Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Is there any kind of special cup or fun straw he might be interested in? It is hard when they are 2 because alot of times it is a control thing--he probably feels it is the only thing he can control right now. Maybe there is some way to make a game out of it. Is there another adult who can try? Sometimes they see how frustrated we are and it makes it even more difficult. Good luck. Jill, Matts mom, scad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Is there any kind of special cup or fun straw he might be interested in? It is hard when they are 2 because alot of times it is a control thing--he probably feels it is the only thing he can control right now. Maybe there is some way to make a game out of it. Is there another adult who can try? Sometimes they see how frustrated we are and it makes it even more difficult. Good luck. Jill, Matts mom, scad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 Is there any kind of special cup or fun straw he might be interested in? It is hard when they are 2 because alot of times it is a control thing--he probably feels it is the only thing he can control right now. Maybe there is some way to make a game out of it. Is there another adult who can try? Sometimes they see how frustrated we are and it makes it even more difficult. Good luck. Jill, Matts mom, scad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 If I understand this right, when Leah was on an IV; some times it took a day before she would drink or really eat because she was " full " from the IV. Are you home or still in the hospital? Give it some more time; but not too much time. If he's eating that's good and he will get some fluid from the fruit. Deos he want any juice? Just curious. It can be frustrating for us as parents because we know they need fluids and we go crazy trying to get them to take in fluids because of that importance. Nerenhausen mom to Leah stace434 wrote: >Sheldon's been in the hospital with a virus since Monday. As of >today he is fever free. Our problem is that he will not drink. He >doesn't look like he has a sore throat. He's been off the IV all >morning. He just refuses to drink. We've tried popsicles, jello, >frozen ice, everything we can think of. He just pushes everything >away and we have to restrain him just to get him to try to eat or >drink anything. I've put some juice into a medicine dropper and >tried that but he seems to dislike it just as much as the medicine. >We did just get a little food in him, he ate most of a kiwi and a >few bites of pancake. We started him on B1 and upped his carnitine, >and he's been receiving intralipids by IV for the past 3 nights. He >still seems very tired, especially in the morning - last night he >had a lot more energy but still only ate and drank very little. > >Any idea why he would not be drinking? What can we do? We want to go >home but can't as long as he won't drink. > >(Sheldon's 2 w/PDH deficiency) > >Thanks, >Stacey > > > > >Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
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