Re: Re: spinal cord saroidosis

[Guest guest]

and Ruth,

How was your spinal cord sarcoidosis diagnosed definitely?

Immaj

[Guest guest]

Darlene and Ruth, I have sarcoidosis in my spine, not my brain that's why I can't walk but just a few steps any longer, and have huge amount of pain when I try to walk, If I can be of help please let me know. It's still considered Neurosarcoidosis because the spinal cord is still considered part of the Central Nervous System, just as the brain is. I do have some forgetfulness, but mainly my gait is affected, I fall all the time as my legs just quit, and I have horrible pain in my neck and lower back as if they are getting ready to snap.

Hope this little bit helps,

-- Re: spinal cord saroidosis

Hi Ruth,

I am forwarding your message to our group in hopes that someone on our

list of nearly 400 will know more about spinal cord sarcoidosis......I have a lot of

back trouble but have not been diagnosed with sarc there............yet...........

We welcome you to the group but are sorry you have to have this awful

disease. We are a good group and have nearly 400 members as I have said.

Most are very good about sharing their knowledge about sarc. Please post to

the list and feel free to ask questions.................

neurosarcoidosis

Also, we have archives you can check through and find lots of info there.

Again, welcome.............and hope you can find what you need here.

Hugs,

Darlene

NS Co-Owner/Moderator

spinal cord saroidosis

Hello there. I have spinal cord sarcoidosis, which has paralysed me at T-4. This happened in 1994. When I first got my computer I looked up as much as I could about this disease, but I have not been involved for years, mainly because I could not find anyone else with my particular problem. Could you please tell me if there is anyone with spinal cord sarcoid. as the only site affected. I am a New Zealander, and know I am the only one in this country. Regards, Ruth

[Guest guest]

Darlene and Ruth, I have sarcoidosis in my spine, not my brain that's why I can't walk but just a few steps any longer, and have huge amount of pain when I try to walk, If I can be of help please let me know. It's still considered Neurosarcoidosis because the spinal cord is still considered part of the Central Nervous System, just as the brain is. I do have some forgetfulness, but mainly my gait is affected, I fall all the time as my legs just quit, and I have horrible pain in my neck and lower back as if they are getting ready to snap.

Hope this little bit helps,

-- Re: spinal cord saroidosis

Hi Ruth,

I am forwarding your message to our group in hopes that someone on our

list of nearly 400 will know more about spinal cord sarcoidosis......I have a lot of

back trouble but have not been diagnosed with sarc there............yet...........

We welcome you to the group but are sorry you have to have this awful

disease. We are a good group and have nearly 400 members as I have said.

Most are very good about sharing their knowledge about sarc. Please post to

the list and feel free to ask questions.................

neurosarcoidosis

Also, we have archives you can check through and find lots of info there.

Again, welcome.............and hope you can find what you need here.

Hugs,

Darlene

NS Co-Owner/Moderator

spinal cord saroidosis

Hello there. I have spinal cord sarcoidosis, which has paralysed me at T-4. This happened in 1994. When I first got my computer I looked up as much as I could about this disease, but I have not been involved for years, mainly because I could not find anyone else with my particular problem. Could you please tell me if there is anyone with spinal cord sarcoid. as the only site affected. I am a New Zealander, and know I am the only one in this country. Regards, Ruth

[Guest guest]

Darlene and Ruth, I have sarcoidosis in my spine, not my brain that's why I can't walk but just a few steps any longer, and have huge amount of pain when I try to walk, If I can be of help please let me know. It's still considered Neurosarcoidosis because the spinal cord is still considered part of the Central Nervous System, just as the brain is. I do have some forgetfulness, but mainly my gait is affected, I fall all the time as my legs just quit, and I have horrible pain in my neck and lower back as if they are getting ready to snap.

Hope this little bit helps,

-- Re: spinal cord saroidosis

Hi Ruth,

I am forwarding your message to our group in hopes that someone on our

list of nearly 400 will know more about spinal cord sarcoidosis......I have a lot of

back trouble but have not been diagnosed with sarc there............yet...........

We welcome you to the group but are sorry you have to have this awful

disease. We are a good group and have nearly 400 members as I have said.

Most are very good about sharing their knowledge about sarc. Please post to

the list and feel free to ask questions.................

neurosarcoidosis

Also, we have archives you can check through and find lots of info there.

Again, welcome.............and hope you can find what you need here.

Hugs,

Darlene

NS Co-Owner/Moderator

spinal cord saroidosis

Hello there. I have spinal cord sarcoidosis, which has paralysed me at T-4. This happened in 1994. When I first got my computer I looked up as much as I could about this disease, but I have not been involved for years, mainly because I could not find anyone else with my particular problem. Could you please tell me if there is anyone with spinal cord sarcoid. as the only site affected. I am a New Zealander, and know I am the only one in this country. Regards, Ruth