Gentamicin and other things

[Guest guest]

It is my understanding that the aminoglycoside antibiotics *only* affect *hearing* in the *very specific MtDNA deletion A1555G*.

Gentamycin is ototoxic to everyone not just people with MITO. I don't know about specific deletions, I was told by Dr. Saneto that MITO kids in general should never recieve: Gentamycin, Tylenol, Ringer's Lactate, Gas Anesthesia (I have the name written down somewhere of the specific anesthesia drug to avoid) because these and some other drugs put added stress on the mitochondria and/or damage mitochondria and increase symptoms. I always gave my kid Tylenol until last year when he told me "by the way don't give her tylenol". Then he gave me the list. It was a surprise to me.

kj

mom of De-Arbra age 16

[Guest guest]

If Tylenol is mito toxic, what is the alternative to reduce

fever. Is motrin a better option for mito.

I always thought of motrin as only to be used when Tylenol does not ring down a

fever or when a fever is above 102.5. I know the risk of a fever is high and

must be controlled.

Thanks a lot,

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: sol8air@...

Sent: Friday, March 19, 2004 8:02

AM

To: Mito

Subject: Gentamicin and other things

In a message dated 3/17/04 7:37:44 AM Pacific Standard Time,

mitoscottie@... writes:

It is my understanding

that the aminoglycoside antibiotics *only*

affect *hearing* in the *very

specific MtDNA deletion A1555G*.

Gentamycin

is ototoxic to everyone not just people with MITO. I don't know about specific deletions,

I was told by Dr. Saneto that MITO kids in general should never recieve:

Gentamycin, Tylenol, Ringer's Lactate, Gas Anesthesia (I have the name written

down somewhere of the specific anesthesia drug to avoid) because these and some

other drugs put added stress on the mitochondria and/or damage mitochondria and

increase symptoms. I always gave my kid Tylenol until last year when he told me

" by the way don't give her tylenol " . Then he gave me the list. It was

a surprise to me.

kj

mom of De-Arbra age 16

Please

contact mito-owner with any problems or questions.

[Guest guest]

If Tylenol is mito toxic, what is the alternative to reduce

fever. Is motrin a better option for mito.

I always thought of motrin as only to be used when Tylenol does not ring down a

fever or when a fever is above 102.5. I know the risk of a fever is high and

must be controlled.

Thanks a lot,

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: sol8air@...

Sent: Friday, March 19, 2004 8:02

AM

To: Mito

Subject: Gentamicin and other things

In a message dated 3/17/04 7:37:44 AM Pacific Standard Time,

mitoscottie@... writes:

It is my understanding

that the aminoglycoside antibiotics *only*

affect *hearing* in the *very

specific MtDNA deletion A1555G*.

Gentamycin

is ototoxic to everyone not just people with MITO. I don't know about specific deletions,

I was told by Dr. Saneto that MITO kids in general should never recieve:

Gentamycin, Tylenol, Ringer's Lactate, Gas Anesthesia (I have the name written

down somewhere of the specific anesthesia drug to avoid) because these and some

other drugs put added stress on the mitochondria and/or damage mitochondria and

increase symptoms. I always gave my kid Tylenol until last year when he told me

" by the way don't give her tylenol " . Then he gave me the list. It was

a surprise to me.

kj

mom of De-Arbra age 16

Please

contact mito-owner with any problems or questions.