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Hi All

My sarc so far has been restricted to neurological areas but over the past couple of days I have been getting sharp almost 'electrical' stabs of pain in my left calf. I did have a lumbar puncture a couple of months ago which they did hit a nerve which sent a similar electric pain down my left leg (it hurt hell of a lot) but it recovered. Its just starting to worry me the pain is there and gone agin very quickly, is it something I should see my doctor about or just hope it will go away ?

Thanks for any advise I receive.

Clair

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  • 2 years later...

Hi:

This isn't directly related and please don't take this as preaching,

but in the worst case event he has to get the pouch removed it's not

the end of the world. I've had an illeostomy for 10 years last June.

(I also have PSC). Also, I'm a pouch Candidate and when I had my

total collectomy They left part of my rectum intact in case I ever

wanted the pouch. (Note that at the time I figured I'd wait the 6

months healing period then get one). I've never felt the urge to get

it done. The complications folks (sometimes) have outweighed the

cosmetic impact of the ostomy. In response to the person that's had

one for 3 months, it's still changing shape, etc. during that period

so that's far worse than it gets. In all honesty I think shaving is

more of a pain in my butt than the care of the Ostomy. Note that

although I've been a slug lately due to a cracked rib. After getting

the Ostomy I bicycled through the Rockies 4 times (one trip was 700

miles) with the ostomy with no issues. I'm an avid weight lifter and

have squatted up to maybe 490lbs with the pouch and other than my

clothing choices it never encumbers anything. (I prefer to wear loose

baqgies). Other than maybe 3 or 4 times having irritation I have

never had any complications and have had a total of 2 leaks in 10

years (not bad either). I'm not modest and will talk about it to

anyone who asks, but nobody knows who I don't tell, there isn't

anything noticable about it outside.

If I was a male model posing in G strings all the time (I'm not :) it

would bother me. It doesn't. Maybe I've just had too many cameras up

bodily orfices to care but it really doesn't bother me. My only

concern early on was intimacy with my girlfriend. She didn't mind and

those since then haven't either. Maybe someday I'll become a 'male'

model and use the wildcard for a J-Pouch I've had open, but I've had

no need to for now. The freedom from urgency offered by the pouch has

been a godsend. Before it I planned my day around bathrooms. I still

go frequently but never 'have' to go.

Anyway, I'll stop preaching, I hope it ends up being something

temporary and resolves on it's own. I just wanted to say if you lose

the pouch it's not the end of the world, just the beginning of a new

one.

>

> >Do you all have experience with this kind of pain? Is it a sign of

> >some kind of vitamin deficiency or UC inflamation or can it be PSC-

> >related? Is it a separate issue? Could it be restless leg after all?

> >I'm so disturbed because I can't sleep!

>

> From time to time this item comes up. Sometimes I throw this answer out

> only because it worked for me. Others it may vary.

>

> Before I got my transplant I would wake up at nite sometimes with leg

> cramps others with jumpy legs .... either one I could not get to sleep

> or back to sleep

>

> I read someplace that if you put an open bar of hand soap in the bed

with

> you close to the bottom of the bed or near the feet, it will go

away. Sounds

> and old wives tail but it worked for me.....

>

> Bill Booth

> sunny Sundridge, ON

>

> Visit my weather WebCam at

http://www.almaguin.com/wxcurrent/weather.html

>

> Organ and Tissue Donation - The Gift of Life

> Talk to your family. Your decision can make a difference.

>

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