eyelashes

[Guest guest]

I agree, Chelsea is the cutest thing ever. Something that I notice on Chelsea that is in common with my daughter and grand-daughter are the eyes. One being slightly larger than the other.

Anyone else notice this?

.

Re: eyelashes

This subject caught my attention, as people are always saying how long and beautiful Chelsea's eyelashes are (and how jealous they are!). Most of the drs Chelsea has seen have also commented on her mildly dysmorphic features. In report from the neuro she saw once at U of M, he says "She had dysmorphic facial features including synophrys, epicanthal folds, a broad nasal bridge and wide spaced eyes." This exam was done when she was 3yrs and her features have become more prominent in the past few years, she will be 7 soon. Other drs have said something about the shape of her eyebrows. She is still the cutest thing ever, though! Here is a current pic. BTW, what does synophrys mean? I could not find that in my medical dictionary.

e, Chelsea's mom(nonspecific mito)

Please contact mito-owner with any problems or questions.

[Guest guest]

I agree, Chelsea is the cutest thing ever. Something that I notice on Chelsea that is in common with my daughter and grand-daughter are the eyes. One being slightly larger than the other.

Anyone else notice this?

.

Re: eyelashes

This subject caught my attention, as people are always saying how long and beautiful Chelsea's eyelashes are (and how jealous they are!). Most of the drs Chelsea has seen have also commented on her mildly dysmorphic features. In report from the neuro she saw once at U of M, he says "She had dysmorphic facial features including synophrys, epicanthal folds, a broad nasal bridge and wide spaced eyes." This exam was done when she was 3yrs and her features have become more prominent in the past few years, she will be 7 soon. Other drs have said something about the shape of her eyebrows. She is still the cutest thing ever, though! Here is a current pic. BTW, what does synophrys mean? I could not find that in my medical dictionary.

e, Chelsea's mom(nonspecific mito)

Please contact mito-owner with any problems or questions.

[Guest guest]

I think I sent send without anything. Anyways I just wanted to add

that that is the first thing anybody says about Wyatt when they meet

him- " how did you get so luck to have such long eyelashes,

especially as a boy. "

I find it interesting that other mito kids have long lashes.

Geri-Anne and Wyatt, Complex I-

-- In Mito , " Darla Klein "

wrote:

> You've got me very curious as to what else Dr. saye are

characteristics of Mito in children. Asenath has extremely long eye

lashes too. I didn't know this was a trait of Mito. Fatigue and

feeding issues I knew. But what else did he put in the list?

>

> Darla: mommy to Asenath

>

> Re: Mito inherited from father? (Twana)

>

> Is it rare for a child to inherit from both parents? I am curious

> because my husband's nieces share a striking resemblance to our

> daughter who has characteristics that Dr. Kelley said are very

common

> with Mito children - extremely long lashes for example. Also they

both

> fatigue easily and had definate feeding issues as children. We have

> always suspected that they may have mild, soft symptoms but

thought it

> unlikely that and I both carry a defective gene. How did

you

> get the testing? No one will help us with that. We are treating

Abbey

> in the hopes that her mmitochondrial will repair themselves and

begin

> functioning, can that still happen if the mito are not getting

correct

> info?

> Thanks,

>

>

>

>

>

>

> > I was just

> > > wondering how many here think they inherited mito from their

father.

>

>

>

> Please contact mito-owner with any problems or

questions.

>

>

[Guest guest]

's are the same.Long,thick and beautiful.Always the first thing people

notice.

But I had never heard anyone say that the long lashes could be connected to

mito.Something new to learn every day.

,Mom to

Re: Mito inherited from father? (Twana)

> >

> > Is it rare for a child to inherit from both parents? I am curious

> > because my husband's nieces share a striking resemblance to our

> > daughter who has characteristics that Dr. Kelley said are very

> common

> > with Mito children - extremely long lashes for example. Also they

> both

> > fatigue easily and had definate feeding issues as children. We have

> > always suspected that they may have mild, soft symptoms but

> thought it

> > unlikely that and I both carry a defective gene. How did

> you

> > get the testing? No one will help us with that. We are treating

> Abbey

> > in the hopes that her mmitochondrial will repair themselves and

> begin

> > functioning, can that still happen if the mito are not getting

> correct

> > info?

> > Thanks,

> >

> >

> >

> >

> >

> >

> > > I was just

> > > > wondering how many here think they inherited mito from their

> father.

> >

> >

> >

> > Please contact mito-owner with any problems or

> questions.

> >

> >

[Guest guest]

Calley also has long gorgeous eyelashes, as does my 11 year old Dylan, very interesting that my 15 year old ny does not. Calley has a ton of medical issues ( all related to mito), Dylan had horrible, horrible reflux as a baby and OT issues that have resolved themselves. has an LD, but compensates well. The boys are extremely healthy but I sometimes wonder if their issues are somehow connected to Calley's. I also sometimes wonder if I myself have soft signs......

Thanks for listening to me ponder!

Best Wishes,

Colleen - Mom to Calley 6 (Mito - Complex IV, gtube, trach - decannulated 4/17/00)

Dylan 11 & 15

[Guest guest]

and , Thanks for the compliments on Chelsea! And she is just as sweet as she is cute! Chelsea does have ptosis (droopy eyelids), and her left eye is always open more than the right. Which is odd, because her left limbs are tighter and have lost use (which she is slowly gaining back) because her seizures originate from the right posterior region of her brain. Her ptosis gets worse with fatigue and/or seizure activity. FYI, my maternal grandmother was dx'd with Myathenis Gravis and ptosis was one of her most noticable sx's (she died from cancer).

e, Chelsea's mom(nonspecific mito)

[Guest guest]

Hmmm, e, my grandmother also had myathenis gravis. Is there a connection

between that and families with Mito? I don't know alot about it?

jayvelde@... wrote:

and , Thanks for the compliments on Chelsea! And she

is just as sweet as she is cute! Chelsea does have ptosis (droopy eyelids),

and her left eye is always open more than the right. Which is odd, because

her left limbs are tighter and have lost use (which she is slowly gaining

back) because her seizures originate from the right posterior region of her

brain. Her ptosis gets worse with fatigue and/or seizure activity. FYI, my

maternal grandmother was dx'd with Myathenis Gravis and ptosis was one of

her most noticable sx's (she died from cancer).

e, Chelsea's mom(nonspecific mito)

Please contact mito-owner with any problems or questions.

[Guest guest]

Asenath has droopy eye lids too. Her left eye doesn't open as far as her right one. I am not sure if it is from Mito or from strokes. It has gotten worse since last fall but I think most people still don't notice it like our family does. She's still a cutey to me! Darla: mommy to Asenath, Zipporrah, and the gang Re: eyelashes and , Thanks for the compliments on Chelsea! And she is just as sweet as she is cute! Chelsea does have ptosis (droopy eyelids), and her left eye is always open more than the right. Which is odd, because her left limbs are tighter and have lost use (which she is slowly gaining back) because her seizures originate from the right posterior region of her brain. Her ptosis gets worse with fatigue and/or seizure activity. FYI, my maternal grandmother was dx'd with Myathenis Gravis and ptosis was one of her most noticable sx's (she died from cancer). e, Chelsea's mom(nonspecific mito)Please contact mito-owner with any problems or questions.

[Guest guest]

Asenath has droopy eye lids too. Her left eye doesn't open as far as her right one. I am not sure if it is from Mito or from strokes. It has gotten worse since last fall but I think most people still don't notice it like our family does. She's still a cutey to me! Darla: mommy to Asenath, Zipporrah, and the gang Re: eyelashes and , Thanks for the compliments on Chelsea! And she is just as sweet as she is cute! Chelsea does have ptosis (droopy eyelids), and her left eye is always open more than the right. Which is odd, because her left limbs are tighter and have lost use (which she is slowly gaining back) because her seizures originate from the right posterior region of her brain. Her ptosis gets worse with fatigue and/or seizure activity. FYI, my maternal grandmother was dx'd with Myathenis Gravis and ptosis was one of her most noticable sx's (she died from cancer). e, Chelsea's mom(nonspecific mito)Please contact mito-owner with any problems or questions.

[Guest guest]

Asenath has droopy eye lids too. Her left eye doesn't open as far as her right one. I am not sure if it is from Mito or from strokes. It has gotten worse since last fall but I think most people still don't notice it like our family does. She's still a cutey to me! Darla: mommy to Asenath, Zipporrah, and the gang Re: eyelashes and , Thanks for the compliments on Chelsea! And she is just as sweet as she is cute! Chelsea does have ptosis (droopy eyelids), and her left eye is always open more than the right. Which is odd, because her left limbs are tighter and have lost use (which she is slowly gaining back) because her seizures originate from the right posterior region of her brain. Her ptosis gets worse with fatigue and/or seizure activity. FYI, my maternal grandmother was dx'd with Myathenis Gravis and ptosis was one of her most noticable sx's (she died from cancer). e, Chelsea's mom(nonspecific mito)Please contact mito-owner with any problems or questions.