Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hello My name is and I have brother who has neurosarcoidosis and hope I'm still welcome on this board. I've been trying to learn as much as I can about this and yet find really not alot. My brother was diagnosed with this about a year ago..he was in the hospital for about a month and they ran every test under the sun..and to be diagnosed in end with neurosarcoidosis..my brother was the picture of health till this...now he isn't doing well,can't work,or anything...from what I know and understand is that it's spread everywhere lungs,brain and throughtout body..when they'd done exrays his body was all white spots..which my mother explains to me is the inflamation..he's been in and out in past month in the hospital and not doing well...they tried to take him off prednisone..but got bad and is back on...he's gained so much weight from this..I know I'm rambling but I really don't know what to ask or say. But hoping to find some help/support from someone who understands this. Quote Link to comment Share on other sites More sharing options...
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