Re: Irene

[Guest guest]

Irene,

The treat SLE much the same as Sarcoid too, they thought once that I

had SLE, I had a rash that was typical of it, although I thought the

rash was from the Sarcoid, but I put on Plaquanil for the rash either

way, turns out I don't have SLE but still on the Plaquanil, in fact I

have a friend with SLE and she is being treated with Plaquanil, and my

dosage for Sarc is higher. So at least they can maybe treat both at

the same time.

and yes it is overwhelming to think, now I have two autoimmune

disease's, know you are in my prayers.

blessings,

Marla

In a message dated 3/24/06 12:15:51 PM

Pacific Standard Time, ilambert@... writes:

Ducky-

so it is possible I have BOTH!! That could explain the Neuro

saying NS and the Rheumy saying SLE. My future is looking bleaker all

the time,I think I'll go bury my head back in the sand now.....

Irene,

I so totally understand. It does feel so much safer when we either

have no knowledge, or we have a definate diagnosis.

although it's possible to have multiple auto-immune diseases--more than

likely it's the sarc that's causing secondary problems to the primary

sarcoid problem. Once we get the sarc under control, the other stuff

will follow.

What kind of treatment are you on? Have you taken a look at the LINKS

and ARCHIVES-- there is alot of info that is good to take to the MD's

with you. Since we are a Medical rarity (NS is a part of the list of

diseases on the National Organization of Rare Disease--NORD) and so we

have to educate those around us.

Let us know how we can help,

Tracie

NS Co-owner/moderator

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

Attachment: vcard [not shown]

[Guest guest]

It was pretty bad here. Fortunately, we didn't take on much water in the basement. The winds whipped--I think they were 60mph. It poured. So many here have lost so much. The major roads are closed. The major highways were ALL closed; mass transit in the city came to a halt. It will take a very long time for the waters to stop rising. The Croton River and Hudson River, both relatively close to us were bursting. The Long Island Sound and LI itself got really hammered. We are awaiting news on my brother, Bob's boat which is anchored, pretty safely in the LI Sound.Wishing the waters would ebb and retreat...love,KateTo: MSersLife Sent: Sunday, August 28, 2011 7:51 PMSubject: Irene

Well, the coverage

has ended, and I am back to bloomberg TV. They say there were 18

deaths...that is a lot, the whole thing is quite tragic and

sorrowful. I am just glad it wasn't worse, and my prayers go out

to those who lost so much during this storm. I know we could

have just as easily been victims, and are very lucky Irene

decided to bypass Florida. I don't know if Rob is ok, since I

have not heard from him since they left, except for a short

email telling me he was in Herkimer, and that was a few days

after they left, nothing since. So I don't know if he is/was

there or in Boston, or if he is ok. I hope he is safe.

Hugs

Akiba

[Guest guest]

It was pretty bad here. Fortunately, we didn't take on much water in the basement. The winds whipped--I think they were 60mph. It poured. So many here have lost so much. The major roads are closed. The major highways were ALL closed; mass transit in the city came to a halt. It will take a very long time for the waters to stop rising. The Croton River and Hudson River, both relatively close to us were bursting. The Long Island Sound and LI itself got really hammered. We are awaiting news on my brother, Bob's boat which is anchored, pretty safely in the LI Sound.Wishing the waters would ebb and retreat...love,KateTo: MSersLife Sent: Sunday, August 28, 2011 7:51 PMSubject: Irene

Well, the coverage

has ended, and I am back to bloomberg TV. They say there were 18

deaths...that is a lot, the whole thing is quite tragic and

sorrowful. I am just glad it wasn't worse, and my prayers go out

to those who lost so much during this storm. I know we could

have just as easily been victims, and are very lucky Irene

decided to bypass Florida. I don't know if Rob is ok, since I

have not heard from him since they left, except for a short

email telling me he was in Herkimer, and that was a few days

after they left, nothing since. So I don't know if he is/was

there or in Boston, or if he is ok. I hope he is safe.

Hugs

Akiba

[Guest guest]

KateI heard this morning the death count was up to 30 something. Tragic! I'm so glad you and your family are safe and okay.love SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: "MSersLife " <MSersLife >Sent: Monday, August 29, 2011 10:08 AMSubject: Re: Irene

Thank you dear Sharon. Although it was a tropical storm, there is still much devastation.I am thunderstruck by the amount of water. People are losing their homes, businesses, and one school is completely under water. It is a tragedy. I am glued to the TV watching all the horrible events. love to you and your family,KateTo: "MSersLife " <MSersLife >Sent: Monday, August 29, 2011 1:04 PMSubject: Re: Irene

Thank God you came through it safely, Kate. Please let us know when you hear news of Bob's boat. I was listening to the national news on the radio this morning about all the trees down and the flooding. I'm so glad it didn't hit as at Cat 1 hurricane but instead as a tropical storm. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: "MSersLife " <MSersLife >Sent: Monday, August 29, 2011 3:40 AMSubject: Re: Irene

It was pretty bad here. Fortunately, we didn't take on much water in the basement. The winds whipped--I think they were 60mph. It poured. So many here have lost so much. The major roads are closed. The major highways were ALL closed; mass transit in the city came to a halt. It will take a very long time for the waters to stop rising. The Croton River and Hudson River, both relatively close to us were bursting. The Long Island Sound and LI itself got really hammered. We are awaiting news on my brother, Bob's boat which is anchored, pretty safely in the LI Sound.Wishing the waters would ebb and retreat...love,KateTo: MSersLife Sent: Sunday, August 28, 2011 7:51 PMSubject: Irene

Well, the coverage

has ended, and I am back to bloomberg TV. They say there were 18

deaths...that is a lot, the whole thing is quite tragic and

sorrowful. I am just glad it wasn't worse, and my prayers go out

to those who lost so much during this storm. I know we could

have just as easily been victims, and are very lucky Irene

decided to bypass Florida. I don't know if Rob is ok, since I

have not heard from him since they left, except for a short

email telling me he was in Herkimer, and that was a few days

after they left, nothing since. So I don't know if he is/was

there or in Boston, or if he is ok. I hope he is safe.

Hugs

Akiba

[Guest guest]

We are good Sharon. Only prob is I lost my balance yesterday and fell full force on my foot. I wound up going to the ER last evening. They took an x ray which showed a fracture. Right now I m in a soft cast. In about a half hour I m going to my ortho which hospital recommended I do. Keep me in your thoughts please. Unsure if they ll want to do a hard cast or not. Will update when I get back.Love to all,KateSent from my iPad

KateI heard this morning the death count was up to 30 something. Tragic! I'm so glad you and your family are safe and okay.love SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: "MSersLife " <MSersLife >Sent: Monday, August 29, 2011 10:08 AMSubject: Re: Irene

Thank you dear Sharon. Although it was a tropical storm, there is still much devastation.I am thunderstruck by the amount of water. People are losing their homes, businesses, and one school is completely under water. It is a tragedy. I am glued to the TV watching all the horrible events. love to you and your family,KateTo: "MSersLife " <MSersLife >Sent: Monday, August 29, 2011 1:04 PMSubject: Re: Irene

Thank God you came through it safely, Kate. Please let us know when you hear news of Bob's boat. I was listening to the national news on the radio this morning about all the trees down and the flooding. I'm so glad it didn't hit as at Cat 1 hurricane but instead as a tropical storm. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: "MSersLife " <MSersLife >Sent: Monday, August 29, 2011 3:40 AMSubject: Re: Irene

It was pretty bad here. Fortunately, we didn't take on much water in the basement. The winds whipped--I think they were 60mph. It poured. So many here have lost so much. The major roads are closed. The major highways were ALL closed; mass transit in the city came to a halt. It will take a very long time for the waters to stop rising. The Croton River and Hudson River, both relatively close to us were bursting. The Long Island Sound and LI itself got really hammered. We are awaiting news on my brother, Bob's boat which is anchored, pretty safely in the LI Sound.Wishing the waters would ebb and retreat...love,KateTo: MSersLife Sent: Sunday, August 28, 2011 7:51 PMSubject: Irene

Well, the coverage

has ended, and I am back to bloomberg TV. They say there were 18

deaths...that is a lot, the whole thing is quite tragic and

sorrowful. I am just glad it wasn't worse, and my prayers go out

to those who lost so much during this storm. I know we could

have just as easily been victims, and are very lucky Irene

decided to bypass Florida. I don't know if Rob is ok, since I

have not heard from him since they left, except for a short

email telling me he was in Herkimer, and that was a few days

after they left, nothing since. So I don't know if he is/was

there or in Boston, or if he is ok. I hope he is safe.

Hugs

Akiba

[Guest guest]

Kate prayers you feel better soon.

Hugs

nne

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> Irene

>>

>>

>> Well, the coverage has ended, and I am back to bloomberg TV. They say

>> there were 18 deaths...that is a lot, the whole thing is quite tragic

>> and sorrowful. I am just glad it wasn't worse, and my prayers go out to

>> those who lost so much during this storm. I know we could have just as

>> easily been victims, and are very lucky Irene decided to bypass Florida.

>> I don't know if Rob is ok, since I have not heard from him since they

>> left, except for a short email telling me he was in Herkimer, and that

>> was a few days after they left, nothing since. So I don't know if he

>> is/was there or in Boston, or if he is ok. I hope he is safe.

>> Hugs

>> Akiba

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

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[Guest guest]

Good luck, Kate!Tina

 

We are good Sharon. Only prob is I lost my balance yesterday and fell full force on my foot. I wound up going to the ER last evening. They took an x ray which showed a fracture. Right now I m in a soft cast. In about a half hour I m going to my ortho which hospital recommended I do. Keep me in your thoughts please. Unsure if they ll want to do a hard cast or not. Will update when I get back.

Love to all,KateSent from my iPad

 

KateI heard this morning the death count was up to 30 something.  Tragic!  I'm so glad you and your family are safe and okay.

love SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: " MSersLife " <MSersLife >

Sent: Monday, August 29, 2011 10:08 AMSubject: Re: Irene

Thank you dear Sharon. Although it was a tropical storm, there is still much devastation.

I am thunderstruck by the amount of water. People are losing their homes, businesses, and one school is completely under water. It is a tragedy. I am glued to the TV watching all the horrible events.

love to you and your family,Kate

To: " MSersLife " <MSersLife >

Sent: Monday, August 29, 2011 1:04 PMSubject: Re: Irene

 

Thank God you came through it safely, Kate.  Please let us know when you hear news of Bob's boat.   I was listening to the national news on the radio this morning about all the trees down and the flooding.  I'm so glad it didn't hit as at Cat 1 hurricane but instead as a tropical storm. 

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: " MSersLife " <MSersLife >

Sent: Monday, August 29, 2011 3:40 AMSubject: Re: Irene

It was pretty bad here. Fortunately, we didn't take on much water in the basement. The winds whipped--I think they were 60mph. It poured. So many here have lost so much. The major roads are closed. The major highways were ALL closed; mass transit in the city came to a halt. It will take a very long time for the waters to stop rising. The Croton River and Hudson River, both relatively close to us were bursting. The Long Island Sound and LI itself got really hammered. We are awaiting news on my brother, Bob's boat which is anchored, pretty safely in the LI Sound.

Wishing the waters would ebb and retreat...love,Kate

To: MSersLife

Sent: Sunday, August 28, 2011 7:51 PMSubject: Irene

 

Well, the coverage

has ended, and I am back to bloomberg TV. They say there were 18

deaths...that is a lot, the whole thing is quite tragic and

sorrowful. I am just glad it wasn't worse, and my prayers go out

to those who lost so much during this storm. I know we could

have just as easily been victims, and are very lucky Irene

decided to bypass Florida. I don't know if Rob is ok, since I

have not heard from him since they left, except for a short

email telling me he was in Herkimer, and that was a few days

after they left, nothing since. So I don't know if he is/was

there or in Boston, or if he is ok. I hope he is safe.

Hugs

Akiba