Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Hi. I have had bad nerve damage in my lower left leg for several years as a result of my neurosarc. The leg is always numb and is getting worse, I have no strength at all. I cannot run or push off with my left leg at all, can't walk on uneven ground, causes balance problems, etc. Has anyone had and testing done to find out the extent of nerve damage? I have an appointment scheduled for this kind of testing this wednesday morning. Please if anyone can tell me anything about this it would be helpful to me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 hi my name is joe, and no i havnent had this type or any testing yet... could you plz tell me wht type of test they are doing to you . my neurologist doesnt seem to affected by my comments or request on such matters so if i can get the nme of it then i can ask him or my family doctor to do it..cant type anymore wrist are cramping up..thx and hagd Claude Manzanares wrote: Hi. I have had bad nerve damage in my lower left leg for several years as a result of my neurosarc. The leg is always numb and is getting worse, I have no strength at all. I cannot run or push off with my left leg at all, can't walk on uneven ground, causes balance problems, etc. Has anyone had and testing done to find out the extent of nerve damage? I have an appointment scheduled for this kind of testing this wednesday morning. Please if anyone can tell me anything about this it would be helpful to me. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 I have had the nerve conduction studies and also MRI's of both knees. The nerve conduction study showed Peroneal nerve damage and the MRI showed an enlarged peroneal nerve... Dr kept repeating the nerve test in my outer toes and that was a bit uncomfortable to have it done over and over but it was manageable. MRI's were just long and I don't do well in confined spaces. I have all the symptoms you had listed however my Rheumatologist only talks about neurosarcoid and won't confirm it. They say I have multisystem Sarcoidosis. He has never treated Sarcoidosis with Remicade before so he is a little lerry about doing it but I am still on for Weds. Good luck Ruth > > Hi. I have had bad nerve damage in my lower left leg for several years > as a result of my neurosarc. The leg is always numb and is getting > worse, I have no strength at all. I cannot run or push off with my > left leg at all, can't walk on uneven ground, causes balance problems, > etc. Has anyone had and testing done to find out the extent of nerve > damage? I have an appointment scheduled for this kind of testing this > wednesday morning. Please if anyone can tell me anything about this it > would be helpful to me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 I have had the nerve conduction studies and also MRI's of both knees. The nerve conduction study showed Peroneal nerve damage and the MRI showed an enlarged peroneal nerve... Dr kept repeating the nerve test in my outer toes and that was a bit uncomfortable to have it done over and over but it was manageable. MRI's were just long and I don't do well in confined spaces. I have all the symptoms you had listed however my Rheumatologist only talks about neurosarcoid and won't confirm it. They say I have multisystem Sarcoidosis. He has never treated Sarcoidosis with Remicade before so he is a little lerry about doing it but I am still on for Weds. Good luck Ruth > > Hi. I have had bad nerve damage in my lower left leg for several years > as a result of my neurosarc. The leg is always numb and is getting > worse, I have no strength at all. I cannot run or push off with my > left leg at all, can't walk on uneven ground, causes balance problems, > etc. Has anyone had and testing done to find out the extent of nerve > damage? I have an appointment scheduled for this kind of testing this > wednesday morning. Please if anyone can tell me anything about this it > would be helpful to me. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Joe, there are many good resources in the Links & Archives, which you will find at the bottom of each message, including this one. I know that with your difficulty typing, that's hard to do right now. Here are a couple of good sites. You can print out the info about testing & take it to your doctor. This one is for PCPs (Primary Care Providers). http://www.aafp.org/afp/981200ap/belfer.html This is from the National Heart, Lung and Blood Institute. You can print out info & also order a really great booklet that has resources for doctors. You can get one booklet for free. http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html Joe, I hope this helps. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: nerve damage testingDate: Mon, 15 May 2006 17:45:30 -0700 (PDT)hi my name is joe, and no i havnent had this type or any testing yet... could you plz tell me wht type of test they are doing to you . my neurologist doesnt seem to affected by my comments or request on such matters so if i can get the nme of it then i can ask him or my family doctor to do it..cant type anymore wrist are cramping up..thx and hagd Claude Manzanares wrote: Hi. I have had bad nerve damage in my lower left leg for several years as a result of my neurosarc. The leg is always numb and is getting worse, I have no strength at all. I cannot run or push off with my left leg at all, can't walk on uneven ground, causes balance problems, etc. Has anyone had and testing done to find out the extent of nerve damage? I have an appointment scheduled for this kind of testing this wednesday morning. Please if anyone can tell me anything about this it would be helpful to me. Thanks!~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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