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One of the first tests run when Calley was admitted to the hospital at 3.5 weeks of age for FTT was a spinal tap, also a blood test and a urine test, all three showed elevated lactic acid levels, this was a major symptom for Calley along with hypotonia.

Hope that helps. Happy New Year to everyone!

Best Wishes,

Colleen - Mom to Calley 6 (Mito - Complex IV, gtube, trach - decannulated 4/17/00)

Dylan 11 & 15

What sort of results show up on a spinal tap, for mito?

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> One of the first tests run when Calley was admitted to the hospital at 3.5

> weeks of age for FTT was a spinal tap, also a blood test and a urine test, all

> three showed elevated lactic acid levels, this was a major symptom for Calley

> along with hypotonia.

Thanks! Your response got me curious, so I went and looked up my son's LP

results. His low result was for IgG/Alb, CSF. Normal

is 0.9 - 2.5, and his was 0.8. So just a teeny bit low.

Hmm - he also had a high result, for RBC, CSF. Normal for that is 0 - 1, but

his says 223??? I didn't see that before - and apparently

the nurse who read me the results over the phone didn't either. I need to find

out what that means.

Lynne

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> One of the first tests run when Calley was admitted to the hospital at 3.5

> weeks of age for FTT was a spinal tap, also a blood test and a urine test, all

> three showed elevated lactic acid levels, this was a major symptom for Calley

> along with hypotonia.

Thanks! Your response got me curious, so I went and looked up my son's LP

results. His low result was for IgG/Alb, CSF. Normal

is 0.9 - 2.5, and his was 0.8. So just a teeny bit low.

Hmm - he also had a high result, for RBC, CSF. Normal for that is 0 - 1, but

his says 223??? I didn't see that before - and apparently

the nurse who read me the results over the phone didn't either. I need to find

out what that means.

Lynne

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> One of the first tests run when Calley was admitted to the hospital at 3.5

> weeks of age for FTT was a spinal tap, also a blood test and a urine test, all

> three showed elevated lactic acid levels, this was a major symptom for Calley

> along with hypotonia.

Thanks! Your response got me curious, so I went and looked up my son's LP

results. His low result was for IgG/Alb, CSF. Normal

is 0.9 - 2.5, and his was 0.8. So just a teeny bit low.

Hmm - he also had a high result, for RBC, CSF. Normal for that is 0 - 1, but

his says 223??? I didn't see that before - and apparently

the nurse who read me the results over the phone didn't either. I need to find

out what that means.

Lynne

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Thanks so much Heidi!

Hope you and yours have a wonderful New Year's as well!

Best Wishes,

Colleen - Mom to Calley 6 (Mito - Complex IV, gtube, trach - decannulated 4/17/00)

Dylan 11 & 15

Colleen, you have a beautiful family. Hope you and your family bring in a

Happy New Year!

Heidi Payton

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