Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hey guys: It is a bad day and was just wondering if anyone was awake. I have been feeling pretty bad lately with a lot of headaches and fatigue and just wonder how many more days this particular "session" is going to last. I haven't been out of the house on my own since last Monday and I hate it when I have to be dependent on someone to take me out of this place. My husband has been running me out of the house with the heater and I can't get him to understand that my "thermostat" is broken right now and he needs to cut me a break. One minute I am freezing the next I am sweating bullets. What is this all about? I know that my situation is not as bad as some; I don't have a malfunctioning pacemaker, I don't in another county without my family etc....but I feel the worst I have ever felt and I am scared. I have been coughing this strange little cough off and on and I have a little nodule on my chest that is very painful. Why can't anyone help me? I guess the more important this is why won't anyone help me? Stop the world I want to get Off??? I wish that I could say the things to the people around me that I can say to you guys. They would wrap me up and put me away. But this is such a great forum for me to be able to just say what is on my mind without any repercussions. Why can't they just look deep down and find some compassion and just listen when I need it. Everything I do in my life has to revolve around someone else's. I would just like to take some control back. Does anyone else feel like this. Well, I am going to go shower. Maybe this will help me feel better. Thanks for letting me get this bullcrap off my chest. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Terri, I can't tell you how long this "flare" is going to last. If you are developing a cough, running a fever--going from hot to cold--get in and see your MD. You may be coming down with something--and since you're on immunesupressants--you need to be aggressive in seeking help when you start to get symptoms that somethings not right. As far as having a group to vent with-- well-- we are here. I know that many of us need a good rant-- I'm due one myself. . . Hang in there, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 , Thanks for your support. Terri > > Terri.. > > here.. and i am so sorry to hear your feeling so bad.. i will send > some prayers for you.. > > and no need to thank us for listening to you. that's what were all here for. > > blessings and many (((((((()))))) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Irene, Glad to know I am not alone. Thanks for responding. I will pray for you. terri g > > > > > > Hey guys: > > > > It is a bad day and was just wondering if anyone was awake. I have > been > > feeling pretty bad lately with a lot of headaches and fatigue and > just > > wonder how many more days this particular " session " is going to > last. I > > haven't been out of the house on my own since last Monday and I > hate it > > when I have to be dependent on someone to take me out of this place. > > > > My husband has been running me out of the house with the heater and > I > > can't get him to understand that my " thermostat " is broken right > now and > > he needs to cut me a break. One minute I am freezing the next I am > > sweating bullets. [Nervous] > > http://www.smileycentral.com/?partner=ZSzeb001_ZS> What is this > all > > about? I know that my situation is not as bad as some; I don't > have a > > malfunctioning pacemaker, I don't in another county without my > family > > etc....but I feel the worst I have ever felt and I am scared. I > have > > been coughing this strange little cough off and on and I have a > little > > nodule on my chest that is very painful. Why can't anyone help > me? I > > guess the more important this is why won't anyone help me? Stop > the > > world I want to get Off??? > > > > I wish that I could say the things to the people around me that I > can > > say to you guys. They would wrap me up and put me away. But this > is > > such a great forum for me to be able to just say what is on my mind > > without any repercussions. Why can't they just look deep down and > find > > some compassion and just listen when I need it. Everything I do in > my > > life has to revolve around someone else's. I would just like to > take > > some control back. Does anyone else feel like this. > > > > Well, I am going to go shower. Maybe this will help me feel better. > > > > Thanks for letting me get this bullcrap off my chest. > > > > Terri G. > > > > > > > > http://www.smileycentral.com/?partner=ZSzeb068_ZS> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Terri, at least in the shower you can scream as much as you want! I also notice that you are stepping up your training for Rant Championship. Extra points for the graphics and use of bold type plus underline! Rant Score: 6.0 for content. 6.5 for presentation. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: anybody out there?Date: Mon, 27 Mar 2006 19:41:33 -0000 Hey guys: It is a bad day and was just wondering if anyone was awake. I have been feeling pretty bad lately with a lot of headaches and fatigue and just wonder how many more days this particular "session" is going to last. I haven't been out of the house on my own since last Monday and I hate it when I have to be dependent on someone to take me out of this place. My husband has been running me out of the house with the heater and I can't get him to understand that my "thermostat" is broken right now and he needs to cut me a break. One minute I am freezing the next I am sweating bullets. What is this all about? I know that my situation is not as bad as some; I don't have a malfunctioning pacemaker, I don't in another county without my family etc....but I feel the worst I have ever felt and I am scared. I have been coughing this strange little cough off and on and I have a little nodule on my chest that is very painful. Why can't anyone help me? I guess the more important this is why won't anyone help me? Stop the world I want to get Off??? I wish that I could say the things to the people around me that I can say to you guys. They would wrap me up and put me away. But this is such a great forum for me to be able to just say what is on my mind without any repercussions. Why can't they just look deep down and find some compassion and just listen when I need it. Everything I do in my life has to revolve around someone else's. I would just like to take some control back. Does anyone else feel like this. Well, I am going to go shower. Maybe this will help me feel better. Thanks for letting me get this bullcrap off my chest. Terri G.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Terri, at least in the shower you can scream as much as you want! I also notice that you are stepping up your training for Rant Championship. Extra points for the graphics and use of bold type plus underline! Rant Score: 6.0 for content. 6.5 for presentation. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: anybody out there?Date: Mon, 27 Mar 2006 19:41:33 -0000 Hey guys: It is a bad day and was just wondering if anyone was awake. I have been feeling pretty bad lately with a lot of headaches and fatigue and just wonder how many more days this particular "session" is going to last. I haven't been out of the house on my own since last Monday and I hate it when I have to be dependent on someone to take me out of this place. My husband has been running me out of the house with the heater and I can't get him to understand that my "thermostat" is broken right now and he needs to cut me a break. One minute I am freezing the next I am sweating bullets. What is this all about? I know that my situation is not as bad as some; I don't have a malfunctioning pacemaker, I don't in another county without my family etc....but I feel the worst I have ever felt and I am scared. I have been coughing this strange little cough off and on and I have a little nodule on my chest that is very painful. Why can't anyone help me? I guess the more important this is why won't anyone help me? Stop the world I want to get Off??? I wish that I could say the things to the people around me that I can say to you guys. They would wrap me up and put me away. But this is such a great forum for me to be able to just say what is on my mind without any repercussions. Why can't they just look deep down and find some compassion and just listen when I need it. Everything I do in my life has to revolve around someone else's. I would just like to take some control back. Does anyone else feel like this. Well, I am going to go shower. Maybe this will help me feel better. Thanks for letting me get this bullcrap off my chest. Terri G.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Rose, As a child of an alcoholic, I am very good at veiling my emotions. You would really be suprised what is in my head that does not make it here. I wouldn't want to get kicked out of the group! Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Terri, a few years ago, when I was fairly new to the group, I wrote a message with every cuss word in the book--real words, no #!"($. I'm still here! Some people were a little shocked, because they thought I was such a "nice" person. Now they all know better. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: anybody out there?Date: Tue, 28 Mar 2006 12:23:43 -0000 Rose, As a child of an alcoholic, I am very good at veiling my emotions. You would really be suprised what is in my head that does not make it here. I wouldn't want to get kicked out of the group! Terri G. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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