Obstructive airway

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In a message dated 3/25/04 5:13:14 PM Pacific Standard Time, Mito writes:

My 4yr old with complex I has recently started having problems with

her airway suddenly obstructing when she cries.

Mine did too, as did her brother who also had mito. It for us was a combination of "tracheal malacia" and the mito muscle weakness/fatigue. TM is a softening of the cartilege rings around the trachea, or rather a failure of those to mature and harden from infancy as they should. They do outgrow it eventually.

For her brother the "cure" was a trach, which would have been removed after he outgrew it if he lived (he was killed not related to mito) . For Ash we didn't want the trach so we sat up long nights, kept her on asthma-type meds (albuterol) to maintain open airway, lots of B and C vits to keep her from getting colds which made it worse. She did ourgrow it by maybe age 7 but it was a bumpy ride.

I hope your 4 year old only has something simple like this. I've read in this board several have an arterial problem which sounds scary to me - more curable as there's surgery for it but scary nonetheless.

kj

mom to De-Arbra age 16

complex III (+2 others I forget cos they were less important to the doc)