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Re: Thank you, Debbie & Rose

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Hi Darlene, I am sorry it has been so long since I have really been on the internet. I had a really rough time of it last year and almost didn't make it. The doctors were telling my family to make funeral plans but God wasn't ready for me yet. So hold on to your dreams and know my prayers are with you and things will get better. I was getting infusions of Methotrexate as they found it to be the best drug for me along with the high dose prednisone. I looked like an overweight football player by the time they got through with me but finally the combination worked. It is hard to figure out what is best for us at the time of our disease I know. Luckily my disease is not like some of you it is isolated in the central nervous system and the main complication if the hydrocephalus. I hope things will continue to get better and better for you take care and remember my thoughts are with you. Darlene Arney wrote: Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies! Our Kim is still not well at all and unable to take the Remicade.........so keep her in your thoughts and well wishes......... More later........I am trying to go through the emails. Thanks to all who sent me well wishes and prayers.......It was greatly appreciated! Hugs, Darlene NS Co-Owner/Moderator

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Hi Darlene, I am sorry it has been so long since I have really been on the internet. I had a really rough time of it last year and almost didn't make it. The doctors were telling my family to make funeral plans but God wasn't ready for me yet. So hold on to your dreams and know my prayers are with you and things will get better. I was getting infusions of Methotrexate as they found it to be the best drug for me along with the high dose prednisone. I looked like an overweight football player by the time they got through with me but finally the combination worked. It is hard to figure out what is best for us at the time of our disease I know. Luckily my disease is not like some of you it is isolated in the central nervous system and the main complication if the hydrocephalus. I hope things will continue to get better and better for you take care and remember my thoughts are with you. Darlene Arney wrote: Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies! Our Kim is still not well at all and unable to take the Remicade.........so keep her in your thoughts and well wishes......... More later........I am trying to go through the emails. Thanks to all who sent me well wishes and prayers.......It was greatly appreciated! Hugs, Darlene NS Co-Owner/Moderator

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

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Hi Darlene, I am sorry it has been so long since I have really been on the internet. I had a really rough time of it last year and almost didn't make it. The doctors were telling my family to make funeral plans but God wasn't ready for me yet. So hold on to your dreams and know my prayers are with you and things will get better. I was getting infusions of Methotrexate as they found it to be the best drug for me along with the high dose prednisone. I looked like an overweight football player by the time they got through with me but finally the combination worked. It is hard to figure out what is best for us at the time of our disease I know. Luckily my disease is not like some of you it is isolated in the central nervous system and the main complication if the hydrocephalus. I hope things will continue to get better and better for you take care and remember my thoughts are with you. Darlene Arney wrote: Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies! Our Kim is still not well at all and unable to take the Remicade.........so keep her in your thoughts and well wishes......... More later........I am trying to go through the emails. Thanks to all who sent me well wishes and prayers.......It was greatly appreciated! Hugs, Darlene NS Co-Owner/Moderator

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

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You are welcome, darlin' Darlene.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: Thank you, Debbie & RoseDate: Mon, 10 Apr 2006 19:05:02 -0500

Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies!

Our Kim is still not well at all and unable to take the Remicade.........so keep her in your

thoughts and well wishes.........

More later........I am trying to go through the emails.

Thanks to all who sent me well wishes and prayers.......It was greatly appreciated!

Hugs,

Darlene

NS Co-Owner/Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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You are welcome, darlin' Darlene.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: Thank you, Debbie & RoseDate: Mon, 10 Apr 2006 19:05:02 -0500

Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies!

Our Kim is still not well at all and unable to take the Remicade.........so keep her in your

thoughts and well wishes.........

More later........I am trying to go through the emails.

Thanks to all who sent me well wishes and prayers.......It was greatly appreciated!

Hugs,

Darlene

NS Co-Owner/Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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Posted
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You are welcome, darlin' Darlene.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: Thank you, Debbie & RoseDate: Mon, 10 Apr 2006 19:05:02 -0500

Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies!

Our Kim is still not well at all and unable to take the Remicade.........so keep her in your

thoughts and well wishes.........

More later........I am trying to go through the emails.

Thanks to all who sent me well wishes and prayers.......It was greatly appreciated!

Hugs,

Darlene

NS Co-Owner/Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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We are very lucky to have you two........

Hugs,

Darlene

Thank you, Debbie & RoseDate: Mon, 10 Apr 2006 19:05:02 -0500

Just wanted to let everyone know how much I appreciate all that Debbie and Rose did while I was getting my Infusion and Tracie was getting one also......they did a great job and I know Tracie appreciates it as much as I do........thanks ladies!

Our Kim is still not well at all and unable to take the Remicade.........so keep her in your

thoughts and well wishes.........

More later........I am trying to go through the emails.

Thanks to all who sent me well wishes and prayers.......It was greatly appreciated!

Hugs,

Darlene

NS Co-Owner/Moderator~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

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