Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 dear quint thanks for getting back to me about my remicade and seizures question. i am hoping to get some relief soon. i have a second eeg this week, saturday actually. and suppose to have my second remicade infusion this week as well. i also see the neuros this week and hope to get them to answer some questions about these test results face to face, though my u.s. neuro did answer some questions for me. i still want it to come from these drs. and i still want my missing blood work to show up soemwhere, they are some of ht emost important results, just disappeared. an old dr has also just sent me several suggestions for some other blood work. he suggested starting with that wide net again like in the beginning and looking at the whole picture even where we wouldnt think to look just in case the disease is causing something secondary again that is being missed but that is causing the newer problems. i wish i could get out of here for just this kind of overall testing in case soemthing is being missed. god willing right? i just dont have the strenght to fight for things right now, god willing i will be able to express myself well when i see the drs this week. if you do decide to stop seizure meds, im sure your dr will have you take it really slowly. be careful and listen to your body - well brain i guess. let me know how it goes. take care, kim New Yahoo! Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
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