Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Hi Ruth, I am so glad you will be getting the Remicade! I will keep you in my thoughts and well wishes that it works for you. I have only had 2 infusions so far and will get my 3rd one on May 22nd. As you know, medicine affects everyone differently, but here is how my first one went! Mine took a total of 3 1/2 hours from beginning to end.....including setup (or prep) time. I was told to eat a good meal before the infusion and I did. When I was done, I was a little groggy but felt good. However, Tracie had told me NOT to go shopping or etc because I would regret it later..... the " feeling good " is really false energy. So.....my hubby took me out for lunch and we came straight home, which is an hour and a half drive. I slept all the way home, went to bed when I got home and slept all night. Slept most of the next 2 days and the 3rd day I went to church and then came home and slept all afternoon. After that, I was ok.... My second infusion was just the opposite! I could not sleep at all! I was up for 2 days straight without any sleep. I did develop a rash also but it only lasted a couple of days. I was fortunate in the fact that they gave me meds for my allergies and my stomach problems. I have a lot of allergies and they gave me meds both times. And.....I have a lot of stomach problems. I hope all goes well for you and I will be thinking of you. Just relax and let it happen........... Lots of hugs, Darlene NS Co-Owner/Moderator > > > > > Hi Everyone, > > Happy Mother's Day to all the ladies! > > I have been trying to look at past messages about how I should expect to > feel after my first Remicade infusion. I have my first one on Weds. > If any one has the time to tell me what their experiences was I 'd > appreciate it. Should I eat before I go? Will I need to come > straight home? Can I drive? I am sure I read this before, but my > brain is so foggy that I can't rememeber what was said. > > Thanks so much > > Ruth > > > > > > > > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.