kidney stones

[Guest guest]

Jen;

Quite some time ago there was a discussion in one of the adult mito support

groups about kidney stones. An Italian doctor (urologist) wrote the following

on the subject ... so bear in mind as you read that his first language is

Italian.

Hope this answers your question.

Jean

"

Something I can say about kidney stones. They are very common, so also

mito-people can be suffering independently fron mitos disfunction; anyway

mitos disease can involve kidneys and expecially tubules (very oxygen

dependent structures), where calcium, phosphorus, bicarbonates, etc are

reabsobed . The proximal tubules disfunction is called Fanconi's disease.

High urinary concentration of calcium and phoshate (besides high pH) can

favour calcium salts precipitation and stones formation. So a measurement

of calcium and phosphorus in 24 hours urines is mandatory. For pains NSAD are useful and harmless in mito patiens (provided not asthma). Nowadays surgical treatment is out of date and lithotripsy (stones pulverization) is regularly

performed, avoiding general anesthesia. "

LukeJenG@... wrote:

I know I hardly ever post on this list, I do have

a mito daughter (MIDS) -- she's 6, and has been doing very well. Last week,

she developed a uti and kidney stones. We are no stranger to the UTI's,

but the kidney stones came out of left field. I have had them, but only

while I was pregnant, and certainly not while I was 6. She was beyond hysterical

with the pain, and it took us days to figure it out. Has anyone dealt with

pediatric kidney stones, or know a cause for them?

[Guest guest]

Has anyone dealt with pediatric kidney stones, or know a cause for them?

My daughter had had kidney stones 4x so far. She is 5 and had her first stone at the age of 2. I was told that the kidney stones are not totally uncommon with mito becuase of the metabolic disturbances and the filtering done by the kidneys. My daughter also has renal tubular acidosis which may be a contributing factor as do many mito kids. Some of the meds used with mito kids and for seizures also can cause stones with one of the biggies being topamax. She is followed by both nephrology and urology for her stones and has had both lithotripsy and laser surgery removal for obstructions and has also passed them on her own. I hope you daugher starts feeling better soon. I know that the pain can be terrible. We had no idea the first time what was going on and since kidney stones aren't usually the first thing they look for in kids it was a few days before they clued into what was going on. I know once they can look at the stone to analyze it to see it's make up it will help them better determine the cause.

Holly

[Guest guest]

Has anyone dealt with pediatric kidney stones, or know a cause for them?

My daughter had had kidney stones 4x so far. She is 5 and had her first stone at the age of 2. I was told that the kidney stones are not totally uncommon with mito becuase of the metabolic disturbances and the filtering done by the kidneys. My daughter also has renal tubular acidosis which may be a contributing factor as do many mito kids. Some of the meds used with mito kids and for seizures also can cause stones with one of the biggies being topamax. She is followed by both nephrology and urology for her stones and has had both lithotripsy and laser surgery removal for obstructions and has also passed them on her own. I hope you daugher starts feeling better soon. I know that the pain can be terrible. We had no idea the first time what was going on and since kidney stones aren't usually the first thing they look for in kids it was a few days before they clued into what was going on. I know once they can look at the stone to analyze it to see it's make up it will help them better determine the cause.

Holly

[Guest guest]

Has anyone dealt with pediatric kidney stones, or know a cause for them?

My daughter had had kidney stones 4x so far. She is 5 and had her first stone at the age of 2. I was told that the kidney stones are not totally uncommon with mito becuase of the metabolic disturbances and the filtering done by the kidneys. My daughter also has renal tubular acidosis which may be a contributing factor as do many mito kids. Some of the meds used with mito kids and for seizures also can cause stones with one of the biggies being topamax. She is followed by both nephrology and urology for her stones and has had both lithotripsy and laser surgery removal for obstructions and has also passed them on her own. I hope you daugher starts feeling better soon. I know that the pain can be terrible. We had no idea the first time what was going on and since kidney stones aren't usually the first thing they look for in kids it was a few days before they clued into what was going on. I know once they can look at the stone to analyze it to see it's make up it will help them better determine the cause.

Holly