Darla - Gall bladder dysfunction and surgery precautions

[Guest guest]

Darla;

Given the likliehood of you having Mito also ..... make sure that you take

the article on anaesthesia from the Library section of the UMDF website.

I am sure you are aware of the possibility of problems with General Anaesthesia

and the adviseability of using the procedures outlined in this article! I

think it would be very unwise of the hospital to release you on the same

day of your surgery given your probable medical diagnosis AND the fact that

you are a MULTI-MOM!

While on the subject ... hospitals generally use Ringer's LActate as a base

for IV drips. Ringer's Lactate or Lactated Ringers can, as its name implies,

cause lactic acidosis in Mito folk and this is NOT a desireable state to

be in ..... translation = avoid Ringer's Lactate. Make sure you CHECK with

the person who is starting the IV and then ask for normal saline!

If there does happen to be a problem, adding Glucose 5 or 10 can be helpful

in stabilizing we Mito folk.

Personally, given your responsibilities, I would be tempted to try the diet

thing and see if this gall bladder "attack" is more about lack of energy

in the gall bladder due to the HUGE amount of stress your poor body has been

under. Sometimes lack of understanding of Mito can lead to procedures which

cause additional and unwarranted stress to the Mito body!!!!! In other words,

my friend ...... ask QUESTIONS!!!! Let them know you are worried and why.

Read Cohen and Gold's article "Mitochondrial Cytopathies in Adults: What

We Know So Far" and give them a copy.

A lady from the UK with Mito had an excellent idea which I wanted to pass

along ....

Print out the articles and send them to your doctor and send a letter with

it requesting that he read the articles because you would like to make an

appointment to come in and discuss them with him!!!! This gives him time

to do his own research so he doesn't appear totally "out to lunch" when you

ask him questions cold!

Jean

Darla Klein wrote:

We will need to get a babysitter for the kids if I stay overnight

but usually a neighbor or friend from church helps so not worried about that

end. I do hate leaving Asenath at home overnight without Dean or I but the

policy at this hospital is if Porrah is with me (and I need to nurse her)

then a person over 18 has to be there with her in case something happens

to me So Dean will be at the hospital with me. He was the other night as

well. They told me I may be able to go home the same day or the next day

depending. I just wish it could be sooner and get it over with.

Darla

-----

Original Message -----

From:

Dklboone@a

Please contact mito-owner with any problems or questions.

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Jean,

It is also important to speak with the recovery room staff as well. My

15 year old had his tonsils and adenoids taken out over Christmas break

and I insisted that they use normal saline instead of Lactated ringers

for his IV. UNFORTUNATELY in the recovery room the staff hung a new

bag and he was given lactated ringers. He doesn't have confirmed mito,

but he does have arthritis and has been wheelchair dependent on 5

different occasions since last May.

Jean Shepherd wrote:

Darla;

Given the likliehood of you having Mito also ..... make sure that you

take

the article on anaesthesia from the Library section of the UMDF

website.

I am sure you are aware of the possibility of problems with General

Anaesthesia

and the adviseability of using the procedures outlined in this article!

I

think it would be very unwise of the hospital to release you on the

same

day of your surgery given your probable medical diagnosis AND the fact

that

you are a MULTI-MOM!

While on the subject ... hospitals generally use Ringer's LActate as a

base

for IV drips. Ringer's Lactate or Lactated Ringers can, as its name

implies,

cause lactic acidosis in Mito folk and this is NOT a desireable state

to

be in ..... translation = avoid Ringer's Lactate. Make sure you CHECK

with

the person who is starting the IV and then ask for normal saline!

If there does happen to be a problem, adding Glucose 5 or 10 can be

helpful

in stabilizing we Mito folk.

Personally, given your responsibilities, I would be tempted to try the

diet

thing and see if this gall bladder "attack" is more about lack of

energy

in the gall bladder due to the HUGE amount of stress your poor body has

been

under. Sometimes lack of understanding of Mito can lead to procedures

which

cause additional and unwarranted stress to the Mito body!!!!! In other

words,

my friend ...... ask QUESTIONS!!!! Let them know you are worried and

why.

Read Cohen and Gold's article "Mitochondrial Cytopathies in Adults:

What

We Know So Far" and give them a copy.

A lady from the UK with Mito had an excellent idea which I wanted to

pass

along ....

Print out the articles and send them to your doctor and send a letter

with

it requesting that he read the articles because you would like to make

an

appointment to come in and discuss them with him!!!! This gives him

time

to do his own research so he doesn't appear totally "out to lunch" when

you

ask him questions cold!

Jean

[Guest guest]

Jean,

It is also important to speak with the recovery room staff as well. My

15 year old had his tonsils and adenoids taken out over Christmas break

and I insisted that they use normal saline instead of Lactated ringers

for his IV. UNFORTUNATELY in the recovery room the staff hung a new

bag and he was given lactated ringers. He doesn't have confirmed mito,

but he does have arthritis and has been wheelchair dependent on 5

different occasions since last May.

Jean Shepherd wrote:

Darla;

Given the likliehood of you having Mito also ..... make sure that you

take

the article on anaesthesia from the Library section of the UMDF

website.

I am sure you are aware of the possibility of problems with General

Anaesthesia

and the adviseability of using the procedures outlined in this article!

I

think it would be very unwise of the hospital to release you on the

same

day of your surgery given your probable medical diagnosis AND the fact

that

you are a MULTI-MOM!

While on the subject ... hospitals generally use Ringer's LActate as a

base

for IV drips. Ringer's Lactate or Lactated Ringers can, as its name

implies,

cause lactic acidosis in Mito folk and this is NOT a desireable state

to

be in ..... translation = avoid Ringer's Lactate. Make sure you CHECK

with

the person who is starting the IV and then ask for normal saline!

If there does happen to be a problem, adding Glucose 5 or 10 can be

helpful

in stabilizing we Mito folk.

Personally, given your responsibilities, I would be tempted to try the

diet

thing and see if this gall bladder "attack" is more about lack of

energy

in the gall bladder due to the HUGE amount of stress your poor body has

been

under. Sometimes lack of understanding of Mito can lead to procedures

which

cause additional and unwarranted stress to the Mito body!!!!! In other

words,

my friend ...... ask QUESTIONS!!!! Let them know you are worried and

why.

Read Cohen and Gold's article "Mitochondrial Cytopathies in Adults:

What

We Know So Far" and give them a copy.

A lady from the UK with Mito had an excellent idea which I wanted to

pass

along ....

Print out the articles and send them to your doctor and send a letter

with

it requesting that he read the articles because you would like to make

an

appointment to come in and discuss them with him!!!! This gives him

time

to do his own research so he doesn't appear totally "out to lunch" when

you

ask him questions cold!

Jean

[Guest guest]

Jean,

It is also important to speak with the recovery room staff as well. My

15 year old had his tonsils and adenoids taken out over Christmas break

and I insisted that they use normal saline instead of Lactated ringers

for his IV. UNFORTUNATELY in the recovery room the staff hung a new

bag and he was given lactated ringers. He doesn't have confirmed mito,

but he does have arthritis and has been wheelchair dependent on 5

different occasions since last May.

Jean Shepherd wrote:

Darla;

Given the likliehood of you having Mito also ..... make sure that you

take

the article on anaesthesia from the Library section of the UMDF

website.

I am sure you are aware of the possibility of problems with General

Anaesthesia

and the adviseability of using the procedures outlined in this article!

I

think it would be very unwise of the hospital to release you on the

same

day of your surgery given your probable medical diagnosis AND the fact

that

you are a MULTI-MOM!

While on the subject ... hospitals generally use Ringer's LActate as a

base

for IV drips. Ringer's Lactate or Lactated Ringers can, as its name

implies,

cause lactic acidosis in Mito folk and this is NOT a desireable state

to

be in ..... translation = avoid Ringer's Lactate. Make sure you CHECK

with

the person who is starting the IV and then ask for normal saline!

If there does happen to be a problem, adding Glucose 5 or 10 can be

helpful

in stabilizing we Mito folk.

Personally, given your responsibilities, I would be tempted to try the

diet

thing and see if this gall bladder "attack" is more about lack of

energy

in the gall bladder due to the HUGE amount of stress your poor body has

been

under. Sometimes lack of understanding of Mito can lead to procedures

which

cause additional and unwarranted stress to the Mito body!!!!! In other

words,

my friend ...... ask QUESTIONS!!!! Let them know you are worried and

why.

Read Cohen and Gold's article "Mitochondrial Cytopathies in Adults:

What

We Know So Far" and give them a copy.

A lady from the UK with Mito had an excellent idea which I wanted to

pass

along ....

Print out the articles and send them to your doctor and send a letter

with

it requesting that he read the articles because you would like to make

an

appointment to come in and discuss them with him!!!! This gives him

time

to do his own research so he doesn't appear totally "out to lunch" when

you

ask him questions cold!

Jean