Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Hi Bridget, I know just how you feel! My daughter got her bike about two weeks ago and it was fully covered from our military insurance! She now can ride all over and is so excited over her new bike! It was exciting to see her be able to ride around the neighborhood for the first time instead of just watching! Of course, I have to go along side of her because she does not have any concept of steering but I am sure that will come. ;-) Holli is nine and was able to get an adult size bike (with it adjusted to the smallest position). This is great because she won't outgrow it! We are having a world of fun with it. She cries when it rains and she can not go outside with her bike. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Hi Bridget, I know just how you feel! My daughter got her bike about two weeks ago and it was fully covered from our military insurance! She now can ride all over and is so excited over her new bike! It was exciting to see her be able to ride around the neighborhood for the first time instead of just watching! Of course, I have to go along side of her because she does not have any concept of steering but I am sure that will come. ;-) Holli is nine and was able to get an adult size bike (with it adjusted to the smallest position). This is great because she won't outgrow it! We are having a world of fun with it. She cries when it rains and she can not go outside with her bike. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Hi Bridget, I know just how you feel! My daughter got her bike about two weeks ago and it was fully covered from our military insurance! She now can ride all over and is so excited over her new bike! It was exciting to see her be able to ride around the neighborhood for the first time instead of just watching! Of course, I have to go along side of her because she does not have any concept of steering but I am sure that will come. ;-) Holli is nine and was able to get an adult size bike (with it adjusted to the smallest position). This is great because she won't outgrow it! We are having a world of fun with it. She cries when it rains and she can not go outside with her bike. Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Wyatt got an adaptive bike last year. I called everyone I knew and was in tears as I told them about how excited he was to ride it. It was such an incredible feeling to see him like any other kid. It was worth every penny we have spent on it. Geri-Anne and Wyatt, complex I > I just wanted to send you a quick email to tell you about a company that I recently learned about. It is called Freedom Concepts and their web site is www.freedomconcepts.com. They have adaptive bicycles for kids with disabilities. > > Just today we had one of their field reps (Lou ) come to our house with both their DCP 12 and DCP 16 bike models from the Discovery bike Series line. (Owen will actually needs the bigger of the two which I didn't realize) Owen who has never been able to ride a bike (can only turn a tricycle a few cycles) went up and down my street 3 times!! And we have a long, long road! This is the most excited I have been in a quite some time. > > The bikes are quite costly (3,000-4,000 once you add up options) if you can believe that, however, sometimes insurance will pay. In our case, we were able to apply to a special needs trust in our area, and I believe they are going to pay for Owen's bike. The company would help work out payment options with you. > > Today was a magical day seeing him laughing, waving to neighbors and just being a kid in on the action instead of watching from the sidelines. I felt like crying watching him. > > Sincerely, > > Bridget Willis > Mom to Owen, 5yrs, Mitochondrial Disease, Complex 1 with COQ10 deficiency, PDD-NOS, Hypotonia in mid-line, hypertonia at ankles (a host of other medical issues too) and a smile to light up the room! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Wyatt got an adaptive bike last year. I called everyone I knew and was in tears as I told them about how excited he was to ride it. It was such an incredible feeling to see him like any other kid. It was worth every penny we have spent on it. Geri-Anne and Wyatt, complex I > I just wanted to send you a quick email to tell you about a company that I recently learned about. It is called Freedom Concepts and their web site is www.freedomconcepts.com. They have adaptive bicycles for kids with disabilities. > > Just today we had one of their field reps (Lou ) come to our house with both their DCP 12 and DCP 16 bike models from the Discovery bike Series line. (Owen will actually needs the bigger of the two which I didn't realize) Owen who has never been able to ride a bike (can only turn a tricycle a few cycles) went up and down my street 3 times!! And we have a long, long road! This is the most excited I have been in a quite some time. > > The bikes are quite costly (3,000-4,000 once you add up options) if you can believe that, however, sometimes insurance will pay. In our case, we were able to apply to a special needs trust in our area, and I believe they are going to pay for Owen's bike. The company would help work out payment options with you. > > Today was a magical day seeing him laughing, waving to neighbors and just being a kid in on the action instead of watching from the sidelines. I felt like crying watching him. > > Sincerely, > > Bridget Willis > Mom to Owen, 5yrs, Mitochondrial Disease, Complex 1 with COQ10 deficiency, PDD-NOS, Hypotonia in mid-line, hypertonia at ankles (a host of other medical issues too) and a smile to light up the room! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Wyatt got an adaptive bike last year. I called everyone I knew and was in tears as I told them about how excited he was to ride it. It was such an incredible feeling to see him like any other kid. It was worth every penny we have spent on it. Geri-Anne and Wyatt, complex I > I just wanted to send you a quick email to tell you about a company that I recently learned about. It is called Freedom Concepts and their web site is www.freedomconcepts.com. They have adaptive bicycles for kids with disabilities. > > Just today we had one of their field reps (Lou ) come to our house with both their DCP 12 and DCP 16 bike models from the Discovery bike Series line. (Owen will actually needs the bigger of the two which I didn't realize) Owen who has never been able to ride a bike (can only turn a tricycle a few cycles) went up and down my street 3 times!! And we have a long, long road! This is the most excited I have been in a quite some time. > > The bikes are quite costly (3,000-4,000 once you add up options) if you can believe that, however, sometimes insurance will pay. In our case, we were able to apply to a special needs trust in our area, and I believe they are going to pay for Owen's bike. The company would help work out payment options with you. > > Today was a magical day seeing him laughing, waving to neighbors and just being a kid in on the action instead of watching from the sidelines. I felt like crying watching him. > > Sincerely, > > Bridget Willis > Mom to Owen, 5yrs, Mitochondrial Disease, Complex 1 with COQ10 deficiency, PDD-NOS, Hypotonia in mid-line, hypertonia at ankles (a host of other medical issues too) and a smile to light up the room! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 My daughter is also getting this same bike from The Make A Wish foundation. I am very excited about the ability for her to have " fun " outside. It comes in purple and blue. She is going to be totally thrilled with the color. Thanks for posting the info. about the bike. Our kids need to have the same enjoyment outdoors as others in the neighborhood. Thanks, Kim Mom to Nichole, 9 yrs. old; NARP mito disease, , 5 yrs. old/healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2004 Report Share Posted April 10, 2004 Oh how neat. I know people get excited just when your own "average" child learns to ride a bike; but I know what you mean about crying when it happened. The joy of seeing your child do something that you may feel won't be possible. But it is a shame that a bike has to cost so much just because it is for special needs. I hope Owen enjoys his riding days to come and that you can go for rides in your neighborhood and explore the world together. Enjoy and what a neat company to do this. Just wish it was a little cheaper for those whose insurance won't pay for something like this. When you think about it, you need to chuckle because it costs almost as much as a cheap used car with lots of miles on it. Nerenhausen mom to Leah Todd & Bridget Willis wrote: I just wanted to send you a quick email to tell you about a company that I recently learned about. It is called Freedom Concepts and their web site is www.freedomconcepts.com. They have adaptive bicycles for kids with disabilities. Just today we had one of their field reps (Lou ) come to our house with both their DCP 12 and DCP 16 bike models from the Discovery bike Series line. (Owen will actually needs the bigger of the two which I didn't realize) Owen who has never been able to ride a bike (can only turn a tricycle a few cycles) went up and down my street 3 times!! And we have a long, long road! This is the most excited I have been in a quite some time. The bikes are quite costly (3,000-4,000 once you add up options) if you can believe that, however, sometimes insurance will pay. In our case, we were able to apply to a special needs trust in our area, and I believe they are going to pay for Owen's bike. The company would help work out payment options with you. Today was a magical day seeing him laughing, waving to neighbors and just being a kid in on the action instead of watching from the sidelines. I felt like crying watching him. Sincerely, Bridget Willis Mom to Owen, 5yrs, Mitochondrial Disease, Complex 1 with COQ10 deficiency, PDD-NOS, Hypotonia in mid-line, hypertonia at ankles (a host of other medical issues too) and a smile to light up the room! Please contact mito-owner with any problems or questions. This message scanned for viruses by Corecomm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2004 Report Share Posted April 11, 2004 Hello Everyone, I checked out this website and the products they have to offer look awsome. always says she would want to ride bikes and we have gotten her a three wheeler with a higher backed seat and she was really afraid. That was a couple of years back before she started on carnitor and her balance and endurance got better. We have not tried it again since, whenever we ask her to try she will initially say yes and be excited but then get scared when its time to get on. Have the kids who have been sucessful on this discovery bike been afraid of other bikes? We would love to see her do this and I'm sure she would love to ride with her big brother and sister. Thanks and Happy Easter. Randee Bates mom to age 6.5yrs.--hypotonia, mild MR, muscle carnitine deficiency, (clinical BRR syndrome) > I just wanted to send you a quick email to tell you about a company that I recently learned about. It is called Freedom Concepts and their web site is www.freedomconcepts.com. They have adaptive bicycles for kids with disabilities. > > Just today we had one of their field reps (Lou ) come to our house with both their DCP 12 and DCP 16 bike models from the Discovery bike Series line. (Owen will actually needs the bigger of the two which I didn't realize) Owen who has never been able to ride a bike (can only turn a tricycle a few cycles) went up and down my street 3 times!! And we have a long, long road! This is the most excited I have been in a quite some time. > > The bikes are quite costly (3,000-4,000 once you add up options) if you can believe that, however, sometimes insurance will pay. In our case, we were able to apply to a special needs trust in our area, and I believe they are going to pay for Owen's bike. The company would help work out payment options with you. > > Today was a magical day seeing him laughing, waving to neighbors and just being a kid in on the action instead of watching from the sidelines. I felt like crying watching him. > > Sincerely, > > Bridget Willis > Mom to Owen, 5yrs, Mitochondrial Disease, Complex 1 with COQ10 deficiency, PDD-NOS, Hypotonia in mid-line, hypertonia at ankles (a host of other medical issues too) and a smile to light up the room! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2004 Report Share Posted April 11, 2004 Bridgette, What a wonderful picture I have of Owen riding the bike up and down the street and waving to everyone. I will pray that you will get the grant money for this wonderful bike. I looked up the website and the bikes are wonderful. I look forward to seeing a real picture of Owen with his new wheels soon! Kathy, grandma to Audrey, 32mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2004 Report Share Posted April 11, 2004 Bridgette, What a wonderful picture I have of Owen riding the bike up and down the street and waving to everyone. I will pray that you will get the grant money for this wonderful bike. I looked up the website and the bikes are wonderful. I look forward to seeing a real picture of Owen with his new wheels soon! Kathy, grandma to Audrey, 32mos Quote Link to comment Share on other sites More sharing options...
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