Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hello, I asked my doctors what to do also and they told me it was better for my daughter to have the vacines it would be rougher on her to get the diease than to get the vacines. However I picked and choosed the ones I thought were more important. Then I gave her tylenol before and after the injections. Valina, Maggies mom 29mos Leigh's syndromevickycas wrote: Hello.I am the mother of a five months old baby with mithocondrial desease.We live in Colombia South America so we do not have much access to physicians that know this kind of desease so currently he is not getting any treatment, diet o cofactors. Since I do not have anyone to ask I am resting on the kindness of you mothers to help me solve some urgent questions. This week he has his second round of vactination buy I am so afraid of applying it to him because during his first round two monts ago he became very ill.He presented a myoclonic crisis and became neurologicaly descompensated. I know I should not interrupt his inmunitation cycle but I am affraid of his reaction and deterioration. Please do not answer to me by saying "Ask your physician" because I have not physician to ask about myto desease here in Colombia and I need some urgent advice to decide. Thanks a lotVicky CastroPs: My baby main symthoms are:1) Myochonic Jerks2) Myopathy (spasticity)3) Lactic Acidosis (under stress)Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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