Re: Weight Gain and Womens' Cycles

[Guest guest]

Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else.

Hi Tracie!

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease.

I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago.

Hope all are having at least a good day here and there!!!

Love, hugs, and prayers to all!,

Joan

[Guest guest]

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Joan,

I'd ask the pharmacist. He'd have the names of some that will not be as big a problem with the weight.

One of the things I'd be having the MD's check is that cycle. It's possible that with the meds, that the meds are messing with your cycle, but it's even more possible that the sarc is screwing with the thyroid or pituatary or hypothalmus--all which if off balance can also cause weight gain. Go figure.

Off the top of my head, I can't think of any meds that won't mess with our weight-- so if you find some-- or get a better combo going--let me know.

Hugs,

Tracie

NS Co-owner/moderator

[Guest guest]

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Joan,

I'd ask the pharmacist. He'd have the names of some that will not be as big a problem with the weight.

One of the things I'd be having the MD's check is that cycle. It's possible that with the meds, that the meds are messing with your cycle, but it's even more possible that the sarc is screwing with the thyroid or pituatary or hypothalmus--all which if off balance can also cause weight gain. Go figure.

Off the top of my head, I can't think of any meds that won't mess with our weight-- so if you find some-- or get a better combo going--let me know.

Hugs,

Tracie

NS Co-owner/moderator

[Guest guest]

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Joan,

I'd ask the pharmacist. He'd have the names of some that will not be as big a problem with the weight.

One of the things I'd be having the MD's check is that cycle. It's possible that with the meds, that the meds are messing with your cycle, but it's even more possible that the sarc is screwing with the thyroid or pituatary or hypothalmus--all which if off balance can also cause weight gain. Go figure.

Off the top of my head, I can't think of any meds that won't mess with our weight-- so if you find some-- or get a better combo going--let me know.

Hugs,

Tracie

NS Co-owner/moderator

[Guest guest]

Hi Joan I dont think ive had a normal cycle since ive been on steroids ! Ive gone months without anything and im 26 so menopause is not a cause - unfortunatly I still get the PMT and it doesnt go until I get a cycle which can be a while lol ! Clairpickstands@... wrote: Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds

like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else. Hi Tracie! Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds? Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be

nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease. I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago. Hope all are having at least a good day here and there!!! Love, hugs, and prayers to all!, Joan

Win a BlackBerry device from O2 with Yahoo!. Enter now.

[Guest guest]

Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbie

Hi Debbie,

Are you on Methotrexate? I think that is what is doing it to me ... or could be a combination of the 14 other drugs I take!... Debbie, how old were you when you first got sick?

Thank you, Luv, for responding ...

Joan

[Guest guest]

One of the earliest signs of my sarcoidosis was in my early 20's. '

As most of you know, my son was a fertility pill baby. My cycles went anywhere from constant bleeding for weeks at a time, to months between periods.

I would ovulate on day 26-28, and by then the endometrius was too far gone to support life. I also had severe breast leaking. My "prolactin" levels were sky high--so I would have made a great "wet mother."

It wasn't until we got the Clomide to back up the ovulation, and the Parlodel to reverse the Prolactin levels that I was able to conceive.

One of the symptoms of sarcoidosis is a high "prolactin level." Go figure.

At the same time, I've always had problems with constant bronchitis and sinus infections- which the MD's treated with antibiotics and prednisone--all thru childhood. I think for me this has been a lifetime disease, and that because of the lack of information on sarcoidosis--my GP's just blew it off.

Tracie

[Guest guest]

One of the earliest signs of my sarcoidosis was in my early 20's. '

As most of you know, my son was a fertility pill baby. My cycles went anywhere from constant bleeding for weeks at a time, to months between periods.

I would ovulate on day 26-28, and by then the endometrius was too far gone to support life. I also had severe breast leaking. My "prolactin" levels were sky high--so I would have made a great "wet mother."

It wasn't until we got the Clomide to back up the ovulation, and the Parlodel to reverse the Prolactin levels that I was able to conceive.

One of the symptoms of sarcoidosis is a high "prolactin level." Go figure.

At the same time, I've always had problems with constant bronchitis and sinus infections- which the MD's treated with antibiotics and prednisone--all thru childhood. I think for me this has been a lifetime disease, and that because of the lack of information on sarcoidosis--my GP's just blew it off.

Tracie

[Guest guest]

Debbie, I became menopausal in my early 40's. I really never had the perimenopausal stage; I just stopped my periods. After a few months, I told my doctor & she did some hormone tests to confirm it. I was elated, as I felt I had already had more than my share of periods, every 21-25 days most of my life. I have also seen patients perimenopausal in their late 30's.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Fri, 31 Mar 2006 05:35:23 -0800 (PST)Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote:

Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else.

Hi Tracie!

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease.

I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago.

Hope all are having at least a good day here and there!!!

Love, hugs, and prayers to all!,

Joan

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Debbie, I became menopausal in my early 40's. I really never had the perimenopausal stage; I just stopped my periods. After a few months, I told my doctor & she did some hormone tests to confirm it. I was elated, as I felt I had already had more than my share of periods, every 21-25 days most of my life. I have also seen patients perimenopausal in their late 30's.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Fri, 31 Mar 2006 05:35:23 -0800 (PST)Joan, I am 43 too. Ever since the sarc has hit me, I have had issues with my cycles, I have skipped some and they have been irregular. I don't know if its from the meds or the sarc. I have never asked the doctor about them as Tracie as mentioned. I have just put up with it. I have wondered about perimenopause too. But I thought I was too young, also. I don't know. Debbiepickstands@... wrote:

Add the steroids or neurontin or amitriptyline--and yeah, you'll gain weight.You need other meds-- this program isn't working for you, and it sounds like your disease is progressing. As far as the weight-- let the MD know that prescribes your amitrip. and get him to change it-- you need something else.

Hi Tracie!

Regarding the Neurontin and Amtripytilline causing weight gain ... I didn't realize they, too, caused this ... I guess this is why I keep gaining even though I eat very little. Which drugs could we try vs. these two drugs? I know that Topomax causes the opposite, but I don't want Anorexia either. Are there any other meds?

Also, to all the women who still menstruate ... have your cycles not been normal? I was always "right on the exact day" normal ... I haven't had a monthly in about 5 or 6 months now. I'm only 43, so I don't think I've started menopause yet ?? (sure would be nice though and would explain the "extra" depression ... I hate to think of this level of depression being with me now forever due to the disease.

I did learn that the disease is progressing ... my leg EMG shows a lot more damage than just a year ago.

Hope all are having at least a good day here and there!!!

Love, hugs, and prayers to all!,

Joan

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hey Guys,

I have to agree with Rose; NP's are great. When I was a medical

assistant at Naval Medical Center Portsmouth I worked with a Commander

Bartlet who was a NP. I have never learned so much in my life. We

worked infertility and colposcopy clinic together and she was fantastic

with her patients. Because this was a learning facility and it was the

navy, I was taught to do all kinds of stuff. She let me remove IUD's

(the navy loves these), she was teaching me how to do ultrasound .....

the list goes on and on. I was very fortunate to work with her but

sadly have lost touch because she was sent to a new duty station.

Well ladies, if you ever get the chance a female NP is a great way to

go. There is nothing like having a woman who can understand when you

say the cramps are killing me. There is no way (no offense intended) a

guy could ever understand that.

Take care.

Terri G.

[Guest guest]

Thanks for the plug, Terri! Even many female doctors have the "boss" mentality, or don't spend any more time with the patient than male docs.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Sat, 01 Apr 2006 23:41:21 -0000Hey Guys,I have to agree with Rose; NP's are great. When I was a medicalassistant at Naval Medical Center Portsmouth I worked with a CommanderBartlet who was a NP. I have never learned so much in my life. Weworked infertility and colposcopy clinic together and she was fantasticwith her patients. Because this was a learning facility and it was thenavy, I was taught to do all kinds of stuff. She let me remove IUD's(the navy loves these), she was teaching me how to do ultrasound .....the list goes on and on. I was very fortunate to work with her butsadly have lost touch because she was sent to a new duty station.Well ladies, if you ever get the chance a female NP is a great way togo. There is nothing like having a woman who can understand when yousay the cramps are killing me. There is no way (no offense intended) aguy could ever understand that.Take care.Terri G.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Thanks for the plug, Terri! Even many female doctors have the "boss" mentality, or don't spend any more time with the patient than male docs.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Weight Gain and Womens' CyclesDate: Sat, 01 Apr 2006 23:41:21 -0000Hey Guys,I have to agree with Rose; NP's are great. When I was a medicalassistant at Naval Medical Center Portsmouth I worked with a CommanderBartlet who was a NP. I have never learned so much in my life. Weworked infertility and colposcopy clinic together and she was fantasticwith her patients. Because this was a learning facility and it was thenavy, I was taught to do all kinds of stuff. She let me remove IUD's(the navy loves these), she was teaching me how to do ultrasound .....the list goes on and on. I was very fortunate to work with her butsadly have lost touch because she was sent to a new duty station.Well ladies, if you ever get the chance a female NP is a great way togo. There is nothing like having a woman who can understand when yousay the cramps are killing me. There is no way (no offense intended) aguy could ever understand that.Take care.Terri G.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Tracie,

I didn't know this information. I had a high prolactin and took

Parlodel with clomide too, I leaked all the time, but didn't real make

that much milk, just seem to be more of a constant drip system for me

.

I tried for 5 years to have a baby and a year on all these drugs. I

did have two boys before this, but I had to have surgery to clean me

out, then got pg with my 21 yo. then miscarried, then over 3 years of

trying I finally got pg with my 17 yo. Then the years of trying,

drugs, and giving up and adopting our daughter 10yo, from Mexico. It

was funny because after I was dx one of the doctors I was delivering

with one night, said that was probably why I couldn't get pg. Just

thought that was interesting.

I'm still trying to catch up on emails.

marla

One of the earliest signs of my sarcoidosis was in my early 20's. '

As most of you know, my son was a fertility pill baby. My cycles went anywhere from constant bleeding for weeks at a time, to months between periods. I would ovulate on day 26-28, and by then the endometrius was too far gone to support life. I also had severe breast leaking. My "prolactin" levels were sky high--so I would have made a great "wet mother." It wasn't until we got the Clomide to back up the ovulation, and the Parlodel to reverse the Prolactin levels that I was able to conceive.

One of the symptoms of sarcoidosis is a high "prolactin level." Go figure. At the same time, I've always had problems with constant bronchitis and sinus infections- which the MD's treated with antibiotics and prednisone--all thru childhood. I think for me this has been a lifetime disease, and that because of the lack of information on sarcoidosis--my GP's just blew it off. Tracie

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

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[Guest guest]

Marla

Dr B said the sarc probably had something to do with

my dysplasia(did I spell that right?) too

grannylunatic@...

__________________________________________________

[Guest guest]

so true, I'm sure it affects more then we even know!

Mb

Tracie, I didn't know this information. I had a high prolactin and took Parlodel with clomide too, I leaked all the time, but didn't real make that much milk, just seem to be more of a constant drip system for me .

I believe I found this info when I searched using Sarcoidosis and Infertility. It's amazing how much all this stuff most of us went thru for a lifetime, has effected us. T

-- The Lord bless you and keep you:

The Lord make his face to shine upon you, and be gracious to you:

The Lord lift up his countenance upon you and give you peace.

Numbers 6:24-26

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