has told me that she does complain of > headaches a lot, but it is not a problem in his class. Her gym class is late > in the day, 2:30. When she gets home she is usually pretty irritable, until > I give her a snack to hold her off until dinner. After dinner she is fine. > Then when it comes to nighttime she has a ton of headaches. She really seems > like she is in a lot of pain. They get so bad sometimes it will put her in > tears. She will almost always be in bed with them. I do not think it is her > eyes, she wears glasses and just got new ones. I hoped the new glasses would > help, but they have not changed the situation at all. Also she gets leg spasms a > lot. I have seen them and her legs just shake uncontrollably. She says it > causes pain when this happens. Oh yeah and back to school. Her teacher also > has referred her to an OT, because she is having a horrible time with > handwriting. Her teacher and I both agree it is not lack of effort, she just cannot > write neatly. He was concerned even before hearing of her sisters illness. I > just wonder if some of this may be mito related. It seems odd that most of her > problems start after 5 hours of school. On the weekends she is fine. She is > never overly active, but plays. She spends a lot of time playing barbies and > reading, all low energy activities. This is why I wonder if she could have a > problem. I did make an appointment for tomorrow night with her pediatrician. > If anyone has suggestions on some preliminary bloodwork, I would appreciate > it. Thanks Again. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Could it be low blood sugars? My husband is a diabetic and when his blood sugars get low, he has horrible headaches that turn into migraines. Just a thought since you mentioned she is a little better after a snack. Geri-Anne and Wyatt, Complex I > Hello all! As most of you know, my daughter Grace is affected with a > nonspecific mito. Up until lately, I felt so lucky that I had three other " healthy > children. " The oldest of my birth children, (6), has started having > some strange problems. I do not know if it can be linked to mito or not. This > is why I came to you, the experts. First of all she had some behavior > problems in Kindergarten, but we switched her from full day to half day and life was > fine. She is now in first grade, and her behavior is great. We get no bad > reports from her teacher, until today. I got a phone call from her gym teacher. > She tells me refuses to participate, telling her all the time she > does not feel well. Her classroom teacher has told me that she does complain of > headaches a lot, but it is not a problem in his class. Her gym class is late > in the day, 2:30. When she gets home she is usually pretty irritable, until > I give her a snack to hold her off until dinner. After dinner she is fine. > Then when it comes to nighttime she has a ton of headaches. She really seems > like she is in a lot of pain. They get so bad sometimes it will put her in > tears. She will almost always be in bed with them. I do not think it is her > eyes, she wears glasses and just got new ones. I hoped the new glasses would > help, but they have not changed the situation at all. Also she gets leg spasms a > lot. I have seen them and her legs just shake uncontrollably. She says it > causes pain when this happens. Oh yeah and back to school. Her teacher also > has referred her to an OT, because she is having a horrible time with > handwriting. Her teacher and I both agree it is not lack of effort, she just cannot > write neatly. He was concerned even before hearing of her sisters illness. I > just wonder if some of this may be mito related. It seems odd that most of her > problems start after 5 hours of school. On the weekends she is fine. She is > never overly active, but plays. She spends a lot of time playing barbies and > reading, all low energy activities. This is why I wonder if she could have a > problem. I did make an appointment for tomorrow night with her pediatrician. > If anyone has suggestions on some preliminary bloodwork, I would appreciate > it. Thanks Again. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Could it be low blood sugars? My husband is a diabetic and when his blood sugars get low, he has horrible headaches that turn into migraines. Just a thought since you mentioned she is a little better after a snack. Geri-Anne and Wyatt, Complex I > Hello all! As most of you know, my daughter Grace is affected with a > nonspecific mito. Up until lately, I felt so lucky that I had three other " healthy > children. " The oldest of my birth children, (6), has started having > some strange problems. I do not know if it can be linked to mito or not. This > is why I came to you, the experts. First of all she had some behavior > problems in Kindergarten, but we switched her from full day to half day and life was > fine. She is now in first grade, and her behavior is great. We get no bad > reports from her teacher, until today. I got a phone call from her gym teacher. > She tells me refuses to participate, telling her all the time she > does not feel well. Her classroom teacher has told me that she does complain of > headaches a lot, but it is not a problem in his class. Her gym class is late > in the day, 2:30. When she gets home she is usually pretty irritable, until > I give her a snack to hold her off until dinner. After dinner she is fine. > Then when it comes to nighttime she has a ton of headaches. She really seems > like she is in a lot of pain. They get so bad sometimes it will put her in > tears. She will almost always be in bed with them. I do not think it is her > eyes, she wears glasses and just got new ones. I hoped the new glasses would > help, but they have not changed the situation at all. Also she gets leg spasms a > lot. I have seen them and her legs just shake uncontrollably. She says it > causes pain when this happens. Oh yeah and back to school. Her teacher also > has referred her to an OT, because she is having a horrible time with > handwriting. Her teacher and I both agree it is not lack of effort, she just cannot > write neatly. He was concerned even before hearing of her sisters illness. I > just wonder if some of this may be mito related. It seems odd that most of her > problems start after 5 hours of school. On the weekends she is fine. She is > never overly active, but plays. She spends a lot of time playing barbies and > reading, all low energy activities. This is why I wonder if she could have a > problem. I did make an appointment for tomorrow night with her pediatrician. > If anyone has suggestions on some preliminary bloodwork, I would appreciate > it. Thanks Again. > Quote Link to comment Share on other sites More sharing options...
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