Re: remicade infusion today - another one bites the dust i...

[Guest guest]

the Drs actually ... one or two of them actually told me yesterday how i should be so thankful that my disease isnt much worse than it is. Now how is that for kicking a person when they are down?

Kim-- MD's are notorious for not having a clue-- As far as you taking on guilt over this-- don't waste your very precious energy there. You need it to get on with each day. and the MD's sure don't deserve to have that power over you-- so reclaim your energy.

I so understand your disappointment--- I'd be where you are-- your plate is so very full, with 2 young adult kids here in the states, and the 4 there with you, and they don't know what to believe-- Dad with his denial or Mom with what they can see as debilitating disease. I'm sure they'd like to believe Dad--because that would mean that you aren't sick. Bummer all the way around.

Kim-- I know in my heart that there is an answer. I know that you'll get there. It's hard when we know how well we've always functioned-- and to see ourself not being able to take care of us--yet alone the rest of the family, it really brings forth that fear of the unknown.

I guess our MD's think if we're walkign and talking--we're ok. I too have a story around this issue-- as I reached into the oven yesterday, pulled out a glass baking dish of chicken--without the potholder. I have no idea what I was thinking-- or what I wasn't thinking about. . .

This is where we take it one day at a time. Turn it over, Turn it over, turn it over. It's all we have. Kim, since you don't have the energy to fight right now-- trust that the MD's are going to get you going on something--and that they do have your best interest at heart.

I know that they are chasing symptoms-- since we don't know the cause behind this disease, and have no cure-- that's what we have to be willing to do-- calm the symptoms, and function with the highest quality of life we can have-- with this disease.

Sending you healing, Spiritual, Emotional, and Physical. You are loved,

Tracie