Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 , I am so sorry to hear Hailee is not doing well. My does well for a time and then has these crashing spells like you are talking about. She might sleep 22 hours at a time. She will get up sometimes but not want to eat or do anything at all because she is just to tired. I found that if I just let her sleep her body will catch up. Sometimes we have a long string of good days with few of these episodes sometimes they go on and on for what seems to be forever before getting bettter. Usually 's behavior begins to suffer when she is about to have one of these times so I make her begin resting right then to try to ward of a long down time. Hope this helps. Know I am praying for you and Hailee. Sending you a huge hug, Horsley need advice regarding energy chrashing Hello, its , Hailee is in the hospital and i need some advice, the last couple of weeks have been really hard on her, she is taking 3-4 naps a day for 3-4 hours at a time, staying up for maybe 30 mins but not wanting to do anything during that tiime, than sleeps again. At school the other day it took two teachers to help her sit up, she had no body control, i am feeling very frustrated, my active little girl is no longer as active. She yesterday had 6 grandmals and is now in the hospital with breathing problems and blood pressure problems, Just wondering if anyone had any advice for me_________________________________________________________________FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 , I am so sorry to hear Hailee is not doing well. My does well for a time and then has these crashing spells like you are talking about. She might sleep 22 hours at a time. She will get up sometimes but not want to eat or do anything at all because she is just to tired. I found that if I just let her sleep her body will catch up. Sometimes we have a long string of good days with few of these episodes sometimes they go on and on for what seems to be forever before getting bettter. Usually 's behavior begins to suffer when she is about to have one of these times so I make her begin resting right then to try to ward of a long down time. Hope this helps. Know I am praying for you and Hailee. Sending you a huge hug, Horsley need advice regarding energy chrashing Hello, its , Hailee is in the hospital and i need some advice, the last couple of weeks have been really hard on her, she is taking 3-4 naps a day for 3-4 hours at a time, staying up for maybe 30 mins but not wanting to do anything during that tiime, than sleeps again. At school the other day it took two teachers to help her sit up, she had no body control, i am feeling very frustrated, my active little girl is no longer as active. She yesterday had 6 grandmals and is now in the hospital with breathing problems and blood pressure problems, Just wondering if anyone had any advice for me_________________________________________________________________FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 , I am so sorry to hear Hailee is not doing well. My does well for a time and then has these crashing spells like you are talking about. She might sleep 22 hours at a time. She will get up sometimes but not want to eat or do anything at all because she is just to tired. I found that if I just let her sleep her body will catch up. Sometimes we have a long string of good days with few of these episodes sometimes they go on and on for what seems to be forever before getting bettter. Usually 's behavior begins to suffer when she is about to have one of these times so I make her begin resting right then to try to ward of a long down time. Hope this helps. Know I am praying for you and Hailee. Sending you a huge hug, Horsley need advice regarding energy chrashing Hello, its , Hailee is in the hospital and i need some advice, the last couple of weeks have been really hard on her, she is taking 3-4 naps a day for 3-4 hours at a time, staying up for maybe 30 mins but not wanting to do anything during that tiime, than sleeps again. At school the other day it took two teachers to help her sit up, she had no body control, i am feeling very frustrated, my active little girl is no longer as active. She yesterday had 6 grandmals and is now in the hospital with breathing problems and blood pressure problems, Just wondering if anyone had any advice for me_________________________________________________________________FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 hey melissa i am sorry to hear this i really cant tell you much on that brandy stayed asleep most of the time .. really all you can do is let her body rest ... and try to maybe talk a little with her or maybe even try and move her legs and arms your self so she dont get sore i know it sounds crazy but i use to do that to brandy and i would sit and talk to her and let her know i am there.. well i hope our little girl gets to feeling better soon .. keep your head up girl i will be praying for you love shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 hey melissa i am sorry to hear this i really cant tell you much on that brandy stayed asleep most of the time .. really all you can do is let her body rest ... and try to maybe talk a little with her or maybe even try and move her legs and arms your self so she dont get sore i know it sounds crazy but i use to do that to brandy and i would sit and talk to her and let her know i am there.. well i hope our little girl gets to feeling better soon .. keep your head up girl i will be praying for you love shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 hey melissa i am sorry to hear this i really cant tell you much on that brandy stayed asleep most of the time .. really all you can do is let her body rest ... and try to maybe talk a little with her or maybe even try and move her legs and arms your self so she dont get sore i know it sounds crazy but i use to do that to brandy and i would sit and talk to her and let her know i am there.. well i hope our little girl gets to feeling better soon .. keep your head up girl i will be praying for you love shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 , I am praying for you and Hailee. Audrey does this same type of thing. She will be good for a few days then out of the blue she will sleep almost non-stop for several days. Hope the hospital stay will be short and Hailee will be back home soon. Kathy, grandma to Audrey, 32 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 My thoughts are with you and Hailee at this difficult time. (caeden mito myopothy)> > _________________________________________________________________ > FREE pop-up blocking with the new MSN Toolbar – get it now! > http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 My thoughts are with you and Hailee at this difficult time. (caeden mito myopothy)> > _________________________________________________________________ > FREE pop-up blocking with the new MSN Toolbar – get it now! > http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 My thoughts are with you and Hailee at this difficult time. (caeden mito myopothy)> > _________________________________________________________________ > FREE pop-up blocking with the new MSN Toolbar – get it now! > http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 I am so sorry to hear Hailee is having trouble lately. I am sure it must be worrisome to see her so drained. Our prayers will be with her and your family. Keep us posted. Darla: mommy to Asenath, Zipporrah, and the gang need advice regarding energy chrashing Hello, its , Hailee is in the hospital and i need some advice, the last couple of weeks have been really hard on her, she is taking 3-4 naps a day for 3-4 hours at a time, staying up for maybe 30 mins but not wanting to do anything during that tiime, than sleeps again. At school the other day it took two teachers to help her sit up, she had no body control, i am feeling very frustrated, my active little girl is no longer as active. She yesterday had 6 grandmals and is now in the hospital with breathing problems and blood pressure problems, Just wondering if anyone had any advice for me_________________________________________________________________FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 I am so sorry to hear Hailee is having trouble lately. I am sure it must be worrisome to see her so drained. Our prayers will be with her and your family. Keep us posted. Darla: mommy to Asenath, Zipporrah, and the gang need advice regarding energy chrashing Hello, its , Hailee is in the hospital and i need some advice, the last couple of weeks have been really hard on her, she is taking 3-4 naps a day for 3-4 hours at a time, staying up for maybe 30 mins but not wanting to do anything during that tiime, than sleeps again. At school the other day it took two teachers to help her sit up, she had no body control, i am feeling very frustrated, my active little girl is no longer as active. She yesterday had 6 grandmals and is now in the hospital with breathing problems and blood pressure problems, Just wondering if anyone had any advice for me_________________________________________________________________FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 I am so sorry to hear Hailee is having trouble lately. I am sure it must be worrisome to see her so drained. Our prayers will be with her and your family. Keep us posted. Darla: mommy to Asenath, Zipporrah, and the gang need advice regarding energy chrashing Hello, its , Hailee is in the hospital and i need some advice, the last couple of weeks have been really hard on her, she is taking 3-4 naps a day for 3-4 hours at a time, staying up for maybe 30 mins but not wanting to do anything during that tiime, than sleeps again. At school the other day it took two teachers to help her sit up, she had no body control, i am feeling very frustrated, my active little girl is no longer as active. She yesterday had 6 grandmals and is now in the hospital with breathing problems and blood pressure problems, Just wondering if anyone had any advice for me_________________________________________________________________FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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