hello

[Guest guest]

Thanks Rose, The reason I re-introduced myself was a lack of computer knowledge. I wasn't sure if my email replys were going back to your group. I am very glad I have found you all. I got smacked around by trevor's group but good. They thought I should just be able to go anywhere to see one of the doctors they knew, and avoid pred at all cost. I also had serious questions about their protocol, which they don't take kindly to so......... needless to say I don't mess with that anymore///Thanks to all of you - you are more important than you will ever know. ConnieRose wrote: Hey, Connie, glad to meet you. Please forgive me if I have already greeted you. My best friend is named Connie, so I have a soft spot for you already! We are a

little touchy about Trevor, because some of his "groupies" have been rather aggressive, even arrogant, with our members. So at times we may seem over-protective. Anyway, I'm way behind on emails, so I'll read some of the replies to your message, then add anything if it applies. Again, welcome to our group. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To:

Neurosarcoidosis Subject: HelloDate: Mon, 01 May 2006 21:35:35 -0000I am a little bashful when it come to emailing new people, but here goes. I have biopsy confirmed sarcoidosis, which has an agressive streak. The involvement includes joints, skin, cardiac, bronchial tubes, lungs, lymph nodes, and now possibly neuro. I'm having problems and we are in the testing - figure it out stage.My name is Connie Augusta G. - I go by Connie. I was looking for information when I found your site.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant

messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks Rose, The reason I re-introduced myself was a lack of computer knowledge. I wasn't sure if my email replys were going back to your group. I am very glad I have found you all. I got smacked around by trevor's group but good. They thought I should just be able to go anywhere to see one of the doctors they knew, and avoid pred at all cost. I also had serious questions about their protocol, which they don't take kindly to so......... needless to say I don't mess with that anymore///Thanks to all of you - you are more important than you will ever know. ConnieRose wrote: Hey, Connie, glad to meet you. Please forgive me if I have already greeted you. My best friend is named Connie, so I have a soft spot for you already! We are a

little touchy about Trevor, because some of his "groupies" have been rather aggressive, even arrogant, with our members. So at times we may seem over-protective. Anyway, I'm way behind on emails, so I'll read some of the replies to your message, then add anything if it applies. Again, welcome to our group. Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To:

Neurosarcoidosis Subject: HelloDate: Mon, 01 May 2006 21:35:35 -0000I am a little bashful when it come to emailing new people, but here goes. I have biopsy confirmed sarcoidosis, which has an agressive streak. The involvement includes joints, skin, cardiac, bronchial tubes, lungs, lymph nodes, and now possibly neuro. I'm having problems and we are in the testing - figure it out stage.My name is Connie Augusta G. - I go by Connie. I was looking for information when I found your site.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant

messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hey guys,

Today is the first day I have had a chance to read some posts and see

how everyone is doing. Just know that you are all in my prayers and

thoughts and hoping you are all well. My niece was in a bad accident

last Friday. She has a skull fracture (with a huge laceration), her

spleen had to be removed, she has multiple fractured (but stable)

vertebraes, road rash, etc.

She was taken off the vent yesterday and she immediately started

talking. Today is her birthday - and the whole family is going to be

here. She requested some Iced Tea today. woohoo.

Well, gotta run. There is going to be a big party in her honor in the

conference room but she cannot attend. We are taking picture of her.

I will be back regular soon. Love to you guys,

Terri