Re: Re: Fwd: [FODSupport.org] Hospital Nightmare

[Guest guest]

Another thought is we've always warned them (people to take Leah's blood)

that she is a hard stick; meaning they will have difficulty getting a vein

right away or even after three tries. We learned the hard way and now say

that in the beginning so they can get a specialist in blood draws for Leah.

Some times we need to wait a little longer; but it is worth the wait. Even

for regular blood draws this is what we say. Plus if they can't get some one

in and they say oh I'm pretty good at this; we give them a warning; three

tries and then if they haven't gotten any thing they get some one in. So

every thing is heads up. But I agree with Ann as to why the ped sent you to

the ER. I know our ped will send Leah down to the hospital lab because they

get a better draw and they are better at drawing blood than the regular lab

in his office. That would be the only thing I could think of. But I hate to

say this has been a learning experience but next time you will then ask after

a few minutes if the blood draws have been sent and if they look at you

funny; just smile and say you had a bad experience last time when the tubes

weren't sent after a period of time and the blood was no good. Another

thought would be if they couldn't get you food in a timely matter (of course

it doesn't seem like you would want to do this after your experience of

trust) say could you watch my son while I go and get food? Were they quite

busy in the ER that day? Shouldn't be an excuse but just curious. I hope

your next experience will be better. We all learn from each of our visits.

I too had to laugh at the thought of every one carrying a urine bag with

them. That is some thing I must say we haven't carried an extra with us.

But I know we have one at home. May be we should carry extra motrin with us,

too. Better to be prepared I guess. Than can we charge the hospital back

for providing medical services that they didn't have to?

Nerenhausen

mom to Leah

gazubich wrote:

> I am the worst, I always let them know if something is bugging me.

> At the same time though I make sure I have a suggestion that could

> improve the situation. I'm never afraid of backlash. I think they

> are more afraid of me going higher up.

>

> Thanks for the laugh- " Well, they never put a urine bag on him. Of

> course I carry one

> > in my bag (doesnt every mother? "

>

> Geri-Anne and Wyatt, complex I

>

> >

> >

> > 'Emotional and Practical Support'*

> > *( http://www.fodsupport.org disclaimer)

> > Archives: http://topica.com/lists/FODSupport.org/read

> >

> >

> > Hi all. Yesterday was another trip to the er for Matt. he has been

> running

> > 104 on motrin without any other symptoms. He wasnt really eating

> but was

> > tolerating his tube feeds nicely. I spoke with the geneticist

> Weds. night who said to

> > have my ped take a look at him in the morning. I could tell when

> he woke up

> > that he didnt look right, so I brought him right in and the ped.

> agreed. Off to

> > the er we went. This is where the nightmare began. After about 10

> sticks,

> > they were finally able to draw his blood. I waited and waited for

> the results. In

> > the meantime, I bolus fed him,because they could not get the iv

> in. At one

> > point he actually said he was hungry and I asked one of the nurses

> if they could

> > get him something to eat. Of course they never bothered to get him

> anything.

> > here is this poor sick 3 year old sking for food and being

> ignored! Finally my

> > ped stopped by and she got him something to eat. His fever had

> gone up

> > again(they never checked it). I could tell by feeling him. I had

> to stomp my feet to

> > get motrin. Then they asked if he had peed yet. I said I would

> assume so--it

> > had been hours. Well, they never put a urine bag on him. Of course

> I carry one

> > in my bag (doesnt every mother?) so I got the sample myself.

> Finally 4 hours

> > after his bloods were drawn, everyone realized the tubes had never

> shown up at

> > the lab and nobody knew where they were. Can you believe that the

> nurse who

> > drew the blood finally admitted that she forgot to send it to the

> lab!!!!!!! I

> > thoiught I was going to kill someone. When the results finally

> came back, they

> > werent any good because the blood had sat for so long it had

> started to clot.

> > They told me that the results were inaccurate because the blood hd

> sat around

> > for so long. They wanted to repeat the tests, but at this point he

> looked

> > alittle better so I walked out. I had been there for 8 hours and

> accomplished

> > nothing. I feel like complaining to the head of the emergency

> department, but I

> > am afraid if I do that the next time we are there,we will be

> treated worse. Any

> > thoughts? Thanks for letting me vent. Jill, Matts mom, scad

> >

> >