Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Dear Valina, The only test I had done was the mitochondrial DNA test in blood at the children’s hospital of L.A. where my daughter died. It came back 54% MUTATION IN THE BLOOD AT t8993c. Since then, I have not done any more tests and am not under treatment. Good luck, Suhad Haddad, Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.Samya.org Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 From: valina combs Sent: Tuesday, January 20, 2004 11:25 PM To: Mito Subject: Re: Paxil question/need info Suhad, Im sorry I don't have any information about paxil for you other that I was one it way before I even thought about having children. My daughter Maggie has T8993G mutation and I was wondering what test that they performed on you in order to see if you had it. I have personally had blood, hair and syliva test done and showed no signs in them but I am curious of how they found yours. Thank you, Valina Combs mother of Maggie 27 mos Leigh's syndrome email vcombs@... suhad1970@... wrote: I am an adult with 54%mutation at the T8993C mutation of mitochondrial disease. I am symptom free but have 2 girls with the severe form of this. I just recently started Paxil, the antidepressant 4 days ago because of all the difficulties I am dealing with. It just occurred to me that I should consider whether medications are safe for mito before taking them. I am not used to worrying about myself, only my daughter. I am wondering if anyone has been on Paxil and if the doctors consider it safe for mito? I would also like to know what your experience has been regarding side effects, and what they were. I would appreciate any input you may have because I am not under the care of any specialist for myself at the time. I am not considered sick enough to be under a doctors care for mito, but I do know I have some symptoms, but very minor. Thank you all, Suhad Haddad, Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna with same disease. Samya's Memorial Site: www.Samya.org Email: Suhad1970@... Alt Email: Suhad@... AiM Chat: Suhad1970 Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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