Re: Kindergarden???

[Guest guest]

My twins will be 7 in March. Cole (nda- allegedly) is in a regular kindergarten - he is repeating kindergarten cause he was almost 8 weeks early and only went a 1/2 and afternoons last year and he really was not ready for school. This year we are living in Northern VA and it is a full day kindergarten. He goes all day - BUT he is now having difficulties with fine motor skills and some speech and also add. These all run in my family with all 3 of my boys,. We are now getting some evaluations for him.

Clay - cole's twin is in a self-contained . He has been in a self-contained class almost consitently since pre-K. Last year in NJ he was in a self-contained k/1 class with 8 kids in the am and in a regular K in the afternoon (but the teacher was a special ed teacher - actually his pre-K teacher - who moved to teach regular k) with a 1 on 2 aide. He had a hard time functioning in a class that large - only 19 kids. This year he started school in sept in NJ in a K/1/2 class with 7 kids. When we moved to Va they wanted to place him in a regular class - with 22 students - 2 teachers and 1 aide - BUT NO 1 on 1. I gave them a week. He did not make it that long. THe third day of school he threw a tantrum screaming class was too big and so on, He cannot funtion in a class that large AND they refused to give him a one on one - although his IEP required self-contained or 1 on 1. After being here less than 2 weeks he was moved to a different school. He is in a self-contained 1st grade (more like K) and is doing well. He has 2 special ed teachers and an aide with 7 students. He gets OT and speech and PT and they work with his limitations and so on. Clay is also very very small he is barely 33 pounds but at the moment no g-tube cause as he eats orally I am hesitant to place it back in. He does get tired and when he does he goes to the nurses offices to rest. He is able to tell the teacher if his muscles hurt and so on. And being in a smaller class there are less germs for him.

My oldest is almost 11 - jake and in 5th grade and he is also very very tiny.He is barely 50 pounds. He is off the charts for height and weight. He is in a regular 5th grade class - but gets help with OT (he still cant write cursive) and they are working on keyboarding with him. He has a scribe for notes and gets extra time for tests and so forth. He is also significantly ADHD and takes concerta and clondine.

Both Jake and Clay have mito - clay more severely than Jake and since they believe it is maternally inherited cole probably is affected just not really showing signs - although he is showing fine motor delays (also he is a left) and add.

I think school has been good for all three of my boys.

Sharon

[Guest guest]

My twins will be 7 in March. Cole (nda- allegedly) is in a regular kindergarten - he is repeating kindergarten cause he was almost 8 weeks early and only went a 1/2 and afternoons last year and he really was not ready for school. This year we are living in Northern VA and it is a full day kindergarten. He goes all day - BUT he is now having difficulties with fine motor skills and some speech and also add. These all run in my family with all 3 of my boys,. We are now getting some evaluations for him.

Clay - cole's twin is in a self-contained . He has been in a self-contained class almost consitently since pre-K. Last year in NJ he was in a self-contained k/1 class with 8 kids in the am and in a regular K in the afternoon (but the teacher was a special ed teacher - actually his pre-K teacher - who moved to teach regular k) with a 1 on 2 aide. He had a hard time functioning in a class that large - only 19 kids. This year he started school in sept in NJ in a K/1/2 class with 7 kids. When we moved to Va they wanted to place him in a regular class - with 22 students - 2 teachers and 1 aide - BUT NO 1 on 1. I gave them a week. He did not make it that long. THe third day of school he threw a tantrum screaming class was too big and so on, He cannot funtion in a class that large AND they refused to give him a one on one - although his IEP required self-contained or 1 on 1. After being here less than 2 weeks he was moved to a different school. He is in a self-contained 1st grade (more like K) and is doing well. He has 2 special ed teachers and an aide with 7 students. He gets OT and speech and PT and they work with his limitations and so on. Clay is also very very small he is barely 33 pounds but at the moment no g-tube cause as he eats orally I am hesitant to place it back in. He does get tired and when he does he goes to the nurses offices to rest. He is able to tell the teacher if his muscles hurt and so on. And being in a smaller class there are less germs for him.

My oldest is almost 11 - jake and in 5th grade and he is also very very tiny.He is barely 50 pounds. He is off the charts for height and weight. He is in a regular 5th grade class - but gets help with OT (he still cant write cursive) and they are working on keyboarding with him. He has a scribe for notes and gets extra time for tests and so forth. He is also significantly ADHD and takes concerta and clondine.

Both Jake and Clay have mito - clay more severely than Jake and since they believe it is maternally inherited cole probably is affected just not really showing signs - although he is showing fine motor delays (also he is a left) and add.

I think school has been good for all three of my boys.

Sharon

[Guest guest]

My twins will be 7 in March. Cole (nda- allegedly) is in a regular kindergarten - he is repeating kindergarten cause he was almost 8 weeks early and only went a 1/2 and afternoons last year and he really was not ready for school. This year we are living in Northern VA and it is a full day kindergarten. He goes all day - BUT he is now having difficulties with fine motor skills and some speech and also add. These all run in my family with all 3 of my boys,. We are now getting some evaluations for him.

Clay - cole's twin is in a self-contained . He has been in a self-contained class almost consitently since pre-K. Last year in NJ he was in a self-contained k/1 class with 8 kids in the am and in a regular K in the afternoon (but the teacher was a special ed teacher - actually his pre-K teacher - who moved to teach regular k) with a 1 on 2 aide. He had a hard time functioning in a class that large - only 19 kids. This year he started school in sept in NJ in a K/1/2 class with 7 kids. When we moved to Va they wanted to place him in a regular class - with 22 students - 2 teachers and 1 aide - BUT NO 1 on 1. I gave them a week. He did not make it that long. THe third day of school he threw a tantrum screaming class was too big and so on, He cannot funtion in a class that large AND they refused to give him a one on one - although his IEP required self-contained or 1 on 1. After being here less than 2 weeks he was moved to a different school. He is in a self-contained 1st grade (more like K) and is doing well. He has 2 special ed teachers and an aide with 7 students. He gets OT and speech and PT and they work with his limitations and so on. Clay is also very very small he is barely 33 pounds but at the moment no g-tube cause as he eats orally I am hesitant to place it back in. He does get tired and when he does he goes to the nurses offices to rest. He is able to tell the teacher if his muscles hurt and so on. And being in a smaller class there are less germs for him.

My oldest is almost 11 - jake and in 5th grade and he is also very very tiny.He is barely 50 pounds. He is off the charts for height and weight. He is in a regular 5th grade class - but gets help with OT (he still cant write cursive) and they are working on keyboarding with him. He has a scribe for notes and gets extra time for tests and so forth. He is also significantly ADHD and takes concerta and clondine.

Both Jake and Clay have mito - clay more severely than Jake and since they believe it is maternally inherited cole probably is affected just not really showing signs - although he is showing fine motor delays (also he is a left) and add.

I think school has been good for all three of my boys.

Sharon

[Guest guest]

I can't help but respond to this one - kindergarten is near and dear

to my heart.

Sam is 6. When he turned 6 he made a wish on his birthday candles

that h would go to kindergarten. I told his doctor and his doctor

wrote it on the front page of his medical summary... " our goal is to

keep sam alive so that he can go to kindergartne. " . From May to Sept

that became our whole focus - getting Sam to kindergarten.

The school system was very supportive from the get go. They already

knew the disease because of my older children. They heard in my

words and the doctors words how important this was to Sam. And they

said that they would do anything to make it work.

We knew Sam could never tolerate a whole day of Kg. Nor could he

tolerate it every day. Not would there ever be consistency since we

all know how unpredictable his diease is. We went through this with

the school so that they understood that we would have to take each

day as it comes.

Knowing that we had him approved for home bound services. No matter

how much or how little he goesto school, the district hired a Kg

teacher to come to our home 3 days a week for an hour to 75 min each

time to work with Sam. (that is the limit that he can handle and

probably all that anyone his age can handle sitting in one spot).

I too was worried about how the kids would handle this.....most of

them have never even been in ahospital, did not know what an IV was

or splints, etc. I did not want them to baby him. Sam looks normal

enough albeit pretty tiny (age 6 1/2 and he is only 35 pounds) but he

has 9 IV pumps running at all times, has a G and a J tube, splints on

his legs, hearing aids....things that make any curious 5 yr old stop

to ask what is going on.

We did not sned him the 1st day of school, knowing how hectic the

first day of school is. WE sent him the 2nd day and the kids had a

lot of questions.

I went home and that weekend made a book for the class about Sam

using my digital camera and his drawings to illustrate it. Then we

came back and read it to the kids. We explained in 5 yr old terms all

the ways that he was just like them...(sam loves to come to school

just like you and he will come whenever he can. Sometimes he can not

stay all day because he gets tired ....sam can walk just like you and

will walk and play with you when he comes to school. SDometimes his

legs get tired and he will have a wheelchair and youc an help push

him if you like, etc etc.)

I left the book in the school and the kids " read " it constantly. I

also made them mini books to take home with a letetr to their

parents.

All I can say is that Kg children are who we should all model

ourseves after. They are incredibly accepting. They adore Sam and

fight to be hispartner or siot next to him. When he gopt his hearing

aids they said " what are those? " - they just are very direct and ask.

I give them simple answers and they go " Okay " and then go back to

playing. They treat him pretty normally but also are very protective

of his IV lines. for example they'll yell at each other " hey, don't

ealk on top of sam's lines. "

I go to school with sam because he needs a registered nurse with him

at all times and I don't have one to go to school with him. he only

goes 3 days a week for about 2 hours each time - sometimes longer and

sometimes shorter. When he leaves the kids hug him. I can not tell

you the difference Kg has made to his life. He is proud of every

aspect about it. He lights up when he goes. The chidlren light up

when they see us come. I encourage you to send your son however it

works - 1/2 days, full days, 1/3 days it does not matter.

My other son is almost 12. WE did the same with him and what i can

tell you is that the fact theyhave all grown up togetehr really

helps. Even in 5th grade the kids still see Zach as just one of

them. They volunteer to catch him up since he is gone so much and

they take turns statying in for recess with him since he can not go

outside. Never once have I heard that they think he is odd. He is

just one of them.

Anne

[Guest guest]

I can't help but respond to this one - kindergarten is near and dear

to my heart.

Sam is 6. When he turned 6 he made a wish on his birthday candles

that h would go to kindergarten. I told his doctor and his doctor

wrote it on the front page of his medical summary... " our goal is to

keep sam alive so that he can go to kindergartne. " . From May to Sept

that became our whole focus - getting Sam to kindergarten.

The school system was very supportive from the get go. They already

knew the disease because of my older children. They heard in my

words and the doctors words how important this was to Sam. And they

said that they would do anything to make it work.

We knew Sam could never tolerate a whole day of Kg. Nor could he

tolerate it every day. Not would there ever be consistency since we

all know how unpredictable his diease is. We went through this with

the school so that they understood that we would have to take each

day as it comes.

Knowing that we had him approved for home bound services. No matter

how much or how little he goesto school, the district hired a Kg

teacher to come to our home 3 days a week for an hour to 75 min each

time to work with Sam. (that is the limit that he can handle and

probably all that anyone his age can handle sitting in one spot).

I too was worried about how the kids would handle this.....most of

them have never even been in ahospital, did not know what an IV was

or splints, etc. I did not want them to baby him. Sam looks normal

enough albeit pretty tiny (age 6 1/2 and he is only 35 pounds) but he

has 9 IV pumps running at all times, has a G and a J tube, splints on

his legs, hearing aids....things that make any curious 5 yr old stop

to ask what is going on.

We did not sned him the 1st day of school, knowing how hectic the

first day of school is. WE sent him the 2nd day and the kids had a

lot of questions.

I went home and that weekend made a book for the class about Sam

using my digital camera and his drawings to illustrate it. Then we

came back and read it to the kids. We explained in 5 yr old terms all

the ways that he was just like them...(sam loves to come to school

just like you and he will come whenever he can. Sometimes he can not

stay all day because he gets tired ....sam can walk just like you and

will walk and play with you when he comes to school. SDometimes his

legs get tired and he will have a wheelchair and youc an help push

him if you like, etc etc.)

I left the book in the school and the kids " read " it constantly. I

also made them mini books to take home with a letetr to their

parents.

All I can say is that Kg children are who we should all model

ourseves after. They are incredibly accepting. They adore Sam and

fight to be hispartner or siot next to him. When he gopt his hearing

aids they said " what are those? " - they just are very direct and ask.

I give them simple answers and they go " Okay " and then go back to

playing. They treat him pretty normally but also are very protective

of his IV lines. for example they'll yell at each other " hey, don't

ealk on top of sam's lines. "

I go to school with sam because he needs a registered nurse with him

at all times and I don't have one to go to school with him. he only

goes 3 days a week for about 2 hours each time - sometimes longer and

sometimes shorter. When he leaves the kids hug him. I can not tell

you the difference Kg has made to his life. He is proud of every

aspect about it. He lights up when he goes. The chidlren light up

when they see us come. I encourage you to send your son however it

works - 1/2 days, full days, 1/3 days it does not matter.

My other son is almost 12. WE did the same with him and what i can

tell you is that the fact theyhave all grown up togetehr really

helps. Even in 5th grade the kids still see Zach as just one of

them. They volunteer to catch him up since he is gone so much and

they take turns statying in for recess with him since he can not go

outside. Never once have I heard that they think he is odd. He is

just one of them.

Anne

[Guest guest]

I can't help but respond to this one - kindergarten is near and dear

to my heart.

Sam is 6. When he turned 6 he made a wish on his birthday candles

that h would go to kindergarten. I told his doctor and his doctor

wrote it on the front page of his medical summary... " our goal is to

keep sam alive so that he can go to kindergartne. " . From May to Sept

that became our whole focus - getting Sam to kindergarten.

The school system was very supportive from the get go. They already

knew the disease because of my older children. They heard in my

words and the doctors words how important this was to Sam. And they

said that they would do anything to make it work.

We knew Sam could never tolerate a whole day of Kg. Nor could he

tolerate it every day. Not would there ever be consistency since we

all know how unpredictable his diease is. We went through this with

the school so that they understood that we would have to take each

day as it comes.

Knowing that we had him approved for home bound services. No matter

how much or how little he goesto school, the district hired a Kg

teacher to come to our home 3 days a week for an hour to 75 min each

time to work with Sam. (that is the limit that he can handle and

probably all that anyone his age can handle sitting in one spot).

I too was worried about how the kids would handle this.....most of

them have never even been in ahospital, did not know what an IV was

or splints, etc. I did not want them to baby him. Sam looks normal

enough albeit pretty tiny (age 6 1/2 and he is only 35 pounds) but he

has 9 IV pumps running at all times, has a G and a J tube, splints on

his legs, hearing aids....things that make any curious 5 yr old stop

to ask what is going on.

We did not sned him the 1st day of school, knowing how hectic the

first day of school is. WE sent him the 2nd day and the kids had a

lot of questions.

I went home and that weekend made a book for the class about Sam

using my digital camera and his drawings to illustrate it. Then we

came back and read it to the kids. We explained in 5 yr old terms all

the ways that he was just like them...(sam loves to come to school

just like you and he will come whenever he can. Sometimes he can not

stay all day because he gets tired ....sam can walk just like you and

will walk and play with you when he comes to school. SDometimes his

legs get tired and he will have a wheelchair and youc an help push

him if you like, etc etc.)

I left the book in the school and the kids " read " it constantly. I

also made them mini books to take home with a letetr to their

parents.

All I can say is that Kg children are who we should all model

ourseves after. They are incredibly accepting. They adore Sam and

fight to be hispartner or siot next to him. When he gopt his hearing

aids they said " what are those? " - they just are very direct and ask.

I give them simple answers and they go " Okay " and then go back to

playing. They treat him pretty normally but also are very protective

of his IV lines. for example they'll yell at each other " hey, don't

ealk on top of sam's lines. "

I go to school with sam because he needs a registered nurse with him

at all times and I don't have one to go to school with him. he only

goes 3 days a week for about 2 hours each time - sometimes longer and

sometimes shorter. When he leaves the kids hug him. I can not tell

you the difference Kg has made to his life. He is proud of every

aspect about it. He lights up when he goes. The chidlren light up

when they see us come. I encourage you to send your son however it

works - 1/2 days, full days, 1/3 days it does not matter.

My other son is almost 12. WE did the same with him and what i can

tell you is that the fact theyhave all grown up togetehr really

helps. Even in 5th grade the kids still see Zach as just one of

them. They volunteer to catch him up since he is gone so much and

they take turns statying in for recess with him since he can not go

outside. Never once have I heard that they think he is odd. He is

just one of them.

Anne

[Guest guest]

Hi Tamara:

We just got done with Leah's IEP for kindergarten. I felt a little overwhelm

when you think it is my husband and I and then Leah's two teachers, her PT,

OT, Speech, special ed phyed teacher, the assistant special ed

superintendent, school nurse, school psyhchologist and two special k

teachers. Whew. But you know what? Our IEP went smoothly. Thank you to

Geri for guiding me in thinking that yes Leah won't do certain things like

math, etc. So we concentrated on a few goals. Like tolerating the noise in

the lunch room at times, feeding self, and more importantly socialization.

Simple things. Some days I feel Leah may be able to tolerate all day; but we

chose 1/2 days. We got to have her go to the school we wanted because of the

size of the room and we really, really liked the special K teacher who had an

answer for each question we poised to her when we visited the classroom. One

other school I visited all they kept saying was that had to be addressed in

the IEP. But Leah will be going to that school when she is in first grade

but that is another issue and time. We listed that Leah needed to have an

air conditioned room and we got a letter from her doctor that indicates why.

He was pretty blunt and basically said if Leah would throw up because of the

heat and said a few other things she could die. He layed it on the line even

more than I wanted to hear. But at least they will take him seriously. Leah

will be in an integrated classroom. The therapists will come to the

classroom and work with her as the class does projects or they are sitting on

the rug doing a dance or movements they will do it with her. They will

accommodate a table for her kidkart so there are kids at her table. We were

very pleased in how things went. My only troubling fact in this whole thing

is they would like to see her be at school at 9:15 am and Leah hasn't been

getting up before 9:15 am for months now. But they feel she would do best in

the morning because all the afternoon are specials which Leah doesn't do well

at, meaning music, art, things like that. But I will see how the year goes

and if she gets on a schedule that will get her to get up early in the

morning. Plus I'm getting two boys off to school and having to feed and

dress Leah all by 8:30 a.m. Any way, you will do fine. Just have all your

ducks in a row and don't worry if he is only going 1/2 days. That way he

will have all the energy to go may be a full day here and there. Any

questions ask me. Leah is 5 1/2 years old and has been going to special ed

preschool for 3 years now. Good luck with what you decide. Start slow and

work your way up. You'll be a mazed at how you educate the kids at this

young age and they in turn will educate their parents and you are educating

the teachers, too.

Nerenhausen

mom to Leah

fairgrovejoe wrote:

> will be starting Kindergarden this next fall. We are getting

> ready to renew his IEP and get registered for school.

> We are being torn between letting him start off in a normal class all

> day long verses Several pull outs with just a half day of school.

> I want him to feel as normal as everyone else, yet I really do not

> feel he can make it a full day.

> It is really up to his dad and I how we want him to start. We are

> very torn. I do not want him to feel different from day one yet if

> he gets too tired he may not enjoy school.

> Any suggestions would be a great help.

> I know many of you have had to deal with this!!!!

> Thank You!!!!

> Tamara( age 4,unspecific Mito)

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Hi Tamara:

We just got done with Leah's IEP for kindergarten. I felt a little overwhelm

when you think it is my husband and I and then Leah's two teachers, her PT,

OT, Speech, special ed phyed teacher, the assistant special ed

superintendent, school nurse, school psyhchologist and two special k

teachers. Whew. But you know what? Our IEP went smoothly. Thank you to

Geri for guiding me in thinking that yes Leah won't do certain things like

math, etc. So we concentrated on a few goals. Like tolerating the noise in

the lunch room at times, feeding self, and more importantly socialization.

Simple things. Some days I feel Leah may be able to tolerate all day; but we

chose 1/2 days. We got to have her go to the school we wanted because of the

size of the room and we really, really liked the special K teacher who had an

answer for each question we poised to her when we visited the classroom. One

other school I visited all they kept saying was that had to be addressed in

the IEP. But Leah will be going to that school when she is in first grade

but that is another issue and time. We listed that Leah needed to have an

air conditioned room and we got a letter from her doctor that indicates why.

He was pretty blunt and basically said if Leah would throw up because of the

heat and said a few other things she could die. He layed it on the line even

more than I wanted to hear. But at least they will take him seriously. Leah

will be in an integrated classroom. The therapists will come to the

classroom and work with her as the class does projects or they are sitting on

the rug doing a dance or movements they will do it with her. They will

accommodate a table for her kidkart so there are kids at her table. We were

very pleased in how things went. My only troubling fact in this whole thing

is they would like to see her be at school at 9:15 am and Leah hasn't been

getting up before 9:15 am for months now. But they feel she would do best in

the morning because all the afternoon are specials which Leah doesn't do well

at, meaning music, art, things like that. But I will see how the year goes

and if she gets on a schedule that will get her to get up early in the

morning. Plus I'm getting two boys off to school and having to feed and

dress Leah all by 8:30 a.m. Any way, you will do fine. Just have all your

ducks in a row and don't worry if he is only going 1/2 days. That way he

will have all the energy to go may be a full day here and there. Any

questions ask me. Leah is 5 1/2 years old and has been going to special ed

preschool for 3 years now. Good luck with what you decide. Start slow and

work your way up. You'll be a mazed at how you educate the kids at this

young age and they in turn will educate their parents and you are educating

the teachers, too.

Nerenhausen

mom to Leah

fairgrovejoe wrote:

> will be starting Kindergarden this next fall. We are getting

> ready to renew his IEP and get registered for school.

> We are being torn between letting him start off in a normal class all

> day long verses Several pull outs with just a half day of school.

> I want him to feel as normal as everyone else, yet I really do not

> feel he can make it a full day.

> It is really up to his dad and I how we want him to start. We are

> very torn. I do not want him to feel different from day one yet if

> he gets too tired he may not enjoy school.

> Any suggestions would be a great help.

> I know many of you have had to deal with this!!!!

> Thank You!!!!

> Tamara( age 4,unspecific Mito)

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Hi Tamara:

We just got done with Leah's IEP for kindergarten. I felt a little overwhelm

when you think it is my husband and I and then Leah's two teachers, her PT,

OT, Speech, special ed phyed teacher, the assistant special ed

superintendent, school nurse, school psyhchologist and two special k

teachers. Whew. But you know what? Our IEP went smoothly. Thank you to

Geri for guiding me in thinking that yes Leah won't do certain things like

math, etc. So we concentrated on a few goals. Like tolerating the noise in

the lunch room at times, feeding self, and more importantly socialization.

Simple things. Some days I feel Leah may be able to tolerate all day; but we

chose 1/2 days. We got to have her go to the school we wanted because of the

size of the room and we really, really liked the special K teacher who had an

answer for each question we poised to her when we visited the classroom. One

other school I visited all they kept saying was that had to be addressed in

the IEP. But Leah will be going to that school when she is in first grade

but that is another issue and time. We listed that Leah needed to have an

air conditioned room and we got a letter from her doctor that indicates why.

He was pretty blunt and basically said if Leah would throw up because of the

heat and said a few other things she could die. He layed it on the line even

more than I wanted to hear. But at least they will take him seriously. Leah

will be in an integrated classroom. The therapists will come to the

classroom and work with her as the class does projects or they are sitting on

the rug doing a dance or movements they will do it with her. They will

accommodate a table for her kidkart so there are kids at her table. We were

very pleased in how things went. My only troubling fact in this whole thing

is they would like to see her be at school at 9:15 am and Leah hasn't been

getting up before 9:15 am for months now. But they feel she would do best in

the morning because all the afternoon are specials which Leah doesn't do well

at, meaning music, art, things like that. But I will see how the year goes

and if she gets on a schedule that will get her to get up early in the

morning. Plus I'm getting two boys off to school and having to feed and

dress Leah all by 8:30 a.m. Any way, you will do fine. Just have all your

ducks in a row and don't worry if he is only going 1/2 days. That way he

will have all the energy to go may be a full day here and there. Any

questions ask me. Leah is 5 1/2 years old and has been going to special ed

preschool for 3 years now. Good luck with what you decide. Start slow and

work your way up. You'll be a mazed at how you educate the kids at this

young age and they in turn will educate their parents and you are educating

the teachers, too.

Nerenhausen

mom to Leah

fairgrovejoe wrote:

> will be starting Kindergarden this next fall. We are getting

> ready to renew his IEP and get registered for school.

> We are being torn between letting him start off in a normal class all

> day long verses Several pull outs with just a half day of school.

> I want him to feel as normal as everyone else, yet I really do not

> feel he can make it a full day.

> It is really up to his dad and I how we want him to start. We are

> very torn. I do not want him to feel different from day one yet if

> he gets too tired he may not enjoy school.

> Any suggestions would be a great help.

> I know many of you have had to deal with this!!!!

> Thank You!!!!

> Tamara( age 4,unspecific Mito)

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Tamara,

That is a difficult puzzle, as every kid with mito is so DIFFERENT! & nbsp; I just went thru that this yr with Lexi. & nbsp; I finally decided to let her start out all day, even though i knew she would be really tired at the end of the day...and she was! & nbsp; But she was not so tired that she was continually in crisis. & nbsp; There were many days at the beginning of the yr when my mom or I would go pick her up...just too tired. & nbsp; But she actually built up some tolerance/stamina whatever you want to call it. & nbsp; She still goes full days, but I don't push her to g o. & nbsp; Kinder isn't required in our state, so we are working with the school to have her there as much as possible without being penalized for being gone. & nbsp; It's a tough decision...

ruth

mom to my TREASURES...Mitch (nearly 9) and Lexi (nearly 6)

[Guest guest]

I'm glad I was able to help you with your IEP meeting. It sounds

like it went really well. Good luck with KG and worry about first

grade when it comes.

Geri-Anne

>

> > will be starting Kindergarden this next fall. We are

getting

> > ready to renew his IEP and get registered for school.

> > We are being torn between letting him start off in a normal

class all

> > day long verses Several pull outs with just a half day of school.

> > I want him to feel as normal as everyone else, yet I really do

not

> > feel he can make it a full day.

> > It is really up to his dad and I how we want him to start. We

are

> > very torn. I do not want him to feel different from day one yet

if

> > he gets too tired he may not enjoy school.

> > Any suggestions would be a great help.

> > I know many of you have had to deal with this!!!!

> > Thank You!!!!

> > Tamara( age 4,unspecific Mito)

> >

> > Please contact mito-owner with any problems or

questions.

> >

[Guest guest]

I'm glad I was able to help you with your IEP meeting. It sounds

like it went really well. Good luck with KG and worry about first

grade when it comes.

Geri-Anne

>

> > will be starting Kindergarden this next fall. We are

getting

> > ready to renew his IEP and get registered for school.

> > We are being torn between letting him start off in a normal

class all

> > day long verses Several pull outs with just a half day of school.

> > I want him to feel as normal as everyone else, yet I really do

not

> > feel he can make it a full day.

> > It is really up to his dad and I how we want him to start. We

are

> > very torn. I do not want him to feel different from day one yet

if

> > he gets too tired he may not enjoy school.

> > Any suggestions would be a great help.

> > I know many of you have had to deal with this!!!!

> > Thank You!!!!

> > Tamara( age 4,unspecific Mito)

> >

> > Please contact mito-owner with any problems or

questions.

> >

[Guest guest]

I'm glad I was able to help you with your IEP meeting. It sounds

like it went really well. Good luck with KG and worry about first

grade when it comes.

Geri-Anne

>

> > will be starting Kindergarden this next fall. We are

getting

> > ready to renew his IEP and get registered for school.

> > We are being torn between letting him start off in a normal

class all

> > day long verses Several pull outs with just a half day of school.

> > I want him to feel as normal as everyone else, yet I really do

not

> > feel he can make it a full day.

> > It is really up to his dad and I how we want him to start. We

are

> > very torn. I do not want him to feel different from day one yet

if

> > he gets too tired he may not enjoy school.

> > Any suggestions would be a great help.

> > I know many of you have had to deal with this!!!!

> > Thank You!!!!

> > Tamara( age 4,unspecific Mito)

> >

> > Please contact mito-owner with any problems or

questions.

> >

[Guest guest]

If your school offers a normal Half Day kindergarten, I would recommend this. I have had experience with both. My oldest daughter, (no mito) started with full day kindergarten and had an awful time. Granted she had been in daycare all of her life, I thought it would be no big deal...........WRONG. She hated school and it was just too much for her. I eventually switched her to half day, and the world was peaceful again. She is now in first grade and doing fine. Her sister, also healthy, is now in half day kindergarten and doing wonderful. I think even with normal children full day is just too much of a change. Some kids really need to ease up to the grade school life. Best of luck in your decision, parents almost always know best.

[Guest guest]

I went home and that weekend made a book for the class about Sam using my digital camera and his drawings to illustrate it. Then we came back and read it to the kids. We explained in 5 yr old terms all the ways that he was just like them...(sam loves to come to school just like you and he will come whenever he can. Sometimes he can not stay all day because he gets tired ....sam can walk just like you and will walk and play with you when he comes to school. SDometimes his legs get tired and he will have a wheelchair and youc an help push him if you like, etc etc.)

Anne, I would love to see this if there is any way to post it. It sounds neat! What a great idea! Glad to hear Sam is enjoying school!

e, Chelsea's mom(nonspecific mito

[Guest guest]

I went home and that weekend made a book for the class about Sam using my digital camera and his drawings to illustrate it. Then we came back and read it to the kids. We explained in 5 yr old terms all the ways that he was just like them...(sam loves to come to school just like you and he will come whenever he can. Sometimes he can not stay all day because he gets tired ....sam can walk just like you and will walk and play with you when he comes to school. SDometimes his legs get tired and he will have a wheelchair and youc an help push him if you like, etc etc.)

Anne, I would love to see this if there is any way to post it. It sounds neat! What a great idea! Glad to hear Sam is enjoying school!

e, Chelsea's mom(nonspecific mito

[Guest guest]

I went home and that weekend made a book for the class about Sam using my digital camera and his drawings to illustrate it. Then we came back and read it to the kids. We explained in 5 yr old terms all the ways that he was just like them...(sam loves to come to school just like you and he will come whenever he can. Sometimes he can not stay all day because he gets tired ....sam can walk just like you and will walk and play with you when he comes to school. SDometimes his legs get tired and he will have a wheelchair and youc an help push him if you like, etc etc.)

Anne, I would love to see this if there is any way to post it. It sounds neat! What a great idea! Glad to hear Sam is enjoying school!

e, Chelsea's mom(nonspecific mito