Re: Cat out of the bag on Super Bowl Sunday

[Guest guest]

.. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans.

,

Sending a picture of yourself would be great--I know you've got Rose's address.

[Guest guest]

.. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans.

,

Sending a picture of yourself would be great--I know you've got Rose's address.

[Guest guest]

.. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans.

,

Sending a picture of yourself would be great--I know you've got Rose's address.

[Guest guest]

Tracie, about the beginning of Janurary this year, you stated I was "sick". I'am not nausa, or flu, or anything that in sense of medical reasons. Sure I got this damm pain in my legs & knees bad and this is just realative to other people, but just sick of this "blankety blankety situation" I'am in now.

, none of us have the "flu or anything in that sense of the medical reasons."

Sarcoidosis is a disease (illness) that is chronic-progressive. What that means is that whatever area of the body that is effected-- and ANY part of the body can be effected-- if the sarcoidosis isn't controlled, it can get worse. For you--(and this is from what you've told us) it effects your knees and legs, as well as your lungs.

When you are not able to stand on your feet all day to work, or you can't breath because of your lungs not working right, or you can't form thoughts and sentences or communicate effectively, and that is part of what sarcoidosis does to us; then you file for disability.

You may be turned down-- then again, you may not be. If you keep up the appts, and follow the instructions of your attorney-- and follow through this time-- you will eventually get approved. And if you don't let the time frames go by like the last time-- your SSDI will be retro back to where you filed THIS TIME. (So if you saw someone last week, it would be retro to last week.)

, you like most people-- think of being "Sick" in that you have to have a fever, or a cold, or the flu. That kind of "sickness" is something we get over in 10 days or so.

Sarcoidosis is forever. When it doesn't get treated--the organs that become affected, can't work correctly. Your joints in your knees and legs are being destroyed by the sarcoidosis. They are slowly wearing away--and then you don't have the cushion for the bones--and the bones start rubbing against the other bone--and the pain gets worse--and you get more crippled up.

In your lungs, the scarring from the granulomas--even if they are gone now-- keeps the air from crossing the lungs, and then being picked up by the red blood cells in your lungs, where it then goes out to your body. Even a small amount of scarring makes the amount of oxygen in the blood decrease--and that makes it harder for us to function.

I know that you have alot of EMOTIONAL PAIN that comes from not having a good marriage. We all have that kind of pain--from time to time. I also know that you are needing to vent on that-- and that's ok.

Just keep in mind that you will eventually get your SSDI-- and then you can figure out a different life style. Maybe you could get a roommate and share an apartment with someone--so that you can afford to get your divorce.

It sounds like you've gotten the paperwork started for your SSDI and have seen an attorney! Follow his instructions--and you'll be fine.

Tracie

[Guest guest]

Tracie, about the beginning of Janurary this year, you stated I was "sick". I'am not nausa, or flu, or anything that in sense of medical reasons. Sure I got this damm pain in my legs & knees bad and this is just realative to other people, but just sick of this "blankety blankety situation" I'am in now.

, none of us have the "flu or anything in that sense of the medical reasons."

Sarcoidosis is a disease (illness) that is chronic-progressive. What that means is that whatever area of the body that is effected-- and ANY part of the body can be effected-- if the sarcoidosis isn't controlled, it can get worse. For you--(and this is from what you've told us) it effects your knees and legs, as well as your lungs.

When you are not able to stand on your feet all day to work, or you can't breath because of your lungs not working right, or you can't form thoughts and sentences or communicate effectively, and that is part of what sarcoidosis does to us; then you file for disability.

You may be turned down-- then again, you may not be. If you keep up the appts, and follow the instructions of your attorney-- and follow through this time-- you will eventually get approved. And if you don't let the time frames go by like the last time-- your SSDI will be retro back to where you filed THIS TIME. (So if you saw someone last week, it would be retro to last week.)

, you like most people-- think of being "Sick" in that you have to have a fever, or a cold, or the flu. That kind of "sickness" is something we get over in 10 days or so.

Sarcoidosis is forever. When it doesn't get treated--the organs that become affected, can't work correctly. Your joints in your knees and legs are being destroyed by the sarcoidosis. They are slowly wearing away--and then you don't have the cushion for the bones--and the bones start rubbing against the other bone--and the pain gets worse--and you get more crippled up.

In your lungs, the scarring from the granulomas--even if they are gone now-- keeps the air from crossing the lungs, and then being picked up by the red blood cells in your lungs, where it then goes out to your body. Even a small amount of scarring makes the amount of oxygen in the blood decrease--and that makes it harder for us to function.

I know that you have alot of EMOTIONAL PAIN that comes from not having a good marriage. We all have that kind of pain--from time to time. I also know that you are needing to vent on that-- and that's ok.

Just keep in mind that you will eventually get your SSDI-- and then you can figure out a different life style. Maybe you could get a roommate and share an apartment with someone--so that you can afford to get your divorce.

It sounds like you've gotten the paperwork started for your SSDI and have seen an attorney! Follow his instructions--and you'll be fine.

Tracie

[Guest guest]

Tracie, about the beginning of Janurary this year, you stated I was "sick". I'am not nausa, or flu, or anything that in sense of medical reasons. Sure I got this damm pain in my legs & knees bad and this is just realative to other people, but just sick of this "blankety blankety situation" I'am in now.

, none of us have the "flu or anything in that sense of the medical reasons."

Sarcoidosis is a disease (illness) that is chronic-progressive. What that means is that whatever area of the body that is effected-- and ANY part of the body can be effected-- if the sarcoidosis isn't controlled, it can get worse. For you--(and this is from what you've told us) it effects your knees and legs, as well as your lungs.

When you are not able to stand on your feet all day to work, or you can't breath because of your lungs not working right, or you can't form thoughts and sentences or communicate effectively, and that is part of what sarcoidosis does to us; then you file for disability.

You may be turned down-- then again, you may not be. If you keep up the appts, and follow the instructions of your attorney-- and follow through this time-- you will eventually get approved. And if you don't let the time frames go by like the last time-- your SSDI will be retro back to where you filed THIS TIME. (So if you saw someone last week, it would be retro to last week.)

, you like most people-- think of being "Sick" in that you have to have a fever, or a cold, or the flu. That kind of "sickness" is something we get over in 10 days or so.

Sarcoidosis is forever. When it doesn't get treated--the organs that become affected, can't work correctly. Your joints in your knees and legs are being destroyed by the sarcoidosis. They are slowly wearing away--and then you don't have the cushion for the bones--and the bones start rubbing against the other bone--and the pain gets worse--and you get more crippled up.

In your lungs, the scarring from the granulomas--even if they are gone now-- keeps the air from crossing the lungs, and then being picked up by the red blood cells in your lungs, where it then goes out to your body. Even a small amount of scarring makes the amount of oxygen in the blood decrease--and that makes it harder for us to function.

I know that you have alot of EMOTIONAL PAIN that comes from not having a good marriage. We all have that kind of pain--from time to time. I also know that you are needing to vent on that-- and that's ok.

Just keep in mind that you will eventually get your SSDI-- and then you can figure out a different life style. Maybe you could get a roommate and share an apartment with someone--so that you can afford to get your divorce.

It sounds like you've gotten the paperwork started for your SSDI and have seen an attorney! Follow his instructions--and you'll be fine.

Tracie

[Guest guest]

Hello there y'all, Well I'am replying to myself to what I written and everyone else. Well I'am forgeting or scraping these ideas of silly/funny photos to send to Rose. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans. Pictures of Sparky too. Pictures of Kathy & Reba, well forget it. Same ole', same ole', or the same old vicious cycle crap nonsence that's going on in our lives. Just like times in the past I've thought, going back in time that I taken a "different

fork in the road" by not putting in a selection for Wurtsmith A.F.B., Michigan (has been closed down for a number of years now) and selected another base to go to that way I WOULD NEVER meet you know you couldn't happened none time to soon. Tracie, about the beginning of Janurary this year, you stated I was "sick". I'am not nausa, or flu, or anything that in sense of medical reasons. Sure I got this damm pain in my legs & knees bad and this is just realative to other people, but just sick of this "blankety blankety situation" I'am in now. I've been writing off and on to this group for about 17 months now and at times I've had those suicidal thoughts as you know. I don't have those thoughts now, but damm, death has been more appealing than living in my PERSONAL situation and NOT AT ALL MY HEALTH I'AM WRITING/TALKING ABOUT. I'am affraid the ONLY answer for me is divorce. You know I don't have money for this, money to live on (rent, utility bills, etc.). To wait until

my health detoriates that I could collect disability may very well take years and years. Thinking about this in itself is enough to make anyone more depressed. Am I the first person in the world, or the first white 53 year old American male to ever be in this "situation" I'am in now????????? NO. This just SUCKS to high anywhere more than sarcoid has, now, or forseeable in the future. Social Security Disability Income will be denied that I'am sure of it. Oh I get a attorney and I'll have a "contentionsee status" with them until I'am able to get this income, but not at the present time I'am sure of it. Tracie, Rose, Darlene, and anyone that has been at this "hotel" for some time or years, do y'all understand???? I can't go indefinate or for years like I've have been. Those suicidal thoughts may come back and stay longer each time that they have. My marriage vows like anyone else says, "For better or worse", just doesn't have any meaning any

more. Just empty words to me now, that's all it is. Times I've said if I had seizures or strokes, "Big deal", in scope of this "personal" crap, it is no big deal on my OWN viewpoint just on my life only. Bye now, GARY WOOLARD wrote: Hello out there, Misc. items first. I called an attorney service that handles disability cases, and was told I should reapply to have S.S.D.I. Unfortuntaly haven't got down to where this is. I have to go to the V.A. clinic Tuesday morning so after this we could "swing" by the Social Security office. I've been having trouble breathing sometimes this winter. I stopped using that Advair inhaler because this was having me have so much nasal congestion. But I started using this again anyway on my own. The lung doctor

at Ann Arbor V.A. Hospital told me that Sarcoidosis can cause Astma like symptoms because of the inflammatary nature of the sarcoid lesions themselves. I'am coughing alot like last winter and using cough drops alot as well. I take one of these when I go to bed. Kathy complains that I stained the pillowcase because of I have this melted cough drops come out while I'am sleeping. I wrote about what I'am about to say before and this is for Bonnie's sake. If anyone wishes to see what Sarcoidosis can do for some particular organs and pictures of Sarcoid itself, just enter "Pictures of Sarcoidosis" or "Gross Pictures of Sarcoidosis" in Yahoo, Google, or any "search engine". One that I had found and had printed before that is in color pictures is listed below. Particular look at the Nodular Sarcoidosis pictures of what I suspect is in my legs and what some folks recently wrote about. www.granuloma.homestead.com/sarcoidosis_gross.html Cat out of the bag here on this Super Sunday football day. Kathy took some pictures of me recently. Some may say, ", those pictures are dumb or stupid". Well if I send these to Rose, it is for the SOLE REASON JUST TO MAKE YOU FOLKS LAUGH, NOTHING MORE AND NOTHING LESS!!!!!!!!!! Also some "pics" of my legs as well. If you think I shouldn't send such, then forget it. I don't have those lesions that Joan had on her legs and sent these pictures in. On the backside of my legs, it just hair loss and very well be permaintly and this is either because of sarcoid affecting the hair to die out or that Rhemy cream or both. BY THE WAY, ALL THESE PICTURES OF ME, IS NOT THAT "SCARRY" PICTURE. It's about time to leave here today. They are playing Hawian music in the background here at the library. Yahoo! Mail - Helps protect you from nasty viruses. __________________________________________________

[Guest guest]

Hello there y'all, Well I'am replying to myself to what I written and everyone else. Well I'am forgeting or scraping these ideas of silly/funny photos to send to Rose. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans. Pictures of Sparky too. Pictures of Kathy & Reba, well forget it. Same ole', same ole', or the same old vicious cycle crap nonsence that's going on in our lives. Just like times in the past I've thought, going back in time that I taken a "different

fork in the road" by not putting in a selection for Wurtsmith A.F.B., Michigan (has been closed down for a number of years now) and selected another base to go to that way I WOULD NEVER meet you know you couldn't happened none time to soon. Tracie, about the beginning of Janurary this year, you stated I was "sick". I'am not nausa, or flu, or anything that in sense of medical reasons. Sure I got this damm pain in my legs & knees bad and this is just realative to other people, but just sick of this "blankety blankety situation" I'am in now. I've been writing off and on to this group for about 17 months now and at times I've had those suicidal thoughts as you know. I don't have those thoughts now, but damm, death has been more appealing than living in my PERSONAL situation and NOT AT ALL MY HEALTH I'AM WRITING/TALKING ABOUT. I'am affraid the ONLY answer for me is divorce. You know I don't have money for this, money to live on (rent, utility bills, etc.). To wait until

my health detoriates that I could collect disability may very well take years and years. Thinking about this in itself is enough to make anyone more depressed. Am I the first person in the world, or the first white 53 year old American male to ever be in this "situation" I'am in now????????? NO. This just SUCKS to high anywhere more than sarcoid has, now, or forseeable in the future. Social Security Disability Income will be denied that I'am sure of it. Oh I get a attorney and I'll have a "contentionsee status" with them until I'am able to get this income, but not at the present time I'am sure of it. Tracie, Rose, Darlene, and anyone that has been at this "hotel" for some time or years, do y'all understand???? I can't go indefinate or for years like I've have been. Those suicidal thoughts may come back and stay longer each time that they have. My marriage vows like anyone else says, "For better or worse", just doesn't have any meaning any

more. Just empty words to me now, that's all it is. Times I've said if I had seizures or strokes, "Big deal", in scope of this "personal" crap, it is no big deal on my OWN viewpoint just on my life only. Bye now, GARY WOOLARD wrote: Hello out there, Misc. items first. I called an attorney service that handles disability cases, and was told I should reapply to have S.S.D.I. Unfortuntaly haven't got down to where this is. I have to go to the V.A. clinic Tuesday morning so after this we could "swing" by the Social Security office. I've been having trouble breathing sometimes this winter. I stopped using that Advair inhaler because this was having me have so much nasal congestion. But I started using this again anyway on my own. The lung doctor

at Ann Arbor V.A. Hospital told me that Sarcoidosis can cause Astma like symptoms because of the inflammatary nature of the sarcoid lesions themselves. I'am coughing alot like last winter and using cough drops alot as well. I take one of these when I go to bed. Kathy complains that I stained the pillowcase because of I have this melted cough drops come out while I'am sleeping. I wrote about what I'am about to say before and this is for Bonnie's sake. If anyone wishes to see what Sarcoidosis can do for some particular organs and pictures of Sarcoid itself, just enter "Pictures of Sarcoidosis" or "Gross Pictures of Sarcoidosis" in Yahoo, Google, or any "search engine". One that I had found and had printed before that is in color pictures is listed below. Particular look at the Nodular Sarcoidosis pictures of what I suspect is in my legs and what some folks recently wrote about. www.granuloma.homestead.com/sarcoidosis_gross.html Cat out of the bag here on this Super Sunday football day. Kathy took some pictures of me recently. Some may say, ", those pictures are dumb or stupid". Well if I send these to Rose, it is for the SOLE REASON JUST TO MAKE YOU FOLKS LAUGH, NOTHING MORE AND NOTHING LESS!!!!!!!!!! Also some "pics" of my legs as well. If you think I shouldn't send such, then forget it. I don't have those lesions that Joan had on her legs and sent these pictures in. On the backside of my legs, it just hair loss and very well be permaintly and this is either because of sarcoid affecting the hair to die out or that Rhemy cream or both. BY THE WAY, ALL THESE PICTURES OF ME, IS NOT THAT "SCARRY" PICTURE. It's about time to leave here today. They are playing Hawian music in the background here at the library. Yahoo! Mail - Helps protect you from nasty viruses. __________________________________________________

[Guest guest]

Hello there y'all, Well I'am replying to myself to what I written and everyone else. Well I'am forgeting or scraping these ideas of silly/funny photos to send to Rose. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans. Pictures of Sparky too. Pictures of Kathy & Reba, well forget it. Same ole', same ole', or the same old vicious cycle crap nonsence that's going on in our lives. Just like times in the past I've thought, going back in time that I taken a "different

fork in the road" by not putting in a selection for Wurtsmith A.F.B., Michigan (has been closed down for a number of years now) and selected another base to go to that way I WOULD NEVER meet you know you couldn't happened none time to soon. Tracie, about the beginning of Janurary this year, you stated I was "sick". I'am not nausa, or flu, or anything that in sense of medical reasons. Sure I got this damm pain in my legs & knees bad and this is just realative to other people, but just sick of this "blankety blankety situation" I'am in now. I've been writing off and on to this group for about 17 months now and at times I've had those suicidal thoughts as you know. I don't have those thoughts now, but damm, death has been more appealing than living in my PERSONAL situation and NOT AT ALL MY HEALTH I'AM WRITING/TALKING ABOUT. I'am affraid the ONLY answer for me is divorce. You know I don't have money for this, money to live on (rent, utility bills, etc.). To wait until

my health detoriates that I could collect disability may very well take years and years. Thinking about this in itself is enough to make anyone more depressed. Am I the first person in the world, or the first white 53 year old American male to ever be in this "situation" I'am in now????????? NO. This just SUCKS to high anywhere more than sarcoid has, now, or forseeable in the future. Social Security Disability Income will be denied that I'am sure of it. Oh I get a attorney and I'll have a "contentionsee status" with them until I'am able to get this income, but not at the present time I'am sure of it. Tracie, Rose, Darlene, and anyone that has been at this "hotel" for some time or years, do y'all understand???? I can't go indefinate or for years like I've have been. Those suicidal thoughts may come back and stay longer each time that they have. My marriage vows like anyone else says, "For better or worse", just doesn't have any meaning any

more. Just empty words to me now, that's all it is. Times I've said if I had seizures or strokes, "Big deal", in scope of this "personal" crap, it is no big deal on my OWN viewpoint just on my life only. Bye now, GARY WOOLARD wrote: Hello out there, Misc. items first. I called an attorney service that handles disability cases, and was told I should reapply to have S.S.D.I. Unfortuntaly haven't got down to where this is. I have to go to the V.A. clinic Tuesday morning so after this we could "swing" by the Social Security office. I've been having trouble breathing sometimes this winter. I stopped using that Advair inhaler because this was having me have so much nasal congestion. But I started using this again anyway on my own. The lung doctor

at Ann Arbor V.A. Hospital told me that Sarcoidosis can cause Astma like symptoms because of the inflammatary nature of the sarcoid lesions themselves. I'am coughing alot like last winter and using cough drops alot as well. I take one of these when I go to bed. Kathy complains that I stained the pillowcase because of I have this melted cough drops come out while I'am sleeping. I wrote about what I'am about to say before and this is for Bonnie's sake. If anyone wishes to see what Sarcoidosis can do for some particular organs and pictures of Sarcoid itself, just enter "Pictures of Sarcoidosis" or "Gross Pictures of Sarcoidosis" in Yahoo, Google, or any "search engine". One that I had found and had printed before that is in color pictures is listed below. Particular look at the Nodular Sarcoidosis pictures of what I suspect is in my legs and what some folks recently wrote about. www.granuloma.homestead.com/sarcoidosis_gross.html Cat out of the bag here on this Super Sunday football day. Kathy took some pictures of me recently. Some may say, ", those pictures are dumb or stupid". Well if I send these to Rose, it is for the SOLE REASON JUST TO MAKE YOU FOLKS LAUGH, NOTHING MORE AND NOTHING LESS!!!!!!!!!! Also some "pics" of my legs as well. If you think I shouldn't send such, then forget it. I don't have those lesions that Joan had on her legs and sent these pictures in. On the backside of my legs, it just hair loss and very well be permaintly and this is either because of sarcoid affecting the hair to die out or that Rhemy cream or both. BY THE WAY, ALL THESE PICTURES OF ME, IS NOT THAT "SCARRY" PICTURE. It's about time to leave here today. They are playing Hawian music in the background here at the library. Yahoo! Mail - Helps protect you from nasty viruses. __________________________________________________

[Guest guest]

Hey, , if you send me a picture, can I do a little digital "adjusting?" You know, just little things, like adding dreads or Groucho Marx nose & glasses? Pulleeeeeze?

Ramblin' Rose

Moderator

From: tiodaat@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Cat out of the bag on Super Bowl SundayDate: Mon, 6 Feb 2006 23:31:36 EST

.. This idea of sending a "quote unquote" of a "scarry photo" of myself was just a joke from myself. This idea of "scarry photo" actually is that I had this "mop" shorten and thin (haircut), face shaven, wearing a dress shirt, neck tie, sweater or sport coat, and my "dress jeans". I don't have the interest to do any of this at all. If I submit a current photo of myself, it will be my usual attire. That is either wearing a sweatshirt or a fannel shirt or one of my color advertisement shirts with jeans. ,Sending a picture of yourself would be great--I know you've got Rose's address.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database