Re: Pancreatic Insuf/

[Guest guest]

,

How did you know your son needed them as soon as he was born? How did they determine your children's deficiency?

Caden had a very lengthy pancreatic stimulation test for nearly 2.5 hrs under general anesthesia.

Babies are too young for this test. They won't test Carsen right now due to his age (8mths).

I don't think he really has a problem with it anyway.....but Maybe he could due to chronic diarrhea. He's not losing weight though.

Which enzymes do your kids take?

Caden is on Pancrecarb MS4. Have you seen any side effects? Is VERY frequent urination one of them?

What type of Mito. do your children have?

Sorry so many questions. I have just never heard this discussed before. Caden's symptoms go back to infantsy as well. The greasy, pale stools were always documented in med. notes but nonone was doing anything about it. They'd even see it at the dr office.. Write in thier notes that they thought something was wrong..done a simple BMP and let it go at that!!!!

All the while he was losing weight. I had to bring him in daily for weight checks.

I think as long as you have 2% of your enzyme function, you really don't see problems, right?

So, it's safe to say that anyone with Pan. Insf. has near 0 function. Caden's numbers weren't even worth documenting! Like 2. 6 and 3.0!!!

At least we know what's wrong now and can try and help him.

He was eating every 30 minutes and not growing. Some days though his tummy would be so sick and hurt so bad that he'd just pick around and not eat much.

What benefits you have see with the medication?

Does the tummy pain go away on the meds or is it generally always there because the pancreas is not working?

This is a picture of the little one, (Carsen) from his last hospital stay.

Thank you for any additional informaiton you can provide,

Krystena s

Caden 5.5 yrs

Carsen 8 mths