Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 Hi Margaret, I think that is an FT4 rather than a T4, and the reference range is usually 0.8-1.8 ng/dl/. TSH is best kept below 2.0 when you're on ATDs. This test is also misleading when on ATDs so the FT4 and FT3 are better for monitoring you. Your FT4 is on the low side. If you have any hypothyroid symptoms, you might want to ask your doctor about reducing your dose more. Most patients can be kept on a maintenance dose of 2.5-10.0 mg Tapazole daily. Take care, elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Clair Baca wrote: > > I've never had the Free T3 before, but I am presuming that even > though I am high, that little .06 should come down by my next labs. > Does that come down as quickly as the others? In the 3 months I have > been on meds (same dose, even), other than my TSH everything else has > come into normal range (and this FT3 now). Good right? My fT3 is a stubborn little number who does his own thing, but yes yours will probably come into line soon. The TSH will probably then follow. The results are good, although you're at the bouncy, hot and sweaty end of normal still. One other thing is don't be too disappointed if the numbers wander a little now they are closer to normal. Although the symptoms get easier, it is harder to make fine adjustments, and you may have the odd worse " result " now and then. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+HfxXGFXfHI9FVgYRApM2AKCFhO9crf14ZI1QOupD8hxJ4eBxwgCgl//u 0f1N0IEoBa4KYgH/k59ooOo= =HOt2 -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Clair Baca wrote: > > I've never had the Free T3 before, but I am presuming that even > though I am high, that little .06 should come down by my next labs. > Does that come down as quickly as the others? In the 3 months I have > been on meds (same dose, even), other than my TSH everything else has > come into normal range (and this FT3 now). Good right? My fT3 is a stubborn little number who does his own thing, but yes yours will probably come into line soon. The TSH will probably then follow. The results are good, although you're at the bouncy, hot and sweaty end of normal still. One other thing is don't be too disappointed if the numbers wander a little now they are closer to normal. Although the symptoms get easier, it is harder to make fine adjustments, and you may have the odd worse " result " now and then. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+HfxXGFXfHI9FVgYRApM2AKCFhO9crf14ZI1QOupD8hxJ4eBxwgCgl//u 0f1N0IEoBa4KYgH/k59ooOo= =HOt2 -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 Clair Baca wrote: > > I've never had the Free T3 before, but I am presuming that even > though I am high, that little .06 should come down by my next labs. > Does that come down as quickly as the others? In the 3 months I have > been on meds (same dose, even), other than my TSH everything else has > come into normal range (and this FT3 now). Good right? My fT3 is a stubborn little number who does his own thing, but yes yours will probably come into line soon. The TSH will probably then follow. The results are good, although you're at the bouncy, hot and sweaty end of normal still. One other thing is don't be too disappointed if the numbers wander a little now they are closer to normal. Although the symptoms get easier, it is harder to make fine adjustments, and you may have the odd worse " result " now and then. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+HfxXGFXfHI9FVgYRApM2AKCFhO9crf14ZI1QOupD8hxJ4eBxwgCgl//u 0f1N0IEoBa4KYgH/k59ooOo= =HOt2 -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Thanks Simon. I was wondering why, if I was getting better and better and am now virtually in normal range (still a tad high, though), I still feel awful sometimes. I still can't do more than 10 minutes of housework or whatever without breaking into a total sweat and feeling faint and delirously hot. And my hands still have shakey moments, even when I take my meds perfectly. On the other hand, compared to before, I feel a gazillion times better. I am just impatient about feeling all the way better. I want to be able to be active without passing out =) Clair > > > > I've never had the Free T3 before, but I am presuming that even > > though I am high, that little .06 should come down by my next > labs. > > Does that come down as quickly as the others? In the 3 months > I have > > been on meds (same dose, even), other than my TSH everything > else has > > come into normal range (and this FT3 now). Good right? > > My fT3 is a stubborn little number who does his own thing, but > yes yours will probably come into line soon. The TSH will > probably then follow. > > The results are good, although you're at the bouncy, hot and > sweaty end of normal still. > > One other thing is don't be too disappointed if the numbers > wander a little now they are closer to normal. Although the > symptoms get easier, it is harder to make fine adjustments, and > you may have the odd worse " result " now and then. > -----BEGIN PGP SIGNATURE----- > Version: GnuPG v1.2.1 (GNU/Linux) > Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org > > iD8DBQE+HfxXGFXfHI9FVgYRApM2AKCFhO9crf14ZI1QOupD8hxJ4eBxwgCgl//u > 0f1N0IEoBa4KYgH/k59ooOo= > =HOt2 > -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Thanks Simon. I was wondering why, if I was getting better and better and am now virtually in normal range (still a tad high, though), I still feel awful sometimes. I still can't do more than 10 minutes of housework or whatever without breaking into a total sweat and feeling faint and delirously hot. And my hands still have shakey moments, even when I take my meds perfectly. On the other hand, compared to before, I feel a gazillion times better. I am just impatient about feeling all the way better. I want to be able to be active without passing out =) Clair > > > > I've never had the Free T3 before, but I am presuming that even > > though I am high, that little .06 should come down by my next > labs. > > Does that come down as quickly as the others? In the 3 months > I have > > been on meds (same dose, even), other than my TSH everything > else has > > come into normal range (and this FT3 now). Good right? > > My fT3 is a stubborn little number who does his own thing, but > yes yours will probably come into line soon. The TSH will > probably then follow. > > The results are good, although you're at the bouncy, hot and > sweaty end of normal still. > > One other thing is don't be too disappointed if the numbers > wander a little now they are closer to normal. Although the > symptoms get easier, it is harder to make fine adjustments, and > you may have the odd worse " result " now and then. > -----BEGIN PGP SIGNATURE----- > Version: GnuPG v1.2.1 (GNU/Linux) > Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org > > iD8DBQE+HfxXGFXfHI9FVgYRApM2AKCFhO9crf14ZI1QOupD8hxJ4eBxwgCgl//u > 0f1N0IEoBa4KYgH/k59ooOo= > =HOt2 > -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Thanks Simon. I was wondering why, if I was getting better and better and am now virtually in normal range (still a tad high, though), I still feel awful sometimes. I still can't do more than 10 minutes of housework or whatever without breaking into a total sweat and feeling faint and delirously hot. And my hands still have shakey moments, even when I take my meds perfectly. On the other hand, compared to before, I feel a gazillion times better. I am just impatient about feeling all the way better. I want to be able to be active without passing out =) Clair > > > > I've never had the Free T3 before, but I am presuming that even > > though I am high, that little .06 should come down by my next > labs. > > Does that come down as quickly as the others? In the 3 months > I have > > been on meds (same dose, even), other than my TSH everything > else has > > come into normal range (and this FT3 now). Good right? > > My fT3 is a stubborn little number who does his own thing, but > yes yours will probably come into line soon. The TSH will > probably then follow. > > The results are good, although you're at the bouncy, hot and > sweaty end of normal still. > > One other thing is don't be too disappointed if the numbers > wander a little now they are closer to normal. Although the > symptoms get easier, it is harder to make fine adjustments, and > you may have the odd worse " result " now and then. > -----BEGIN PGP SIGNATURE----- > Version: GnuPG v1.2.1 (GNU/Linux) > Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org > > iD8DBQE+HfxXGFXfHI9FVgYRApM2AKCFhO9crf14ZI1QOupD8hxJ4eBxwgCgl//u > 0f1N0IEoBa4KYgH/k59ooOo= > =HOt2 > -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Looks good to me, Clair. I hope they keep you on the same dose. FT3 is often slower to fall so nothing to worry about. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Looks good to me, Clair. I hope they keep you on the same dose. FT3 is often slower to fall so nothing to worry about. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi Vic, Your responding nicely to the MMI and I question his orders to have you increase it to 50mg. The 30mg WILL continue to lower your numbers. It has been 2 weeks since your last labs and your numbers are probably much lower than they were when taken. You might want to hold off on the increase until you have your next set of labs so you don't go hypO. When are you scheduled to see him again, and when are you scheduled for new labs? If you do go with the increase, please, be on the look out for hypO symptoms and at the very first sign of them, call and get labs immediately. Take your worst hyper day and multiply that by 10 and you will understand how much worse hypO can be, in my opinion. Good luck and am glad to see you are responding so well. Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi Vic, Please refer to ALL hyper information everywhere. It takes four to eight weeks for anti thyroid meds to start working. (Unless the patient has only slightly hyper numbers )You are only at four weeks. And this doctor is jumping the gun, IMHO. Best you keep an eye on him since this could be a sign of things to come. Your past research IS going to be very important now. Keep learning. The meds can only stop new hormone from being produced, it can NOT use up all the excess already in your body. this extra hormone must simply be used up, and that takes time. Increasing the dose is not a good idea in MY experience. Or...you can go with it, get a good taste of hypo symptoms and then know for sure exactly how hypo feels for YOU. In a way, this IS useful information for the future. We each must find our own path. -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi Vic, Please refer to ALL hyper information everywhere. It takes four to eight weeks for anti thyroid meds to start working. (Unless the patient has only slightly hyper numbers )You are only at four weeks. And this doctor is jumping the gun, IMHO. Best you keep an eye on him since this could be a sign of things to come. Your past research IS going to be very important now. Keep learning. The meds can only stop new hormone from being produced, it can NOT use up all the excess already in your body. this extra hormone must simply be used up, and that takes time. Increasing the dose is not a good idea in MY experience. Or...you can go with it, get a good taste of hypo symptoms and then know for sure exactly how hypo feels for YOU. In a way, this IS useful information for the future. We each must find our own path. -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 Hi Vic, Please refer to ALL hyper information everywhere. It takes four to eight weeks for anti thyroid meds to start working. (Unless the patient has only slightly hyper numbers )You are only at four weeks. And this doctor is jumping the gun, IMHO. Best you keep an eye on him since this could be a sign of things to come. Your past research IS going to be very important now. Keep learning. The meds can only stop new hormone from being produced, it can NOT use up all the excess already in your body. this extra hormone must simply be used up, and that takes time. Increasing the dose is not a good idea in MY experience. Or...you can go with it, get a good taste of hypo symptoms and then know for sure exactly how hypo feels for YOU. In a way, this IS useful information for the future. We each must find our own path. -Pam L- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Thank you, Jody and Pam L., for your comments. I don't know how many Grave's patients my GP has monitored. I did think that the increase was a bit steep, but I am going to go ahead and do it, and like Pam L. said, find out what the other side of the coin is going to be like for me. I already figured out that I am not going to be able to have the ideal of staying home and weathering any problems in comfort, so I will have to learn to deal with this disease while I am at work. The other reason I am going to go ahead with the 50 mg is that I don't want to go against what the GP recommends. It just isn't the way I want to deal with this on an ongoing basis. If many problems arise and he does not respond properly, then I will rethink what I am going to do. I will be seeing him again on March 25 and will have the labs done on March 15. Of course, if I run into difficulties before that time, I will make an earlier appointment. It's nice, on one hand, to have a disease where labs can tell us something of what is going on, but, on the other hand, this disease is a bit too fiddly for my tastes. It is not as straightforward as I would wish it to be. Well, too bad for me, eh? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Thank you, Jody and Pam L., for your comments. I don't know how many Grave's patients my GP has monitored. I did think that the increase was a bit steep, but I am going to go ahead and do it, and like Pam L. said, find out what the other side of the coin is going to be like for me. I already figured out that I am not going to be able to have the ideal of staying home and weathering any problems in comfort, so I will have to learn to deal with this disease while I am at work. The other reason I am going to go ahead with the 50 mg is that I don't want to go against what the GP recommends. It just isn't the way I want to deal with this on an ongoing basis. If many problems arise and he does not respond properly, then I will rethink what I am going to do. I will be seeing him again on March 25 and will have the labs done on March 15. Of course, if I run into difficulties before that time, I will make an earlier appointment. It's nice, on one hand, to have a disease where labs can tell us something of what is going on, but, on the other hand, this disease is a bit too fiddly for my tastes. It is not as straightforward as I would wish it to be. Well, too bad for me, eh? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Thank you, Jody and Pam L., for your comments. I don't know how many Grave's patients my GP has monitored. I did think that the increase was a bit steep, but I am going to go ahead and do it, and like Pam L. said, find out what the other side of the coin is going to be like for me. I already figured out that I am not going to be able to have the ideal of staying home and weathering any problems in comfort, so I will have to learn to deal with this disease while I am at work. The other reason I am going to go ahead with the 50 mg is that I don't want to go against what the GP recommends. It just isn't the way I want to deal with this on an ongoing basis. If many problems arise and he does not respond properly, then I will rethink what I am going to do. I will be seeing him again on March 25 and will have the labs done on March 15. Of course, if I run into difficulties before that time, I will make an earlier appointment. It's nice, on one hand, to have a disease where labs can tell us something of what is going on, but, on the other hand, this disease is a bit too fiddly for my tastes. It is not as straightforward as I would wish it to be. Well, too bad for me, eh? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 vscottbo wrote: > > I will be seeing him again on March 25 and will have the labs done on > March 15. Of course, if I run into difficulties before that time, I > will make an earlier appointment. Not sure of the merits or otherwise of 50mg, but you should be tested at least every 4 weeks at these kind of levels. No if's or but's. Unless I overslept, March 15th is 8 weeks, or 10 since the last test. Hypo may seem a long way away, but it creeps up pretty quick once the dose is sufficient. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+I+VnGFXfHI9FVgYRAkLkAJ4rmuJK4waHM3HZfnPvwlTqQK2C9QCglfiv 3yjh9guS6IWyC+RNZxBF+/8= =QU15 -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 vscottbo wrote: > > I will be seeing him again on March 25 and will have the labs done on > March 15. Of course, if I run into difficulties before that time, I > will make an earlier appointment. Not sure of the merits or otherwise of 50mg, but you should be tested at least every 4 weeks at these kind of levels. No if's or but's. Unless I overslept, March 15th is 8 weeks, or 10 since the last test. Hypo may seem a long way away, but it creeps up pretty quick once the dose is sufficient. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+I+VnGFXfHI9FVgYRAkLkAJ4rmuJK4waHM3HZfnPvwlTqQK2C9QCglfiv 3yjh9guS6IWyC+RNZxBF+/8= =QU15 -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 vscottbo wrote: > > I will be seeing him again on March 25 and will have the labs done on > March 15. Of course, if I run into difficulties before that time, I > will make an earlier appointment. Not sure of the merits or otherwise of 50mg, but you should be tested at least every 4 weeks at these kind of levels. No if's or but's. Unless I overslept, March 15th is 8 weeks, or 10 since the last test. Hypo may seem a long way away, but it creeps up pretty quick once the dose is sufficient. -----BEGIN PGP SIGNATURE----- Version: GnuPG v1.2.1 (GNU/Linux) Comment: Using GnuPG with Mozilla - http://enigmail.mozdev.org iD8DBQE+I+VnGFXfHI9FVgYRAkLkAJ4rmuJK4waHM3HZfnPvwlTqQK2C9QCglfiv 3yjh9guS6IWyC+RNZxBF+/8= =QU15 -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 Hi, I'm " tuning in " late here on this subject, and I don't have time to write too much because my husband is having surgery tomorrow and I'm swamped, BUT my first endo put me on 60 mg of tap and I ended up in the ER, severly HYPO. Please please be careful taking such a high dose of tap. My second endo told me than anything over 40mg is an overdose. You might want to double check with your GP...have him/her do a little research before taking 50mg for any length of time. I wouldn't wish anyone to go through what I did....it was really bad. Good luck and be careful... Kristi Re: Lab Results > Thank you, Jody and Pam L., for your comments. I don't know how many > Grave's patients my GP has monitored. I did think that the increase > was a bit steep, but I am going to go ahead and do it, and like Pam > L. said, find out what the other side of the coin is going to be like > for me. I already figured out that I am not going to be able to have > the ideal of staying home and weathering any problems in comfort, so > I will have to learn to deal with this disease while I am at work. > > The other reason I am going to go ahead with the 50 mg is that I > don't want to go against what the GP recommends. It just isn't the > way I want to deal with this on an ongoing basis. If many problems > arise and he does not respond properly, then I will rethink what I am > going to do. > > I will be seeing him again on March 25 and will have the labs done on > March 15. Of course, if I run into difficulties before that time, I > will make an earlier appointment. > > It's nice, on one hand, to have a disease where labs can tell us > something of what is going on, but, on the other hand, this disease > is a bit too fiddly for my tastes. It is not as straightforward as I > would wish it to be. Well, too bad for me, eh? > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi , PTU is helping to suppress your TSI level. Without the PTU it's likely that your TSI level will rise and your hyper symptoms will return. People who are truly normal have TSI levels of <2% activity. You want your TSI to be somewhere in that range before stopping PTU. Rather than decrease your PTU dose, you may want to ask about adding a small amount of thryoid hormone. This protocol is block and replace and it helps suppress the thyroid gland even more than PTU alone. This will help slow your thyroid gland and antibody production down faster. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2003 Report Share Posted March 27, 2003 Hi , PTU is helping to suppress your TSI level. Without the PTU it's likely that your TSI level will rise and your hyper symptoms will return. People who are truly normal have TSI levels of <2% activity. You want your TSI to be somewhere in that range before stopping PTU. Rather than decrease your PTU dose, you may want to ask about adding a small amount of thryoid hormone. This protocol is block and replace and it helps suppress the thyroid gland even more than PTU alone. This will help slow your thyroid gland and antibody production down faster. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Hi - One other thing. Even if your TSI level is low. TSI antibodies can stay in the thyroid and not be circulating much since antibodies tend to be found at the site where the antigen is presenting. In this case, it's a mistake since your thyroid isn't a foreign antigen. This is why hyperthyroid Graves' patients can still have normal TSI levels and Elaine told you that TSI needs to be less than 2%. Take care, dx & RAI 1987 (at age 24) > I *finally* got the elusive TSI test...now can someone shed some > light on all of this? I'm so confused! My background, diagnosed in > 1997, been on PTU. Currently on 50mg. which I split in half to take > 1/2 in am, 1/2 in pm. I currently take a liquid mineral supplement > and caltrate. > > 3/13/03 > Free T3 301 (normal 225-370) > Free T4 1.2 (normal 0.8-1.4) > TSH 1.073 (normal 0.3-4.0) > TSI 91 (reference range: <125) > > The only thing tested on 10/15/02 was TSH: > TSH 1.040 (normal 0.4-5.0) > > My endo wrote a note saying that even though my TSI was " normal " > she's seen that in Graves patients. > > What the heck does all this mean? I see my endo in April, I'm hoping > to go off the PTU. If I do go off the PTU is there a chance I could > get worse where I couldn't control my symptoms with the PTU? I just > feel like I'm crazy. I'm so tired all the time and cold (hypo?) but > then the littlest things set me off and my mind feels like it never > shuts down (hyper?). > > I'd appreciate any input, I'm really at a loss to what all this means. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Hi - One other thing. Even if your TSI level is low. TSI antibodies can stay in the thyroid and not be circulating much since antibodies tend to be found at the site where the antigen is presenting. In this case, it's a mistake since your thyroid isn't a foreign antigen. This is why hyperthyroid Graves' patients can still have normal TSI levels and Elaine told you that TSI needs to be less than 2%. Take care, dx & RAI 1987 (at age 24) > I *finally* got the elusive TSI test...now can someone shed some > light on all of this? I'm so confused! My background, diagnosed in > 1997, been on PTU. Currently on 50mg. which I split in half to take > 1/2 in am, 1/2 in pm. I currently take a liquid mineral supplement > and caltrate. > > 3/13/03 > Free T3 301 (normal 225-370) > Free T4 1.2 (normal 0.8-1.4) > TSH 1.073 (normal 0.3-4.0) > TSI 91 (reference range: <125) > > The only thing tested on 10/15/02 was TSH: > TSH 1.040 (normal 0.4-5.0) > > My endo wrote a note saying that even though my TSI was " normal " > she's seen that in Graves patients. > > What the heck does all this mean? I see my endo in April, I'm hoping > to go off the PTU. If I do go off the PTU is there a chance I could > get worse where I couldn't control my symptoms with the PTU? I just > feel like I'm crazy. I'm so tired all the time and cold (hypo?) but > then the littlest things set me off and my mind feels like it never > shuts down (hyper?). > > I'd appreciate any input, I'm really at a loss to what all this means. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 Thank you so much for your explanation, Elaine. I have such a hard time understanding what's going on or what to do. I'll definitely bring up the thyroid hormone to my endo in April. I really appreciate your response! > Hi , > PTU is helping to suppress your TSI level. Without the PTU it's likely that > your TSI level will rise and your hyper symptoms will return. People who are > truly normal have TSI levels of <2% activity. You want your TSI to be > somewhere in that range before stopping PTU. Rather than decrease your PTU > dose, you may want to ask about adding a small amount of thryoid hormone. > This protocol is block and replace and it helps suppress the thyroid gland > even more than PTU alone. This will help slow your thyroid gland and antibody > production down faster. Take care, Elaine > > > Quote Link to comment Share on other sites More sharing options...
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