Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Looking for answers to what to expect next. My husband was diagnosed with sarcoidosis in 1990 when a tumor was removed from salivary gland. He had no symptoms until in 1998 he developed hydrocephalus (water on the brain) which led to shunt being inserted and discovering sarcoid lesions in the bain. Since this time, he has various neurological issues -- leg tremors, unsteady gait, hands shake, confusion, muscle and joint weakness, etc. He also has developed severe sleep apnea, bradycardia (resulted in pacemaker implant) bilateral hearing loss, vision impairment due to keratoconus, diabetes, hypertension and poor performing pituitary gland (male hormone replacement and thyroid medication). Fell and developed a blood clot in leg but doctors are reluctant to treat with thinner due to medical risks. Recently legs and feet were severely swollen so doctor prescribed water pills and increased airflow volume on CPAC. Also on nebulizer 5 times a day using Albuterol and Pulmocort. Legs continue to swell are extremely hard and red. Hate going to the doctor because it only seems that another medication gets prescribed on top of long list already being taken. Wanted to discuss with doctors possibility of decreasing some of the meds. Have any of you experienced these symptoms and what actions have you taken? Quote Link to comment Share on other sites More sharing options...
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