Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 This came directly to me, so I am forwarding it to the group. Everyone on this list either has a child/children with a mitochondrial disease or they have it themselves. Feel free to ask anything and I'm sure someone will have some feedback for you. If you have not already done so, you can find valuable information and links at www.umdf.org Can you give us some history on your son? His age, symptoms, where he was diagnosed. It is all overwhelming but you have come to the right place. The people here are very caring and giving. mary b Connor's mom - 10 years old - Leigh's/COX my son > Hello I have never done this before, but my son was just diagnosised > with mitochondrial disease. I looking for someone who knows anything > about this or has a family member with this disease. Just to share > info and support. I just found out today his biopsy confirms he has > it. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.