Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Dear All, I had two issues going on simultaneously that support " Myvid's " story about hip disability vs. rosacea and their relative impact on her psyche. I had a cancer scare and a possible tooth/teeth extraction (periodontal disease) scare more or less as the same time. I was much more sanguine about the cancer scare than the tooth issues. The cancer was a problem to be solved, I was focussed but not sick with worry while the teeth issues made me weak in the knees with anxiety. Go figure. (Thankfully, both issues turned out to be false alarms in the end.) The only thing I can attribute it to is that we are probably " wired " to be concerned about keeping our appearances up because that is how we interact with the world. An analogy would be with the way that animals are stoical about pain and disability in order -- so it is believed -- to discourage predators who look for the weakest to attack. And too, we and other living beings must attract mates in order to propagate our species...looks are often a primary way that mates are selected on an unconscious level as well as conscious -- with the emphasis on health/fertility which is confirmed by " looks " . It is not all vanity in the shallow sense. I think there just may be some brain programming that pre-disposes us to be scrupulous about our " face to the world " in the literal and figurative sense. Sallie myvid@... wrote: > Please don't feel that you have to apologise. The purpose of this group is to > be able to share our experiences coping with rosacea both the good and the > bad. What may seem like a trivial problem to some is not for others. I, like > most people, have had to cope with many different problems in my life. I was > born with a hip disability and since the age of 15 have often had to use a > cane to get around. The pain is pretty bad. I've had numerous surgeries, been > in full body casts etc. But I have told my family and friends that I actually > find the rosacea more difficult to deal with. When I tell them that, they > have a reference point and are able to take my concerns about my skin more > seriously. The know I am not a wimp moaning about some non-existent problem. > > With rosacea I find it more unpredictable than my other health problem and > equally painful. Also, believe it or not, there seems to be more of a stigma > attached to having problem skin than having mobility disabilities. With my > mobility difficulties people have shown compassion and understanding but when > you have problem skin people often make incorrect assumptions - you lead an > unhealthy life or are unhygienic. > > Whether we like it or not, people have biases regarding appearance which can > compound a sufferer's problems. > > Anyway, again, please do not apologise for your feelings. > > -- > Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2002 Report Share Posted January 27, 2002 Dear All, I had two issues going on simultaneously that support " Myvid's " story about hip disability vs. rosacea and their relative impact on her psyche. I had a cancer scare and a possible tooth/teeth extraction (periodontal disease) scare more or less as the same time. I was much more sanguine about the cancer scare than the tooth issues. The cancer was a problem to be solved, I was focussed but not sick with worry while the teeth issues made me weak in the knees with anxiety. Go figure. (Thankfully, both issues turned out to be false alarms in the end.) The only thing I can attribute it to is that we are probably " wired " to be concerned about keeping our appearances up because that is how we interact with the world. An analogy would be with the way that animals are stoical about pain and disability in order -- so it is believed -- to discourage predators who look for the weakest to attack. And too, we and other living beings must attract mates in order to propagate our species...looks are often a primary way that mates are selected on an unconscious level as well as conscious -- with the emphasis on health/fertility which is confirmed by " looks " . It is not all vanity in the shallow sense. I think there just may be some brain programming that pre-disposes us to be scrupulous about our " face to the world " in the literal and figurative sense. Sallie myvid@... wrote: > Please don't feel that you have to apologise. The purpose of this group is to > be able to share our experiences coping with rosacea both the good and the > bad. What may seem like a trivial problem to some is not for others. I, like > most people, have had to cope with many different problems in my life. I was > born with a hip disability and since the age of 15 have often had to use a > cane to get around. The pain is pretty bad. I've had numerous surgeries, been > in full body casts etc. But I have told my family and friends that I actually > find the rosacea more difficult to deal with. When I tell them that, they > have a reference point and are able to take my concerns about my skin more > seriously. The know I am not a wimp moaning about some non-existent problem. > > With rosacea I find it more unpredictable than my other health problem and > equally painful. Also, believe it or not, there seems to be more of a stigma > attached to having problem skin than having mobility disabilities. With my > mobility difficulties people have shown compassion and understanding but when > you have problem skin people often make incorrect assumptions - you lead an > unhealthy life or are unhygienic. > > Whether we like it or not, people have biases regarding appearance which can > compound a sufferer's problems. > > Anyway, again, please do not apologise for your feelings. > > -- > Please read the list highlights before posting to the whole group (http://rosacea.ii.net/toc.html). Your post will be delayed if you don't give a meaningful subject or trim your reply text. You must change the subject when replying to a digest ! > > See http://www.drnase.com for info on his recently published book. > > To leave the list send an email to rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 You must not beat yourself up for not calling the doctor's office sooner. EVERYONE has regrets. We just do the best that we can. You are obviuosly a very loving mother and that is what is most important. Thinking of you, Gale > > > > > I guess that I should apologize. One to Caden's mom who definitely needs > more support than probably the whole group can give and two to the rest of > the gang. I guess you all were right and my anger towards the docs and > insurance companies got in the way. My insurance is all of a sudden needing > these written approvals for the inhaled tobi and our old insurance isn't > covering a bill that they should have. I usually call the doctors a week > after a visit, but this time we were in the middle of finishing and closing > on our house. I called them on Monday to mention 's cough and to > kind of give them a heads up on the situation here. But I am still > dissapointed over not being told about the PA and H-Flu. In my opinion he > probably would not be coughing right now if we had known earlier and were > able to get him on some meds. > > As for the political mindedness. Well, that is a whole other story and I am > never offended on line over someone elses opinion. Even Torsten can atest to > that one > > > > Again I apologize for being self-centered. You guys truly are the best, and > sometimes only, support I have. > > > > > _________________________________________________________________ > Protect your PC - get McAfee.com VirusScan Online > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 You must not beat yourself up for not calling the doctor's office sooner. EVERYONE has regrets. We just do the best that we can. You are obviuosly a very loving mother and that is what is most important. Thinking of you, Gale > > > > > I guess that I should apologize. One to Caden's mom who definitely needs > more support than probably the whole group can give and two to the rest of > the gang. I guess you all were right and my anger towards the docs and > insurance companies got in the way. My insurance is all of a sudden needing > these written approvals for the inhaled tobi and our old insurance isn't > covering a bill that they should have. I usually call the doctors a week > after a visit, but this time we were in the middle of finishing and closing > on our house. I called them on Monday to mention 's cough and to > kind of give them a heads up on the situation here. But I am still > dissapointed over not being told about the PA and H-Flu. In my opinion he > probably would not be coughing right now if we had known earlier and were > able to get him on some meds. > > As for the political mindedness. Well, that is a whole other story and I am > never offended on line over someone elses opinion. Even Torsten can atest to > that one > > > > Again I apologize for being self-centered. You guys truly are the best, and > sometimes only, support I have. > > > > > _________________________________________________________________ > Protect your PC - get McAfee.com VirusScan Online > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 You must not beat yourself up for not calling the doctor's office sooner. EVERYONE has regrets. We just do the best that we can. You are obviuosly a very loving mother and that is what is most important. Thinking of you, Gale > > > > > I guess that I should apologize. One to Caden's mom who definitely needs > more support than probably the whole group can give and two to the rest of > the gang. I guess you all were right and my anger towards the docs and > insurance companies got in the way. My insurance is all of a sudden needing > these written approvals for the inhaled tobi and our old insurance isn't > covering a bill that they should have. I usually call the doctors a week > after a visit, but this time we were in the middle of finishing and closing > on our house. I called them on Monday to mention 's cough and to > kind of give them a heads up on the situation here. But I am still > dissapointed over not being told about the PA and H-Flu. In my opinion he > probably would not be coughing right now if we had known earlier and were > able to get him on some meds. > > As for the political mindedness. Well, that is a whole other story and I am > never offended on line over someone elses opinion. Even Torsten can atest to > that one > > > > Again I apologize for being self-centered. You guys truly are the best, and > sometimes only, support I have. > > > > > _________________________________________________________________ > Protect your PC - get McAfee.com VirusScan Online > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2003 Report Share Posted January 25, 2003 , I think one of the reasons the 'group' is here is so you can express your self. It is not always appropriate to " don't worry , everything will be all right. " One point of a support group is so you get the chance to say you are scared, you are angry, etcetera. And you can do that without anyone thinking any less of you. We share our experiences, our fears and our frustrations. The beauty is that we see that we are not alone with these thoughts. Not only is it okay to be angry, but also it's even better to be able to express it when we are. And this group is a place where you can express it without anyone thinking any differently about you. Another thing, , how many times have you read postings from people who have read for years, but never posted. The exchanging of experiences and observations is the other major benefit of the group. I'll bet there are many who simply read but do not have the self-confidence to post. They are afraid of being judged. So they simply read. May I encourage you to simply read, discard whatever you have no time or patience for, but check them out. You may never know when someone else may have an insight or a suggestion that you hadn't thought of, or may need to know about something that only you have experienced. I am simply a close friend of an ACM patient. And I know that I learn from, I feel for, and I admire, respect and sometimes even love the patients and their loved ones - just for their courage, for their knowledge, their willingness to bare all, and their cries for understanding. I truly doubt if anyone actually was offended. With respect and admiration, Adam apology I would like to take a moment to apologize ot anyone I have offended. I am in serious pain, and it has gotten the best of me. I feel I no longer have anything positive to add to the group at this point. I want to wish you all well, and thank you for your help, information, and compassion. God Bless you all, and good bye. Respectfully, NC Help section: http://www.yahoogroups.com/help/ NOTE: NCC refers to posts with No Chiari Content To Unsubscribe Yourself: chiari-unsubscribe WACMA Home: Http://www.wacma.com WACMA Online Group: http://groups.yahoo.com/group/chiari/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 I owe an apology to the group as well as to . sent this in response to my note to him - I should have shared it when I received it. Welcome back - nice to have you back. You are in my thoughts and prayers. Adam Re: apology Thank you for your thoughts and I really do appreciate the time you took to write such a cool message. I wish you well in your future endeavors, and health issues, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 I owe an apology to the group as well as to . sent this in response to my note to him - I should have shared it when I received it. Welcome back - nice to have you back. You are in my thoughts and prayers. Adam Re: apology Thank you for your thoughts and I really do appreciate the time you took to write such a cool message. I wish you well in your future endeavors, and health issues, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 I owe an apology to the group as well as to . sent this in response to my note to him - I should have shared it when I received it. Welcome back - nice to have you back. You are in my thoughts and prayers. Adam Re: apology Thank you for your thoughts and I really do appreciate the time you took to write such a cool message. I wish you well in your future endeavors, and health issues, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Couldn't agree more. In a message dated 6/10/2004 11:21:25 AM Pacific Standard Time, aleksblaise1@... writes: In the end, we all know we were assuming some element of risk in doing something outside of the norm. For me personally, I have taken far more risks on a daily basis than this decision. I hope for a very positive outcome for all of my hip friends regardless of device manufacturer. Your educated, and substantiated perspective will always be welcomed by me and with this group as I know it. My perspective comes from a former athlete and now business guy/bloak. I couldn't be happier with my decision to take action. I am five weeks post op and running around like a guinea pig on amphetamines...and with no pain! Call me in ten years and I will let you know about the long term wear as I plan to give it a good ride. By the way, I wasn't looking for friends either, however, it is amazing how many great friends I have found here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Couldn't agree more. In a message dated 6/10/2004 11:21:25 AM Pacific Standard Time, aleksblaise1@... writes: In the end, we all know we were assuming some element of risk in doing something outside of the norm. For me personally, I have taken far more risks on a daily basis than this decision. I hope for a very positive outcome for all of my hip friends regardless of device manufacturer. Your educated, and substantiated perspective will always be welcomed by me and with this group as I know it. My perspective comes from a former athlete and now business guy/bloak. I couldn't be happier with my decision to take action. I am five weeks post op and running around like a guinea pig on amphetamines...and with no pain! Call me in ten years and I will let you know about the long term wear as I plan to give it a good ride. By the way, I wasn't looking for friends either, however, it is amazing how many great friends I have found here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Dr. B, Sorry if we were a bit too hard on you. You're a quick study. The reason you get so much attention here is that you (1) represent the enlightened minority of the medical community that actually embraces resurfacing and (2) take the almost unheard of step of participating in our group, for which we are very appreciative. It's not particularly easy for this group to engage in purely intellectual dialog. We're so challenged by (1) crippling pain, (2) intransigent insurance companies that put profits way ahead of patient health, (3) unfathomable government health care systems, (4) with relatively few exceptions such as you, a medical community that treats hip resurfacing as a poor undeserving stepchild, (4) and a general fear of the unknown. Most of us are so grateful (and desperate) to find an affordable solution that ends our pain and gives us are life back that we don't really care what the name of the implant device is - ABC, XYZ, TNT, CRAPPY COBALT, or any other alphanumeric nomenclature. All we need to know is if our surgeon of choice can make it work for us. As you see, our expectations of you are higher, perhaps unjustifiably so. Suzie in Memphis wants you to tell her doctor husband why he should drop his resistance to resurfacing. Sunita wants to know why she is struggling with rehab. Many of us want to know what we can do to change the medical minds that dismiss resurfacing as inferior to THR and get the insurance companies to understand that resurfacings are a win-win procedure for both patient and health care provider. Unfair or not, you hold the answers to all our frustrations. Dr. B - surfacehippy champion. I've followed Jack Nicklaus closely, especially since his minimally invasive ceramic – ceramic THR that was performed in Boston. I think it was about early in 2000, a couple of years after I had my first C+. He never recaptured his pre-op level of play after the THR and now he's talking about quitting golf for good due to pain. You have to wonder how much better a resurfacing would have served him. We'll never know for sure, so it's only an intellectual exercise. I worked in newspapers for over 25 years and am a die hard media skeptic. Dispite any media spin to the contrary, I choose to believe that he'd be shooting lower scores and be in less pain with a resurfacing. His sad demise, to me, is a celebrity example of misguided medical advice. Dave C+ Amstutz, 2.24.98, 3.12.04 > It was arrogant and unfeeling of me to use language I did in my > initial postings. Especially the guinea pig comment. Sorry. > > There is no published evidence to show BHR/Cormet 2000 superior to > others. No evidence to contrary either. A scientific trial to > demonstrate conclusively that one is better than the other almost > impossible to conduct because so many variables. If such studies > were possible to conduct easily, we would not have present turmoil > in THR market. Would not like to try and count the total number of > THR devices ever released onto the market. Some have not been very > good at all. It is patients that have largely paid the price of > these designs, that were released with the best of intentions? Whose > fault is that? OS? Or does innovation have to come at such a cost? > The stakes in hip resurfacing are particularly high as patients are > younger. > > Genuinely worried about proliferation of new resurfacing devices. Is > this OK or will we eventually end up in same situation as Total Hip > Replacement market? Unfortunately ( and this my own fault) comments > were construed as direct attack on C+. Accept that Dr Amstutz has > made a pioneering contribution to Hip resurfacing and but for him > many of you would have had THR. Accept that C+ is device with a > worthy track record. Was wrong of me to imply otherwise. Pity that > US insurance companies will not fund Hip resurfacing. It was > difficult to get insurance companies to fund hip resurfacing in UK > until National Institute for Clinical Exellence (NICE) released a > guide cautiously approving concept of MOM resurfacing. > http://www.nice.org.uk/page.aspx?o=33560. > > In US which regulatory body holds key to release of new devices? I > understand it is FDA? Is this for devices originating both inside > and outside US? > > What do you all make of high profile media campaign re Jack Nicklaus > ceramic-on-ceramic hip replacement? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Dr. B, Sorry if we were a bit too hard on you. You're a quick study. The reason you get so much attention here is that you (1) represent the enlightened minority of the medical community that actually embraces resurfacing and (2) take the almost unheard of step of participating in our group, for which we are very appreciative. It's not particularly easy for this group to engage in purely intellectual dialog. We're so challenged by (1) crippling pain, (2) intransigent insurance companies that put profits way ahead of patient health, (3) unfathomable government health care systems, (4) with relatively few exceptions such as you, a medical community that treats hip resurfacing as a poor undeserving stepchild, (4) and a general fear of the unknown. Most of us are so grateful (and desperate) to find an affordable solution that ends our pain and gives us are life back that we don't really care what the name of the implant device is - ABC, XYZ, TNT, CRAPPY COBALT, or any other alphanumeric nomenclature. All we need to know is if our surgeon of choice can make it work for us. As you see, our expectations of you are higher, perhaps unjustifiably so. Suzie in Memphis wants you to tell her doctor husband why he should drop his resistance to resurfacing. Sunita wants to know why she is struggling with rehab. Many of us want to know what we can do to change the medical minds that dismiss resurfacing as inferior to THR and get the insurance companies to understand that resurfacings are a win-win procedure for both patient and health care provider. Unfair or not, you hold the answers to all our frustrations. Dr. B - surfacehippy champion. I've followed Jack Nicklaus closely, especially since his minimally invasive ceramic – ceramic THR that was performed in Boston. I think it was about early in 2000, a couple of years after I had my first C+. He never recaptured his pre-op level of play after the THR and now he's talking about quitting golf for good due to pain. You have to wonder how much better a resurfacing would have served him. We'll never know for sure, so it's only an intellectual exercise. I worked in newspapers for over 25 years and am a die hard media skeptic. Dispite any media spin to the contrary, I choose to believe that he'd be shooting lower scores and be in less pain with a resurfacing. His sad demise, to me, is a celebrity example of misguided medical advice. Dave C+ Amstutz, 2.24.98, 3.12.04 > It was arrogant and unfeeling of me to use language I did in my > initial postings. Especially the guinea pig comment. Sorry. > > There is no published evidence to show BHR/Cormet 2000 superior to > others. No evidence to contrary either. A scientific trial to > demonstrate conclusively that one is better than the other almost > impossible to conduct because so many variables. If such studies > were possible to conduct easily, we would not have present turmoil > in THR market. Would not like to try and count the total number of > THR devices ever released onto the market. Some have not been very > good at all. It is patients that have largely paid the price of > these designs, that were released with the best of intentions? Whose > fault is that? OS? Or does innovation have to come at such a cost? > The stakes in hip resurfacing are particularly high as patients are > younger. > > Genuinely worried about proliferation of new resurfacing devices. Is > this OK or will we eventually end up in same situation as Total Hip > Replacement market? Unfortunately ( and this my own fault) comments > were construed as direct attack on C+. Accept that Dr Amstutz has > made a pioneering contribution to Hip resurfacing and but for him > many of you would have had THR. Accept that C+ is device with a > worthy track record. Was wrong of me to imply otherwise. Pity that > US insurance companies will not fund Hip resurfacing. It was > difficult to get insurance companies to fund hip resurfacing in UK > until National Institute for Clinical Exellence (NICE) released a > guide cautiously approving concept of MOM resurfacing. > http://www.nice.org.uk/page.aspx?o=33560. > > In US which regulatory body holds key to release of new devices? I > understand it is FDA? Is this for devices originating both inside > and outside US? > > What do you all make of high profile media campaign re Jack Nicklaus > ceramic-on-ceramic hip replacement? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Dr., I appreciate the value of your experience and perspective. I joined this group looking for as many perspectives as possible while I was making this crucial decision. I was initially prepared to disregard your comments, 1) because you did not answer the questions I posited, and 2) you drive a mini. Just giving you a little deserved banter. The insurance business in the US varies greatly from company to company. I was fortunate, my insurance covered 100% of my resurfacing and related expenses, and no waiting lines. I believe many others have had all or a portion of the procedure covered by insurance, therefore it is not accurate to claim that insurance generally does not cover resurfacing. As it relates to Jack Nicklaus. His OS is my local OS and his office is two miles from my home. I know him and his work well. He wanted to schedule me for bilateral THR. As I mentioned, the medical community in my part of the world is very conservative and dogmatic. Interestingly, the aforementioned OS did in fact conduct resurfacing several years ago. The artciulated surface of choice at the time was metal on plastic or some variation thereof. As a result, the clinical data was not inspiring, but then again either is Jack's game. Have you seen him try to bend over to tee his ball lately? This also came at a time when he was staking his claim to fame on pushing the ceramic-on-ceramic articulation through the rigorous FDA approval process. I went from a world class athlete to a crippled mess in a few short years. I am now 40 years old and the advice I was provided was to give up everything I enjoy in life. Not an option. I looked at the clinical results of THRs in young active people and the significant retrictions in lifestyle and my choice was clear. In the end, the OS recommended Dr. Amstutz if I was not going to change my mind. I have an additional theory, purely my speculation, 1) resurfacing is an enormous threat to the broadly defined ecomomics of the medical community in the US and the " success " of the THR procedure, and 2) well trained and established OSs with reputations and an economic engine, i.e., their established practices and long waiting lines for THRs, are not going to go out and retrain themselves for a procedure that is not approved by the FDA. A well respected OS confirmed this to me after attending a recent presentation by Dr. Amstutz. He stated that he believed in resurfacing, however, for the reasons stated he would never at this juncture in his career pursue doing resurfacing. About the devices themselves, again I viewed Dr. Amstutz as having pretty good experience in this area. Research and results demonstrates his experience and knowledge with clinical results, collaboration with other OSs, materials, procedure, articulation and related intellectual property. Did anyone ever confirm that Dr. DeSmet is also using C+. I heard this and I am curious. In the end, we all know we were assuming some element of risk in doing something outside of the norm. For me personally, I have taken far more risks on a daily basis than this decision. I hope for a very positive outcome for all of my hip friends regardless of device manufacturer. Your educated, and substantiated perspective will always be welcomed by me and with this group as I know it. My perspective comes from a former athlete and now business guy/bloak. I couldn't be happier with my decision to take action. I am five weeks post op and running around like a guinea pig on amphetamines...and with no pain! Call me in ten years and I will let you know about the long term wear as I plan to give it a good ride. By the way, I wasn't looking for friends either, however, it is amazing how many great friends I have found here. Best...your friend... C+ Dr. Amstutz 5/04/04 > It was arrogant and unfeeling of me to use language I did in my > initial postings. Especially the guinea pig comment. Sorry. > > There is no published evidence to show BHR/Cormet 2000 superior to > others. No evidence to contrary either. A scientific trial to > demonstrate conclusively that one is better than the other almost > impossible to conduct because so many variables. If such studies > were possible to conduct easily, we would not have present turmoil > in THR market. Would not like to try and count the total number of > THR devices ever released onto the market. Some have not been very > good at all. It is patients that have largely paid the price of > these designs, that were released with the best of intentions? Whose > fault is that? OS? Or does innovation have to come at such a cost? > The stakes in hip resurfacing are particularly high as patients are > younger. > > Genuinely worried about proliferation of new resurfacing devices. Is > this OK or will we eventually end up in same situation as Total Hip > Replacement market? Unfortunately ( and this my own fault) comments > were construed as direct attack on C+. Accept that Dr Amstutz has > made a pioneering contribution to Hip resurfacing and but for him > many of you would have had THR. Accept that C+ is device with a > worthy track record. Was wrong of me to imply otherwise. Pity that > US insurance companies will not fund Hip resurfacing. It was > difficult to get insurance companies to fund hip resurfacing in UK > until National Institute for Clinical Exellence (NICE) released a > guide cautiously approving concept of MOM resurfacing. > http://www.nice.org.uk/page.aspx?o=33560. > > In US which regulatory body holds key to release of new devices? I > understand it is FDA? Is this for devices originating both inside > and outside US? > > What do you all make of high profile media campaign re Jack Nicklaus > ceramic-on-ceramic hip replacement? 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Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 > > It was arrogant and unfeeling of me to use language I did in my > > initial postings. Especially the guinea pig comment. Sorry. > > > > Genuinely worried about proliferation of new resurfacing devices. > Is > > this OK or will we eventually end up in same situation as Total Hip > > Replacement market? Unfortunately ( and this my own fault) > comments > > were construed as direct attack on C+. Accept that Dr Amstutz has > > made a pioneering contribution to Hip resurfacing and but for him > > many of you would have had THR. Accept that C+ is device with a > > worthy track record. Was wrong of me to imply otherwise. Pity that > > US insurance companies will not fund Hip resurfacing. It was > > difficult to get insurance companies to fund hip resurfacing in UK > > until National Institute for Clinical Exellence (NICE) released a > > guide cautiously approving concept of MOM resurfacing. > > http://www.nice.org.uk/page.aspx?o=33560. > > > > In US which regulatory body holds key to release of new devices? I > > understand it is FDA? That is correct. > >Is this for devices originating both inside > > and outside US? Yes it is. has made application for final market approval for the C+ (in December, 2003), but the FDA has not yet acted on this application. The Cormet 2000 is still in trials. It will probably be a couple of years before the Cormet trials complete and market approval application is made. The BHR has not even begun the FDA trial process, although the new owners have stated that they intend to pursue FDA approval. From that perspective, those of us who have received C+s or C2Ks in the US are indeed " guinea pigs " (and proud of it, by the way, *somebody* has to drag the US orthopaedic community, kicking and screaming, into the 21st Century). Those of us who have chosen to participate in long-term metal ion studies are doubly so. Anyway, welcome to the group! > > > > What do you all make of high profile media campaign re Jack > Nicklaus > > ceramic-on-ceramic hip replacement? Hype and hucksterism. We're sort of used to it on this side of the pond. Steve (bilat C+ 4/20/04, Amstutz) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 : I could have written your same post myself, almost word for word! I TOTALLY agree with you. And, to me, the true essence of the " problem " , as it almost always is the case on our " civilized world " of todays, lies with the ECONOMIC INTERESTS that are at stake. As brilliantly put it: > 1) resurfacing is > an enormous threat to the broadly defined ecomomics of the medical > community in the US and the " success " of the THR procedure, and >2)well trained and established OSs with reputations and an economic > engine, i.e., their established practices and long waiting lines >for THRs, are not going to go out and retrain themselves for a >procedure that is not approved by the FDA. > I tend to think that OS with reputations, economic interest and long lines for THR may be somehow " using " the OS who " dare " to go for resurfacing even in the present situation as..... GUINEA PIGS! They probably figure: " Let's let THEM struggle with FDA, trials and possible shortcomings of resurfacing, and then we'll kick in only if/when everything will look tried and sure " . Isn't reaping the economic benefits of someone else's work much easier than risking your reputation (and your incomes) all on your own??? Hippiesalutations from Al. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 : I could have written your same post myself, almost word for word! I TOTALLY agree with you. And, to me, the true essence of the " problem " , as it almost always is the case on our " civilized world " of todays, lies with the ECONOMIC INTERESTS that are at stake. As brilliantly put it: > 1) resurfacing is > an enormous threat to the broadly defined ecomomics of the medical > community in the US and the " success " of the THR procedure, and >2)well trained and established OSs with reputations and an economic > engine, i.e., their established practices and long waiting lines >for THRs, are not going to go out and retrain themselves for a >procedure that is not approved by the FDA. > I tend to think that OS with reputations, economic interest and long lines for THR may be somehow " using " the OS who " dare " to go for resurfacing even in the present situation as..... GUINEA PIGS! They probably figure: " Let's let THEM struggle with FDA, trials and possible shortcomings of resurfacing, and then we'll kick in only if/when everything will look tried and sure " . Isn't reaping the economic benefits of someone else's work much easier than risking your reputation (and your incomes) all on your own??? Hippiesalutations from Al. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 : I could have written your same post myself, almost word for word! I TOTALLY agree with you. And, to me, the true essence of the " problem " , as it almost always is the case on our " civilized world " of todays, lies with the ECONOMIC INTERESTS that are at stake. As brilliantly put it: > 1) resurfacing is > an enormous threat to the broadly defined ecomomics of the medical > community in the US and the " success " of the THR procedure, and >2)well trained and established OSs with reputations and an economic > engine, i.e., their established practices and long waiting lines >for THRs, are not going to go out and retrain themselves for a >procedure that is not approved by the FDA. > I tend to think that OS with reputations, economic interest and long lines for THR may be somehow " using " the OS who " dare " to go for resurfacing even in the present situation as..... GUINEA PIGS! They probably figure: " Let's let THEM struggle with FDA, trials and possible shortcomings of resurfacing, and then we'll kick in only if/when everything will look tried and sure " . Isn't reaping the economic benefits of someone else's work much easier than risking your reputation (and your incomes) all on your own??? Hippiesalutations from Al. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 : I could have written your same post myself, almost word for word! I TOTALLY agree with you. And, to me, the true essence of the " problem " , as it almost always is the case on our " civilized world " of todays, lies with the ECONOMIC INTERESTS that are at stake. As brilliantly put it: > 1) resurfacing is > an enormous threat to the broadly defined ecomomics of the medical > community in the US and the " success " of the THR procedure, and >2)well trained and established OSs with reputations and an economic > engine, i.e., their established practices and long waiting lines >for THRs, are not going to go out and retrain themselves for a >procedure that is not approved by the FDA. > I tend to think that OS with reputations, economic interest and long lines for THR may be somehow " using " the OS who " dare " to go for resurfacing even in the present situation as..... GUINEA PIGS! They probably figure: " Let's let THEM struggle with FDA, trials and possible shortcomings of resurfacing, and then we'll kick in only if/when everything will look tried and sure " . Isn't reaping the economic benefits of someone else's work much easier than risking your reputation (and your incomes) all on your own??? Hippiesalutations from Al. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Thank goodness they're not blaming the lawyers (specifically) for this one. Des Tuck, Esq. In a message dated 6/14/2004 2:51:36 PM Pacific Standard Time, m.bloomfield@... writes: You got it! Vested interests and economics. Quaint how so many believe medicine and surgery are any different from other walks of life. Still would rather be in this game than some............. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Thank goodness they're not blaming the lawyers (specifically) for this one. Des Tuck, Esq. In a message dated 6/14/2004 2:51:36 PM Pacific Standard Time, m.bloomfield@... writes: You got it! Vested interests and economics. Quaint how so many believe medicine and surgery are any different from other walks of life. Still would rather be in this game than some............. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 > : I could have written your same post myself, almost word for > word! I TOTALLY agree with you. > > And, to me, the true essence of the " problem " , as it almost always > is the case on our " civilized world " of todays, lies with the > ECONOMIC INTERESTS that are at stake. > > As brilliantly put it: > > > 1) resurfacing is > > an enormous threat to the broadly defined ecomomics of the medical > > community in the US and the " success " of the THR procedure, and > >2)well trained and established OSs with reputations and an economic > > engine, i.e., their established practices and long waiting lines > >for THRs, are not going to go out and retrain themselves for a > >procedure that is not approved by the FDA. > > > > I tend to think that OS with reputations, economic interest and long > lines for THR may be somehow " using " the OS who " dare " to go for > resurfacing even in the present situation as..... GUINEA PIGS! > They probably figure: " Let's let THEM struggle with FDA, trials and > possible shortcomings of resurfacing, and then we'll kick in only > if/when everything will look tried and sure " . > Isn't reaping the economic benefits of someone else's work much > easier than risking your reputation (and your incomes) all on your > own??? > > Hippiesalutations from Al. You got it! Vested interests and economics. Quaint how so many believe medicine and surgery are any different from other walks of life. Still would rather be in this game than some............. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 > : I could have written your same post myself, almost word for > word! I TOTALLY agree with you. > > And, to me, the true essence of the " problem " , as it almost always > is the case on our " civilized world " of todays, lies with the > ECONOMIC INTERESTS that are at stake. > > As brilliantly put it: > > > 1) resurfacing is > > an enormous threat to the broadly defined ecomomics of the medical > > community in the US and the " success " of the THR procedure, and > >2)well trained and established OSs with reputations and an economic > > engine, i.e., their established practices and long waiting lines > >for THRs, are not going to go out and retrain themselves for a > >procedure that is not approved by the FDA. > > > > I tend to think that OS with reputations, economic interest and long > lines for THR may be somehow " using " the OS who " dare " to go for > resurfacing even in the present situation as..... GUINEA PIGS! > They probably figure: " Let's let THEM struggle with FDA, trials and > possible shortcomings of resurfacing, and then we'll kick in only > if/when everything will look tried and sure " . > Isn't reaping the economic benefits of someone else's work much > easier than risking your reputation (and your incomes) all on your > own??? > > Hippiesalutations from Al. You got it! Vested interests and economics. Quaint how so many believe medicine and surgery are any different from other walks of life. Still would rather be in this game than some............. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Sadly I think both you and Dave are right. I said what I said tongue in cheek. They do say that 99% of lawyers give the rest of us a bad name. I'm doing great thanks, Dr. Mark. Still having some flexor pain but going to try acupuncture. I leave for Japan on July 14 for some serious karate training and I can't wait. Des In a message dated 6/14/2004 4:54:54 PM Pacific Daylight Time, mattosma@... writes: > Thank goodness they're not blaming the lawyers (specifically) for this one. > > Des Tuck, Esq. Hi Des, Its too soon to blame you guys. Just wait awhile it should not be too long before they get around to you. :-) Hope all is well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 I'd love to say " mea culpa " but it was really your cheeky attitude that got you through this, and you know it. But thanks for saying that anyway. Just remember there's still time to screw it up so take it easy, y'hear! Des In a message dated 6/14/2004 6:13:39 PM Pacific Daylight Time, gabacho@... writes: Hey Des, Since your input and enthusiasm was such a big part of my research and subsequent decision to be resurfaced, I formally blame you for my painless, almost normal hip. And, therefore, hold you equally liable for any futher happiness and or healthiness I might be subject to henceforth. Quote Link to comment Share on other sites More sharing options...
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