Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 a never ending story I can go along most of the day and be just like a normal person no one can tell anything is wrong and then wham either my heart does not respond to my pacemaker or I get to many skipped beats of my two rebuild valves leak to much but all H-l- breaks out I feel like I am playing Russian roulette with my life. My intuition tells me that I'm just not going to make it one of these times. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 mary, im sorry to read your having such problems. this has to be so scary and stressful to say the least for you. i wish there were more comforting words to say or something more uplifting, i can only imagine how you must be feeling and what you must be going through with this. i wanted you to know that i am thinking of you. god willing it will get better soon. keep in touch with the drs and let tehm keep adjusting what they need to adjust til they get it right. take care kim ns moderatorNeuroSarcoid66@... wrote: To: "neuro sarc group" <neurosarcoidosis >From: " Mommer" Date: Fri, 3 Mar 2006 22:52:06 -0600Subject: here whats up with me a never ending story I can go along most of the day and be just like a normal person no one can tell anything is wrong and then wham either my heart does not respond to my pacemaker or I get to many skipped beats of my two rebuild valves leak to much but all H-l- breaks out I feel like I am playing Russian roulette with my life. My intuition tells me that I'm just not going to make it one of these times. M Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 mary, im sorry to read your having such problems. this has to be so scary and stressful to say the least for you. i wish there were more comforting words to say or something more uplifting, i can only imagine how you must be feeling and what you must be going through with this. i wanted you to know that i am thinking of you. god willing it will get better soon. keep in touch with the drs and let tehm keep adjusting what they need to adjust til they get it right. take care kim ns moderatorNeuroSarcoid66@... wrote: To: "neuro sarc group" <neurosarcoidosis >From: " Mommer" Date: Fri, 3 Mar 2006 22:52:06 -0600Subject: here whats up with me a never ending story I can go along most of the day and be just like a normal person no one can tell anything is wrong and then wham either my heart does not respond to my pacemaker or I get to many skipped beats of my two rebuild valves leak to much but all H-l- breaks out I feel like I am playing Russian roulette with my life. My intuition tells me that I'm just not going to make it one of these times. M Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 mary, im sorry to read your having such problems. this has to be so scary and stressful to say the least for you. i wish there were more comforting words to say or something more uplifting, i can only imagine how you must be feeling and what you must be going through with this. i wanted you to know that i am thinking of you. god willing it will get better soon. keep in touch with the drs and let tehm keep adjusting what they need to adjust til they get it right. take care kim ns moderatorNeuroSarcoid66@... wrote: To: "neuro sarc group" <neurosarcoidosis >From: " Mommer" Date: Fri, 3 Mar 2006 22:52:06 -0600Subject: here whats up with me a never ending story I can go along most of the day and be just like a normal person no one can tell anything is wrong and then wham either my heart does not respond to my pacemaker or I get to many skipped beats of my two rebuild valves leak to much but all H-l- breaks out I feel like I am playing Russian roulette with my life. My intuition tells me that I'm just not going to make it one of these times. M Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
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