Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi, My name is Cindy and I have an almost 13 year old, Seth. I wonder about some of the same things. He would really prefer to be alone or watching tv about animals (his thing). We have accepted that he cannot do a lot of activities, but there are some that we still press through and do. For him, we go places to look at birds or see animals, even driving in the car to count the hawks. I don't really know the answer for you and your daughter, just wanted to tell you that we face the same issues, too. He doesn't really have friends, his friends are animals and family. It is heartbreaking. On one level, we need to try to accept it if they are happy, on the other, continue to try to find and support the things they love. Thinking of you, Cindy You wrote: She does seem to be content, should I just accept that and quit worrying that I should be doing more to fulfill her life. She is such a joy and blessing to all that she meets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi, My name is Cindy and I have an almost 13 year old, Seth. I wonder about some of the same things. He would really prefer to be alone or watching tv about animals (his thing). We have accepted that he cannot do a lot of activities, but there are some that we still press through and do. For him, we go places to look at birds or see animals, even driving in the car to count the hawks. I don't really know the answer for you and your daughter, just wanted to tell you that we face the same issues, too. He doesn't really have friends, his friends are animals and family. It is heartbreaking. On one level, we need to try to accept it if they are happy, on the other, continue to try to find and support the things they love. Thinking of you, Cindy You wrote: She does seem to be content, should I just accept that and quit worrying that I should be doing more to fulfill her life. She is such a joy and blessing to all that she meets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi, My name is Cindy and I have an almost 13 year old, Seth. I wonder about some of the same things. He would really prefer to be alone or watching tv about animals (his thing). We have accepted that he cannot do a lot of activities, but there are some that we still press through and do. For him, we go places to look at birds or see animals, even driving in the car to count the hawks. I don't really know the answer for you and your daughter, just wanted to tell you that we face the same issues, too. He doesn't really have friends, his friends are animals and family. It is heartbreaking. On one level, we need to try to accept it if they are happy, on the other, continue to try to find and support the things they love. Thinking of you, Cindy You wrote: She does seem to be content, should I just accept that and quit worrying that I should be doing more to fulfill her life. She is such a joy and blessing to all that she meets. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 We have been dealing with this isolation thing for three years now and it is so hard to watch knowing they cant do like other kids, even harder watching their friends slowly disappear. Its just not fare. When is up to getting our I drop everything for that ride in the car or to the pond to watch the turtles or to the boat landing to hopefully see a tug boat or a train crossing the river. These seem like petty little things but to it is huge. We tried going on some field trips with some home school groups but for one she just could not keep up and the kids were not including her so it made her sad. I struggle to try to keep finding fun simple things that I think she can do so on a good day we are ready. We also bought a miniature doxin puppy for Christmas. We thought that this small inside dog would be great company for on any day but especailly on bad days. Molly has been a huge blessing to and all of us. Never did I think I would have an indoor dog but she has been wonderful for and us too! Know you are not alone. Blessings! Horsley Re: isolation????? Hi, My name is Cindy and I have an almost 13 year old, Seth. I wonder about some of the same things. He would really prefer to be alone or watching tv about animals (his thing). We have accepted that he cannot do a lot of activities, but there are some that we still press through and do. For him, we go places to look at birds or see animals, even driving in the car to count the hawks. I don't really know the answer for you and your daughter, just wanted to tell you that we face the same issues, too. He doesn't really have friends, his friends are animals and family. It is heartbreaking. On one level, we need to try to accept it if they are happy, on the other, continue to try to find and support the things they love. Thinking of you, CindyYou wrote:She does seem to be content, should I just accept that and quit worrying that I should be doing more to fulfill her life. She is such a joy and blessing to all that she meets.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Hi I know what your feeling. My son is 14, and he loves people and getting out so much. It is so difficult, because he gets tired easy, can't walk as fast as anyone. He has MR and is hyperactive, so it is difficult for me to keep up with him. Aside from school, he gets his socialization from going to the DR. He loves being out and socializing, and we have tried a few different things, but nothing has really worked. I hate getting him out around the public because he usually picks up a respiratory bug which halts our life for a couple of weeks. We just went thru a horrible virus 2 weeks ago. I know some people take their children horseback riding. I think you should just go with what feels right and maybe everything will work out. Maybe God will send her a special friend. I will pray for you. I am sorry it seems I ended up talking about my life instead of helping you with your dilemma, please forgive me. God Bless I don't know what I did but I had all kinds of things moving around on this e-mail. So if it looks odd it was me who did it. My family cringes when I get on the computer lol. >F rom: "bjs412004" >Reply-To: Mito >To: Mito >Subject: isolation????? >Date: Fri, 27 Feb 2004 01:24:42 -0000 > >I have a daughter 21,mito complex 2 & 3,speech affected, petit mal >seizures, heat, cold, & exercise intolerant, fine motor is almost >impossible, has been falling down more, legs scissoring more, >becoming harder for her to do things. My question is about isolation, >i have tried everything I can think of to get her involved in >different activities with people her own age-but there is so much she >can't do! Her hands shake so its hard for her to do fine motor tasks. >Her speech in very hard to understand so a stranger would be lost. >The least little bump and she falls. Where is she suppose to fit in >this world?????? She loves rabbits and has 6, she feeds and waters >them daily(although when weather is nasty I take care of them). She >loves the Atlanta Braves and the Lakers. She doesn't have a close >friend(I mean someone other than mom or grandma). She would so love >to have a friend her own age. >Last fall she took a college course at local school,this proved to be >to much for her physically. Family tells me that she is happy and I >know she is, but , many days I wonder is there more out there for >her?? Then we try a new activity and I see it is so hard for her. She >does seem to be content, should I just accept that and quit worrying >that I should be doing more to fulfill her life. She is such a joy >and blessing to all that she meets. > > > >Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 Hi I know what your feeling. My son is 14, and he loves people and getting out so much. It is so difficult, because he gets tired easy, can't walk as fast as anyone. He has MR and is hyperactive, so it is difficult for me to keep up with him. Aside from school, he gets his socialization from going to the DR. He loves being out and socializing, and we have tried a few different things, but nothing has really worked. I hate getting him out around the public because he usually picks up a respiratory bug which halts our life for a couple of weeks. We just went thru a horrible virus 2 weeks ago. I know some people take their children horseback riding. I think you should just go with what feels right and maybe everything will work out. Maybe God will send her a special friend. I will pray for you. I am sorry it seems I ended up talking about my life instead of helping you with your dilemma, please forgive me. God Bless I don't know what I did but I had all kinds of things moving around on this e-mail. So if it looks odd it was me who did it. My family cringes when I get on the computer lol. >F rom: "bjs412004" >Reply-To: Mito >To: Mito >Subject: isolation????? >Date: Fri, 27 Feb 2004 01:24:42 -0000 > >I have a daughter 21,mito complex 2 & 3,speech affected, petit mal >seizures, heat, cold, & exercise intolerant, fine motor is almost >impossible, has been falling down more, legs scissoring more, >becoming harder for her to do things. My question is about isolation, >i have tried everything I can think of to get her involved in >different activities with people her own age-but there is so much she >can't do! Her hands shake so its hard for her to do fine motor tasks. >Her speech in very hard to understand so a stranger would be lost. >The least little bump and she falls. Where is she suppose to fit in >this world?????? She loves rabbits and has 6, she feeds and waters >them daily(although when weather is nasty I take care of them). She >loves the Atlanta Braves and the Lakers. She doesn't have a close >friend(I mean someone other than mom or grandma). She would so love >to have a friend her own age. >Last fall she took a college course at local school,this proved to be >to much for her physically. Family tells me that she is happy and I >know she is, but , many days I wonder is there more out there for >her?? Then we try a new activity and I see it is so hard for her. She >does seem to be content, should I just accept that and quit worrying >that I should be doing more to fulfill her life. She is such a joy >and blessing to all that she meets. > > > >Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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