Re: Weight Gain and Womens' Cycles

[Guest guest]

Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else.

Hi Tracie!

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease.

I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago.

Hope all are having at least a good day here and there!!!

Love, hugs, and prayers to all!,

Joan

[Guest guest]

Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote: In a message dated 3/29/2006 12:22:14 A.M. Eastern Standard Time, gabbysauntienini@...

writes: Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else. Hi Tracie! Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are

there any other meds? Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease. I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago. Hope all are having at least a good day here and there!!! Love, hugs, and prayers to all!, Joan

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[Guest guest]

Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote: In a message dated 3/29/2006 12:22:14 A.M. Eastern Standard Time, gabbysauntienini@...

writes: Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else. Hi Tracie! Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are

there any other meds? Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease. I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago. Hope all are having at least a good day here and there!!! Love, hugs, and prayers to all!, Joan

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote: In a message dated 3/29/2006 12:22:14 A.M. Eastern Standard Time, gabbysauntienini@...

writes: Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else. Hi Tracie! Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are

there any other meds? Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease. I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago. Hope all are having at least a good day here and there!!! Love, hugs, and prayers to all!, Joan

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

[Guest guest]

Ladies,

Thank You!!! This is great information! Since I have been to sooooo many doctors, I have been very bad and not gone to my gyn in about 3-4 years .... I know, I know ... I really need to get there ... I hope he is still alive! ... All 3 generations of my family have been going to the same doctor since my mother had a tumor removed when she was 41. I've gone every year since 16 as we all have ... until the neurosarc hit. My sister and I were discussing this last night ... she said, "Joan, he was old when Mom started going to him .... now, he's reeeealllly old. I really would like to find a dr. closer to my home ... my poor father and niece drive me to all of the other doctor appts. ... most are 1-2 hour drives. I was trying to find a woman this time ... I cannot believe there are no woman gyn's in my area!!!

Oh well ... Rosie, I didn't know that gyn's can do hormone tests to confirm menopause ... also, my sex drive is completely gone now too ... I am blaming it on the anti-depressants and other meds ... perhaps I am going through perimenopause. We don't really know when my Mom stopped since she had a full hysterectomy at 41 ... but she did go through horrible depressions beginning right after her surgery and lasted about 10 years. My sister started stopping menstruating at about 49. The dr. told her that if she went a complete year without getting it, that she was in menopause. She was so excited ... until month 12 ... she got it again. She went a full year the 2nd time around though, so she is pretty sure she is done ... she also had horrific hot flashes ... wearing sleeveless shirts outside in the middle of snowstorms. My sister and I both started at 12, so I was using her as my guide ... I was assuming I'd stop at 50.

Okay, time to make a call ... again, thanks very much for all of the input I receive!

Love you all!,

Joan

message dated 3/31/2006 12:25:39 P.M. Eastern Standard Time, mamadogrose@... writes:

Debbie, I became menopausal in my early 40's. I really never had the perimenopausal stage; I just stopped my periods. After a few months, I told my doctor & she did some hormone tests to confirm it. I was elated, as I felt I had already had more than my share of periods, every 21-25 days most of my life. I have also seen patients perimenopausal in their late 30's.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Fri, 31 Mar 2006 05:35:23 -0800 (PST)Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote:

Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else.

Hi Tracie!

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease.

I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago.

Hope all are having at least a good day here and there!!!

Love, hugs, and prayers to all!,

Joan

[Guest guest]

Ladies,

Thank You!!! This is great information! Since I have been to sooooo many doctors, I have been very bad and not gone to my gyn in about 3-4 years .... I know, I know ... I really need to get there ... I hope he is still alive! ... All 3 generations of my family have been going to the same doctor since my mother had a tumor removed when she was 41. I've gone every year since 16 as we all have ... until the neurosarc hit. My sister and I were discussing this last night ... she said, "Joan, he was old when Mom started going to him .... now, he's reeeealllly old. I really would like to find a dr. closer to my home ... my poor father and niece drive me to all of the other doctor appts. ... most are 1-2 hour drives. I was trying to find a woman this time ... I cannot believe there are no woman gyn's in my area!!!

Oh well ... Rosie, I didn't know that gyn's can do hormone tests to confirm menopause ... also, my sex drive is completely gone now too ... I am blaming it on the anti-depressants and other meds ... perhaps I am going through perimenopause. We don't really know when my Mom stopped since she had a full hysterectomy at 41 ... but she did go through horrible depressions beginning right after her surgery and lasted about 10 years. My sister started stopping menstruating at about 49. The dr. told her that if she went a complete year without getting it, that she was in menopause. She was so excited ... until month 12 ... she got it again. She went a full year the 2nd time around though, so she is pretty sure she is done ... she also had horrific hot flashes ... wearing sleeveless shirts outside in the middle of snowstorms. My sister and I both started at 12, so I was using her as my guide ... I was assuming I'd stop at 50.

Okay, time to make a call ... again, thanks very much for all of the input I receive!

Love you all!,

Joan

message dated 3/31/2006 12:25:39 P.M. Eastern Standard Time, mamadogrose@... writes:

Debbie, I became menopausal in my early 40's. I really never had the perimenopausal stage; I just stopped my periods. After a few months, I told my doctor & she did some hormone tests to confirm it. I was elated, as I felt I had already had more than my share of periods, every 21-25 days most of my life. I have also seen patients perimenopausal in their late 30's.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Fri, 31 Mar 2006 05:35:23 -0800 (PST)Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote:

Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else.

Hi Tracie!

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease.

I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago.

Hope all are having at least a good day here and there!!!

Love, hugs, and prayers to all!,

Joan

[Guest guest]

Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbie

Hi Debbie,

Are you on Methotrexate? I think that is what is doing it to me ... or could be a combination of the 14 other drugs I take!... Debbie, how old were you when you first got sick?

Thank you, Luv, for responding ...

Joan

[Guest guest]

Off the top of my head, I can't think of any meds that won't mess with our weight-- so if you find some-- or get a better combo going--let me know. Hugs,TracieNS Co-owner/moderator

thanks for ALL of the info, Tracie ... and if I find a good combo or drugs that won't add the weight, I'll be sure to let everyone know!

I need to clean out the closet room (my dad had to turn one of the bedrooms into a closet) ... there is no more room to hang anything. I've had to buy various sizes over the last few years ranging from "thin" clothes to "fat" clothes. With this lymphedema, I think I can get rid of the "thin" clothes now...sniffle, sniffle ... oh well, at least the "fat" clothes are a lot more comfortable!...

Love ya,

Joan

[Guest guest]

Off the top of my head, I can't think of any meds that won't mess with our weight-- so if you find some-- or get a better combo going--let me know. Hugs,TracieNS Co-owner/moderator

thanks for ALL of the info, Tracie ... and if I find a good combo or drugs that won't add the weight, I'll be sure to let everyone know!

I need to clean out the closet room (my dad had to turn one of the bedrooms into a closet) ... there is no more room to hang anything. I've had to buy various sizes over the last few years ranging from "thin" clothes to "fat" clothes. With this lymphedema, I think I can get rid of the "thin" clothes now...sniffle, sniffle ... oh well, at least the "fat" clothes are a lot more comfortable!...

Love ya,

Joan

[Guest guest]

Off the top of my head, I can't think of any meds that won't mess with our weight-- so if you find some-- or get a better combo going--let me know. Hugs,TracieNS Co-owner/moderator

thanks for ALL of the info, Tracie ... and if I find a good combo or drugs that won't add the weight, I'll be sure to let everyone know!

I need to clean out the closet room (my dad had to turn one of the bedrooms into a closet) ... there is no more room to hang anything. I've had to buy various sizes over the last few years ranging from "thin" clothes to "fat" clothes. With this lymphedema, I think I can get rid of the "thin" clothes now...sniffle, sniffle ... oh well, at least the "fat" clothes are a lot more comfortable!...

Love ya,

Joan

[Guest guest]

One of the earliest signs of my sarcoidosis was in my early 20's. '

As most of you know, my son was a fertility pill baby. My cycles went anywhere from constant bleeding for weeks at a time, to months between periods.

I would ovulate on day 26-28, and by then the endometrius was too far gone to support life. I also had severe breast leaking. My "prolactin" levels were sky high--so I would have made a great "wet mother."

It wasn't until we got the Clomide to back up the ovulation, and the Parlodel to reverse the Prolactin levels that I was able to conceive.

One of the symptoms of sarcoidosis is a high "prolactin level." Go figure.

At the same time, I've always had problems with constant bronchitis and sinus infections- which the MD's treated with antibiotics and prednisone--all thru childhood. I think for me this has been a lifetime disease, and that because of the lack of information on sarcoidosis--my GP's just blew it off.

Tracie

[Guest guest]

Joan, if you don't have a female gyn in your area, look for a certified nurse-midwife who does well-woman care, or an advanced practice nurse who does women's health. Many male docs have NP's or CNM's in their practice. I've seen a NP for the past 16 years; she can do everything except surgery & I trust her completely. She respects my rights & my preferences. I asked her not to use stirrups for the pelvic exam and she agreed to try it, as long as she could do an adequate exam. I haven't used stirrups since. I quit using stirrups for most of my patients years ago. It's much easier to relax. Good luck!

Ramblin' Rose

Moderator

From: pickstands@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Fri, 31 Mar 2006 14:37:43 EST

Ladies,

Thank You!!! This is great information! Since I have been to sooooo many doctors, I have been very bad and not gone to my gyn in about 3-4 years .... I know, I know ... I really need to get there ... I hope he is still alive! ... All 3 generations of my family have been going to the same doctor since my mother had a tumor removed when she was 41. I've gone every year since 16 as we all have ... until the neurosarc hit. My sister and I were discussing this last night ... she said, "Joan, he was old when Mom started going to him .... now, he's reeeealllly old. I really would like to find a dr. closer to my home ... my poor father and niece drive me to all of the other doctor appts. ... most are 1-2 hour drives. I was trying to find a woman this time ... I cannot believe there are no woman gyn's in my area!!! Play Trivia with MSN Messenger for a chance to win an XBOX™ 360 prize pack! 

[Guest guest]

Joan, if you don't have a female gyn in your area, look for a certified nurse-midwife who does well-woman care, or an advanced practice nurse who does women's health. Many male docs have NP's or CNM's in their practice. I've seen a NP for the past 16 years; she can do everything except surgery & I trust her completely. She respects my rights & my preferences. I asked her not to use stirrups for the pelvic exam and she agreed to try it, as long as she could do an adequate exam. I haven't used stirrups since. I quit using stirrups for most of my patients years ago. It's much easier to relax. Good luck!

Ramblin' Rose

Moderator

From: pickstands@...Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Fri, 31 Mar 2006 14:37:43 EST

Ladies,

Thank You!!! This is great information! Since I have been to sooooo many doctors, I have been very bad and not gone to my gyn in about 3-4 years .... I know, I know ... I really need to get there ... I hope he is still alive! ... All 3 generations of my family have been going to the same doctor since my mother had a tumor removed when she was 41. I've gone every year since 16 as we all have ... until the neurosarc hit. My sister and I were discussing this last night ... she said, "Joan, he was old when Mom started going to him .... now, he's reeeealllly old. I really would like to find a dr. closer to my home ... my poor father and niece drive me to all of the other doctor appts. ... most are 1-2 hour drives. I was trying to find a woman this time ... I cannot believe there are no woman gyn's in my area!!! Play Trivia with MSN Messenger for a chance to win an XBOX™ 360 prize pack! 

[Guest guest]

Tracie,

I didn't know this information. I had a high prolactin and took

Parlodel with clomide too, I leaked all the time, but didn't real make

that much milk, just seem to be more of a constant drip system for me

.

I tried for 5 years to have a baby and a year on all these drugs. I

did have two boys before this, but I had to have surgery to clean me

out, then got pg with my 21 yo. then miscarried, then over 3 years of

trying I finally got pg with my 17 yo. Then the years of trying,

drugs, and giving up and adopting our daughter 10yo, from Mexico. It

was funny because after I was dx one of the doctors I was delivering

with one night, said that was probably why I couldn't get pg. Just

thought that was interesting.

I'm still trying to catch up on emails.

marla

One of the earliest signs of my sarcoidosis was in my early 20's. '

As most of you know, my son was a fertility pill baby. My cycles went anywhere from constant bleeding for weeks at a time, to months between periods. I would ovulate on day 26-28, and by then the endometrius was too far gone to support life. I also had severe breast leaking. My "prolactin" levels were sky high--so I would have made a great "wet mother." It wasn't until we got the Clomide to back up the ovulation, and the Parlodel to reverse the Prolactin levels that I was able to conceive.

One of the symptoms of sarcoidosis is a high "prolactin level." Go figure. At the same time, I've always had problems with constant bronchitis and sinus infections- which the MD's treated with antibiotics and prednisone--all thru childhood. I think for me this has been a lifetime disease, and that because of the lack of information on sarcoidosis--my GP's just blew it off. Tracie

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

Attachment: vcard [not shown]

[Guest guest]

Tracie,

I didn't know this information. I had a high prolactin and took

Parlodel with clomide too, I leaked all the time, but didn't real make

that much milk, just seem to be more of a constant drip system for me

.

I tried for 5 years to have a baby and a year on all these drugs. I

did have two boys before this, but I had to have surgery to clean me

out, then got pg with my 21 yo. then miscarried, then over 3 years of

trying I finally got pg with my 17 yo. Then the years of trying,

drugs, and giving up and adopting our daughter 10yo, from Mexico. It

was funny because after I was dx one of the doctors I was delivering

with one night, said that was probably why I couldn't get pg. Just

thought that was interesting.

I'm still trying to catch up on emails.

marla

One of the earliest signs of my sarcoidosis was in my early 20's. '

As most of you know, my son was a fertility pill baby. My cycles went anywhere from constant bleeding for weeks at a time, to months between periods. I would ovulate on day 26-28, and by then the endometrius was too far gone to support life. I also had severe breast leaking. My "prolactin" levels were sky high--so I would have made a great "wet mother." It wasn't until we got the Clomide to back up the ovulation, and the Parlodel to reverse the Prolactin levels that I was able to conceive.

One of the symptoms of sarcoidosis is a high "prolactin level." Go figure. At the same time, I've always had problems with constant bronchitis and sinus infections- which the MD's treated with antibiotics and prednisone--all thru childhood. I think for me this has been a lifetime disease, and that because of the lack of information on sarcoidosis--my GP's just blew it off. Tracie

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

Attachment: vcard [not shown]

[Guest guest]

Marla

Dr B said the sarc probably had something to do with

my dysplasia(did I spell that right?) too

grannylunatic@...

__________________________________________________

[Guest guest]

I wouldn't doubt that either , it seems to have something to do

with everything!

Marla

Marla

Dr B said the sarc probably had something to do with my dysplasia(did I spell that right?) too

grannylunatic@...

__________________________________________________

[Guest guest]

I wouldn't doubt that either , it seems to have something to do

with everything!

Marla

Marla

Dr B said the sarc probably had something to do with my dysplasia(did I spell that right?) too

grannylunatic@...

__________________________________________________