Return from Mayo (Kleins)

[Guest guest]

The trip was tiring and I think all the traveling has caught up to me. I am experiencing lots of muscle pain and weakness. I am very exhausted and have been resting most of yesterday and today but wanted to update you all. I did enjoy meeting both Heidi and Krystena and their families. Heidi stayed at the same hotel so her son and Asenath played together in the water while us adults were able to talk. I met Krystena at the hospital for a brief time as well and although not much time together, enjoyed the visit. As far as Asenath, she had another small stroke episode about two weeks ago and so the doctors want us to remain at the same steroid level rather than reduce monthly for now. We also will be repeating her brain scans one month earlier than planned so will need to return in April for those. Her Carnitine and acidosis issues were a little worse so we are increasing her meds again also. Disappointing visit for her, but nice to know the docs are on top of everything with her. Tirzah's tests came back pretty normal so no Mito signs. This was great news! Luke had basic blood tests done and an eye examination and I will let you know the results when we hear back. He does need glasses and no help was really given concerning his vision loss when he looks up. Zipporrah continues to have her tight muscles and left-sided issues and has begun her Carnitine and COQ10 as well as some Prilosec for reflux. Weekly therapy has begun. Disappointingly, I heard back from several abnormal tests for myself as well. I had a high lactic acid level drawn on Tuesday (as well as several other abnormal tests) so it was repeated Wednesday along with lots of other tests, and I am assuming due to my weakened condition with lots of muscle pain that the lactic acid is on the rise. Dr. Whiteman also noticed something he had missed from last October that concerned him and so I will be seeing a Cardiologist in the next month or so as well as a GI doctor for possible pancreatitis issues. (I have been having severe upper abdomen/chest pains for the past 5 1/2 months with lots of acid/burning and pain radiating through to my back) The EKG I did last October suggested the possibility of a possible small past heart attack so as precaution I will see a Cardiologist, although my heart ultrasound was normal. I also plan to talk to that doctor about my blood pressure drops when first standing or bending over and back up causing blackouts. Lots of information to digest from the last several trips and I feel a little overloaded with it all. Trying to digest it all and remember the important stuff. I am glad to be home! Bed, here I come! Darla: mommy to Asenath, Zipporrah, and the other 7 kiddosGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com