RE: feeding issues in infants/cleft lip/palate

[Guest guest]

The post about feeding issues associated with clefts caught my

attention. Our first son was born with a severe cleft lip/palate,

and we used special bottles that were given to us at Childrens

Hospital. They were triangular shaped, soft to be squeezed, and had

long nipples with bigger crosscuts that reached more to the back of

his throat. We had to thicken his formula, but these bottles made

all the difference in the world. I am not sure if this helps with

your feeding issue, but if it seems like it would you can obtain a

set of these at a Childrens Hospital. We use Childrens in

Cincinnatti, OH for Logan. He is just about to turn 13 now, what a

marvelous miracle he is. He talks with parents of cleft babies to

assure them that they will be okay. He calms the anxiety just by

seeing how much help is available. He is amazing. Collin is our son

with mito disorder. Just a question for someone out there- is there

a correlation between clefts and mito? Both are genetic in our

family, and I have picked up a few instances of both running together.

Joni