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[Guest guest]

Hello everyone. I hope you don't mind if I hang around a little

while. My daughter doesn't have a dx of a mitochondrial disorder,

but at one time they suspected it. They found out she has a

chromosome abnormality and ended the idea of the mito disorder. I

feel like they may have dropped the ball a little bit by not doing

further testing (you know mother's instinct). I would like to know

how your children got their dx and what tests were done. I did some

reading on the internet about mito disorder and she does experience

some of the symptoms. The neuro had her taking carnitine until they

found out about the pT18q. I did see improvements in her. I look

forward to reading about all your families.

Thanks

mom to Alyssa 5, Sierra 3 (pT18q), and Kobey 1

wife to Joe