How to fight the system?-OT/vent

January 13, 2004

Hi Everyone,

I'm going to post this to all my different groups, so if you get it more

than once I apologize.

Will is 28 months old and having more and more problems. We had to

switch Drs in Oct because our current one was no longer accepting our state

supported insurance. Our new Dr has no clue what to do for Will. He has

been having seizures since Nov. and they wouldn't do anything, I finally

took him to the ER,last Tues., and he was started on meds. They were

supposed to be working on getting him an EEG and referral to a Neuro, none

of this has happened yet. I have tried contacting them repeatedly and am

told they will call back, nothing. Now Will has had to stop the meds and

just had another seizure.

What do I do? I tried calling the insurance, there is no one else on the

plan. I've tried arguing that with Will's special needs he has to have a

Pediatrician, or even just a competant Dr, but keep getting told that this

is the best they can offer. Who do I take this to? We are starting to

write letters to our Politicians, but the way they work Will could be grown

or dead by then. I don't want to keep taking him to the ER, but it is the

only place he's getting any care right now. His current Dr is more than

willing to write referrals but never follows them up, so they take months to

came through.

Has anyone else had to deal with this? What do you do? How do you get the

care your child needs when the Dr is standing in the way?

My Mom's so mad about all of this she's ready to call the medical review

boards and really cause trouble. The problem is what then, there is no

where else to go.

I'm sorry this got longer than I planned, but I really don't know what to do

next.

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