Re: Re: CoQ10 Medicaid NDA #-Insurance Appeal

[Guest guest]

We get all of our meds/vitamins from the Mayo pharmacy except for our Topamax and steroids. What I am wondering is if Medicaid will automatically cover the meds from Mayo or if we will have to do something special to get them covered. I really like getting my stuff from Mayo as they are able to ship it to me if I can't pick them up. I am not worried about coverage og meds, but am wondering about the vitamins (COQ10, Carnitine, B2, etc.). Darla: mommy to Asenath and the gang Re: CoQ10 Insurance Appeal> > This is what I found so far. > I am sure the rest of the quantities have them too> I just haven't found out what the NDC numbers are yet.> I know most larger pharmacies have these numbers, I hate > when they make it impossible to get what we need!> Hope this helps.> > CoEnzyme Q-10> NDC Number Quantity> 62991-1343-01 5GM> 62991-1343-02 25GM> 62991-1343-03 100GM> > AnnMarie- Complex IV> Married to my best friend Rick, mom of (14), (11),> Cassandra(5 1/2)> and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,> dysautonomia, and a smile that never quits :-)> > > > > > > ---> > I was able to get the approval for CoQ10 from Medicaide with thehelp > > of a letter from Dr. Korson and an explanation of how CoQ10 works > > with the mitochondria, from Austen's neurologist, Dr. Anselm. This > > was in July of 2003. To this date I have still not been able to get > > it from the pharmacy (who has been as helpful as possible).Everytime > > I have tried to talk to someone at Masshealth, I am given the > > runaround. No one seems to know the "code",or...number in the > > pharmacy book....I can't find anyone who will help me out and talkto > > me in a language I can understand! I think that they make it sohard, > > in hoping we will give up! Does anyone have a pharmacy code for > > CoQ10 -because it is a vitamin, it doesn't have a drug code!? I > > haven't given up yet but am getting tired of the struggle!> > > > Gwen> > mom to Austen GA2> > > > > Please contact mito-owner with any problems orquestions. > >

[Guest guest]

We get all of our meds/vitamins from the Mayo pharmacy except for our Topamax and steroids. What I am wondering is if Medicaid will automatically cover the meds from Mayo or if we will have to do something special to get them covered. I really like getting my stuff from Mayo as they are able to ship it to me if I can't pick them up. I am not worried about coverage og meds, but am wondering about the vitamins (COQ10, Carnitine, B2, etc.). Darla: mommy to Asenath and the gang Re: CoQ10 Insurance Appeal> > This is what I found so far. > I am sure the rest of the quantities have them too> I just haven't found out what the NDC numbers are yet.> I know most larger pharmacies have these numbers, I hate > when they make it impossible to get what we need!> Hope this helps.> > CoEnzyme Q-10> NDC Number Quantity> 62991-1343-01 5GM> 62991-1343-02 25GM> 62991-1343-03 100GM> > AnnMarie- Complex IV> Married to my best friend Rick, mom of (14), (11),> Cassandra(5 1/2)> and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,> dysautonomia, and a smile that never quits :-)> > > > > > > ---> > I was able to get the approval for CoQ10 from Medicaide with thehelp > > of a letter from Dr. Korson and an explanation of how CoQ10 works > > with the mitochondria, from Austen's neurologist, Dr. Anselm. This > > was in July of 2003. To this date I have still not been able to get > > it from the pharmacy (who has been as helpful as possible).Everytime > > I have tried to talk to someone at Masshealth, I am given the > > runaround. No one seems to know the "code",or...number in the > > pharmacy book....I can't find anyone who will help me out and talkto > > me in a language I can understand! I think that they make it sohard, > > in hoping we will give up! Does anyone have a pharmacy code for > > CoQ10 -because it is a vitamin, it doesn't have a drug code!? I > > haven't given up yet but am getting tired of the struggle!> > > > Gwen> > mom to Austen GA2> > > > > Please contact mito-owner with any problems orquestions. > >

[Guest guest]

I talked to the Kentucky Medicaid people last week about getting CoQ 10

covered for ,I was told the NDC # didn't mean anything to them.They

will only cover meds that they can get a rebate back from the company,

whether it has an NDC # or not.

All 's meds were covered under EPSDT until she turned 21 last month.

That a special part of Medicaid for children under 21.

For those who have children under 21,maybe your state has a semilar program.

Also, my husband talked to our CPA last week,we were told that since

is still counted as our dependent, because of her disability, we can count

her meds on our income tax.

,Mom to

Re: CoQ10 Insurance Appeal

> >

> > This is what I found so far.

> > I am sure the rest of the quantities have them too

> > I just haven't found out what the NDC numbers are yet.

> > I know most larger pharmacies have these numbers, I hate

> > when they make it impossible to get what we need!

> > Hope this helps.

> >

> > CoEnzyme Q-10

> > NDC Number Quantity

> > 62991-1343-01 5GM

> > 62991-1343-02 25GM

> > 62991-1343-03 100GM

> >

> > AnnMarie- Complex IV

> > Married to my best friend Rick, mom of (14), (11),

> > Cassandra(5 1/2)

> > and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,

> > dysautonomia, and a smile that never quits :-)

> >

> >

> >

> >

> >

> >

> > ---

> > > I was able to get the approval for CoQ10 from Medicaide with the

> help

> > > of a letter from Dr. Korson and an explanation of how CoQ10 works

> > > with the mitochondria, from Austen's neurologist, Dr. Anselm. This

> > > was in July of 2003. To this date I have still not been able to get

> > > it from the pharmacy (who has been as helpful as possible).

> Everytime

> > > I have tried to talk to someone at Masshealth, I am given the

> > > runaround. No one seems to know the " code " ,or...number in the

> > > pharmacy book....I can't find anyone who will help me out and talk

> to

> > > me in a language I can understand! I think that they make it so

> hard,

> > > in hoping we will give up! Does anyone have a pharmacy code for

> > > CoQ10 -because it is a vitamin, it doesn't have a drug code!? I

> > > haven't given up yet but am getting tired of the struggle!

> > >

> > > Gwen

> > > mom to Austen GA2

> > >

> >

> >

> > Please contact mito-owner with any problems or

> questions.

> >

> >

[Guest guest]

I talked to the Kentucky Medicaid people last week about getting CoQ 10

covered for ,I was told the NDC # didn't mean anything to them.They

will only cover meds that they can get a rebate back from the company,

whether it has an NDC # or not.

All 's meds were covered under EPSDT until she turned 21 last month.

That a special part of Medicaid for children under 21.

For those who have children under 21,maybe your state has a semilar program.

Also, my husband talked to our CPA last week,we were told that since

is still counted as our dependent, because of her disability, we can count

her meds on our income tax.

,Mom to

Re: CoQ10 Insurance Appeal

> >

> > This is what I found so far.

> > I am sure the rest of the quantities have them too

> > I just haven't found out what the NDC numbers are yet.

> > I know most larger pharmacies have these numbers, I hate

> > when they make it impossible to get what we need!

> > Hope this helps.

> >

> > CoEnzyme Q-10

> > NDC Number Quantity

> > 62991-1343-01 5GM

> > 62991-1343-02 25GM

> > 62991-1343-03 100GM

> >

> > AnnMarie- Complex IV

> > Married to my best friend Rick, mom of (14), (11),

> > Cassandra(5 1/2)

> > and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,

> > dysautonomia, and a smile that never quits :-)

> >

> >

> >

> >

> >

> >

> > ---

> > > I was able to get the approval for CoQ10 from Medicaide with the

> help

> > > of a letter from Dr. Korson and an explanation of how CoQ10 works

> > > with the mitochondria, from Austen's neurologist, Dr. Anselm. This

> > > was in July of 2003. To this date I have still not been able to get

> > > it from the pharmacy (who has been as helpful as possible).

> Everytime

> > > I have tried to talk to someone at Masshealth, I am given the

> > > runaround. No one seems to know the " code " ,or...number in the

> > > pharmacy book....I can't find anyone who will help me out and talk

> to

> > > me in a language I can understand! I think that they make it so

> hard,

> > > in hoping we will give up! Does anyone have a pharmacy code for

> > > CoQ10 -because it is a vitamin, it doesn't have a drug code!? I

> > > haven't given up yet but am getting tired of the struggle!

> > >

> > > Gwen

> > > mom to Austen GA2

> > >

> >

> >

> > Please contact mito-owner with any problems or

> questions.

> >

> >

[Guest guest]

Hi Kass,

>FWIW, we've been writing off our CoQ10 and other supplements that have

>been prescribed by the doctor for a few years now with no problem. We

>were told that as long as we have a prescription for it from the doctor

>and reciepts for the purchase, in case the IRS asks for it, we should be

>fine.

Thanks for making the point that you are writing it off as a supplement

rather than a medicine! That seems to be the key in having it count.

Here's the info from the IRS on supplements if anyone would like to see

how they explain it:

Nutritional Supplements

You cannot include in medical expenses the cost of

nutritional supplements, vitamins, herbal supplements,

inatural medicines,i etc. unless they are recommended

by a medical practitioner as treatment for a specific

medical condition diagnosed by a physician. Otherwise,

these items are taken to maintain your ordinary good

health, and are not for medical care.

Here's the link I copied that from:

http://www.irs.gov/publications/p502/ar02.html#d0e205

Here's what the IRS says about over the counter drugs:

The law limits the deduction for medicine or drugs to

insulin and those drugs that require a prescription.

Even when recommended by a doctor, medicines available

over-the-counter are not deductible.

Here's the link I copied that from:

http://www.irs.gov/newsroom/article/0,,id=109652,00.html

>We write off some of our other OTC medical supplies and all

>expenses for getting to medical appointments (gas and the like for the

>local ones, all the rest when we go out of town) also and I even have a

>friend that writes of her bottled water because it was prescribed as

>needed for the kids due to the risk of dehydration. Key seems to be

>having the prescription and I suppose there is always the chance that

>questions might be asked by the IRS, but atleast so far we've been fine.

>

>-- BIG hugs,

>Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(5-Mito)

>Home Page (http://home.swbell.net/mcpoop/index1.htm)

>Updates (http://www.caringbridge.org/tx/mitowhat/)

>United Mitochondrial Disease Foundation (http://www.umdf.org)

> " Life is not about the breaths we take, but the moments that take our

>breath away " Unknown

>

>31528@... wrote:

>

>> ,

>>

>> >Also, my husband talked to our CPA last week,we were told that since

>>

>> >is still counted as our dependent, because of her disability, we can

>> count

>> >her meds on our income tax.

>>

>> I'd be surprised if this included the CoQ10, though, since it's over

>> the

>> counter instead of by prescription only. And I don't think you can

>> get

>> around that by having a doctor write a prescription for it,

>> either--it's

>> the fact that it's available over the counter that matters to the IRS,

>>

>> not whether it was prescribed.

>>

>> -- Mom to:

>> Emilie (17), mito--complex IV, cp, ld

>> Kaitlin (17), cp, asthma, a few autonomic symptoms

>> Ian (22) migraines

>> ...and wife to Tim, who has a heart of gold

>

>

>

>

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>Date: Wed, 21 Jan 2004 13:04:14 -0600

>Subject: Re: Re: CoQ10 Medicaid NDA #-Insurance Appeal

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[Guest guest]

,

>We were told it did not matter if it was an over the counter med, if

>Medicaid doesn't cover it we can still count it.

>We have never counted things that weren't covered before so maybe this a

>change in the IRS rules.

We've been told for years that over the counter medicines did *not* count

on taxes, even when prescribed. Since the document I quoted in my post

was a " clarification " of an existing rule, I suspect people have

interpreted the rule two different ways in the past--including your tax

preparer and mine, apparently!--and the IRS finally recognized it needed

to explain the rule better.

BTW, does Kentucky Medicaid cover any over the counter meds? I just

found out last year that Indiana Medicaid does cover a select list of

them (don't know if this was new or if I just didn't know about it

before).

-- Mom to:

Emilie (17), mito--complex IV, cp, ld

Kaitlin (17), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold

[Guest guest]

AnnMarie,

>Where can I find a list of OTC that Indiana Medicaid pays for?

Our pharmacist said they didn't know what meds were on the list--that if

we had a prescription for an over the counter med, they'd just have to

" run it through the system " and see if it got approved. Seemed kind of

crazy to me. There's got to be a list somewhere, but I don't know where.

Sorry I can't be more help.

-- Mom to:

Emilie (17), mito--complex IV, cp, ld

Kaitlin (17), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold

[Guest guest]

Hi ,

Where can I find a list of OTC that Indiana Medicaid pays for?

Thanks,

AnnMarie-

Complex IV

Married to my best

friend Rick, mom of (14), (11), Cassandra(5 1/2)

and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome,

dysautonomia, and a smile that never quits

:-)

31528@... wrote:

,

>We were told it did not matter if it was an over the counter med, if

>Medicaid doesn't cover it we can still count it.

>We have never counted things that weren't covered before so maybe

this a

>change in the IRS rules.

We've been told for years that over the counter medicines did *not*

count

on taxes, even when prescribed. Since the document I quoted in my post

was a "clarification" of an existing rule, I suspect people have

interpreted the rule two different ways in the past--including your tax

preparer and mine, apparently!--and the IRS finally recognized it

needed

to explain the rule better.

BTW, does Kentucky Medicaid cover any over the counter meds? I just

found out last year that Indiana Medicaid does cover a select list of

them (don't know if this was new or if I just didn't know about it

before).

-- Mom to:

Emilie (17), mito--complex IV, cp, ld

Kaitlin (17), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold

[Guest guest]

,

I don't know, but 1 difference could also be that is 21,and doesn't

draw enough SSI to pay her non-covered meds without our help.

I know some rules are different for parents with disabled adult children.One

of those being that we can still count her as a dependent.

We paid for everything up until she was 18 but I don't remember what we were

allowed to count then.

,Mom to

Re: Re: CoQ10 Medicaid NDA #-Insurance Appeal

> ,

>

> >We were told it did not matter if it was an over the counter med, if

> >Medicaid doesn't cover it we can still count it.

> >We have never counted things that weren't covered before so maybe this a

> >change in the IRS rules.

>

> We've been told for years that over the counter medicines did *not* count

> on taxes, even when prescribed. Since the document I quoted in my post

> was a " clarification " of an existing rule, I suspect people have

> interpreted the rule two different ways in the past--including your tax

> preparer and mine, apparently!--and the IRS finally recognized it needed

> to explain the rule better.

>

> BTW, does Kentucky Medicaid cover any over the counter meds? I just

> found out last year that Indiana Medicaid does cover a select list of

> them (don't know if this was new or if I just didn't know about it

> before).

>

> -- Mom to:

> Emilie (17), mito--complex IV, cp, ld

> Kaitlin (17), cp, asthma, a few autonomic symptoms

> Ian (22) migraines

> ...and wife to Tim, who has a heart of gold

>

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

,

I don't know, but 1 difference could also be that is 21,and doesn't

draw enough SSI to pay her non-covered meds without our help.

I know some rules are different for parents with disabled adult children.One

of those being that we can still count her as a dependent.

We paid for everything up until she was 18 but I don't remember what we were

allowed to count then.

,Mom to

Re: Re: CoQ10 Medicaid NDA #-Insurance Appeal

> ,

>

> >We were told it did not matter if it was an over the counter med, if

> >Medicaid doesn't cover it we can still count it.

> >We have never counted things that weren't covered before so maybe this a

> >change in the IRS rules.

>

> We've been told for years that over the counter medicines did *not* count

> on taxes, even when prescribed. Since the document I quoted in my post

> was a " clarification " of an existing rule, I suspect people have

> interpreted the rule two different ways in the past--including your tax

> preparer and mine, apparently!--and the IRS finally recognized it needed

> to explain the rule better.

>

> BTW, does Kentucky Medicaid cover any over the counter meds? I just

> found out last year that Indiana Medicaid does cover a select list of

> them (don't know if this was new or if I just didn't know about it

> before).

>

> -- Mom to:

> Emilie (17), mito--complex IV, cp, ld

> Kaitlin (17), cp, asthma, a few autonomic symptoms

> Ian (22) migraines

> ...and wife to Tim, who has a heart of gold

>

>

>

> Please contact mito-owner with any problems or questions.

>

>