Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 > Loriann, I am so sorry that Lucas has had such a rough yr. I hope he had a great birthday depsite it all. I hope the yr. to come will be filled with better health, and motility. Isn't it funny what we mito parents wish for for our kids! Sometimes it seems all we talk about is poop here is our house. Too much poop or lack of poop. Hang in and our prayers our with you. Happy Birhtday Lucas!!!! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Thanks Dawn, Yes Lucas did have a good day and seems to be having a good day today despite waking up whining. Loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Thanks Dawn, Yes Lucas did have a good day and seems to be having a good day today despite waking up whining. Loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Thanks Dawn, Yes Lucas did have a good day and seems to be having a good day today despite waking up whining. Loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Lucas! From Horsley Re: Re: Lucas turned 8 today Thanks Dawn, Yes Lucas did have a good day and seems to be having a good day today despite waking up whining. LoriannPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Lucas! From Horsley Re: Re: Lucas turned 8 today Thanks Dawn, Yes Lucas did have a good day and seems to be having a good day today despite waking up whining. LoriannPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Lucas! From Horsley Re: Re: Lucas turned 8 today Thanks Dawn, Yes Lucas did have a good day and seems to be having a good day today despite waking up whining. LoriannPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2004 Report Share Posted March 13, 2004 Happy Birthday Lucus! Hope you have a great day! Darla: mommy to Asenath, Zipporrah, and the gang Lucas turned 8 today So far it has been a really rough year for Lucas. Can't believe my baby is 8 years old today! The past few weeks have been especially tough as we have been dealing with severe constipation/motility issues and a regression of some skills. Yesterday we had Lucas for a bone scan. I am very interested in the results because Lucas is not really walking like he was at the beginning of the year and since he had a switch of his J-button to a tube. After the bone scan we were sent for bilateral knee x-rays. I know this is not standard procedure so I am definitely interested in the results. Since our 10 day hospital stay from Jan. 28th- Feb. 7th we have had several changes. Lucas ended up with a G -button and J-tube in Jan. of 2001 He ended up with a revision of his J-tube site in Feb. of 2003. This year we ended up with severe motility problems and currently have a G-J tube in his J-tube stoma site. I call it his J-J tube. We also are currently venting his G-button about 20 hours a day and getting about 150 cc's or 5 oz's a day out. We have had to switch from 5 to 7 days a week of Miralax to daily Milk of Magnesia. He still is taking 2 to 3 days to have a bowel movement. When we left the hospital in Feb. he was on erythromycin to aid his motility. It seemed to be helping until he developed an allergic reaction to it about 2 weeks after we started it. On Monday we are headed for a biliary tract scan. Sure hope we get to the bottom of this. We had about a 1 1/2 week occurence of vomiting between 6 am and 8 am despite venting. Fortunately the past 3 days he has not woken up vomiting. On Monday night we put him to bed at 10:00pm he made noises (not crying) until 4:15 am when he finally managed to have a large liquid BM. Tonight was the first dirty diaper since then. (He was an every 1-2 day kind of guy before.) Today school called me because they could not find and believe he may have chewed and swallowed the cap to his drainage bag. He chews on everything and hopefully it was just lost and won't get stuck down the digestive tract. Our GI anticipates possible colon motility studies in his future or botox injections in his pyloric sphincter via endoscopy. Hopefully his year will improve and we can get back to his baseline. I will let you all know what his bone scan shows when I get the results. Thanks for reading, LoriannPlease contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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