update on kim

[Guest guest]

Hi everyone, sorry ive gone missing a f ew days, its been a nightmare , but w hats new? First I will say Im so glad Darlene and Tracie have had good infusions and been able to rest up afterwards! I hope that things get better over the next few days and you feel more energetic. Glad you ddint ave any troubles. my laptop is not working at all anymore almost so its hard for me to get here and i am very behind on teh posts. I have continued to have this excrutiating pain in the chest/right abdomen/back, as it went on it was clear it was worst and concentrating in the right back and right side of abdomen , especially off the right spine, it has been awful pain, keeping me awake at night. which caused my seizures to be worse and on and on. i went back to the private clinic a few days ago. he thought it was gallbladder maybe. but when he went

pressing and pushing the pain was so severe i had a fairly bad seizure afterward. what a story. ive been holding my back and side in pain for hese days. kind of burning nad itching too, but the pain was the main thing. unbearable. i had two seizures there that day and he refused to let me stay there even for evaluations , ultrasounds etc. , and sent me tot he public hospital, where no matter the pain killers they gave me the pain persisted in my right back off my spine. they did the blood work for gallbladder but decided things didnt seem to be an emergency. i was drugged loopy but still in so much pain. they gave me ultrasound appt for gallladder in three weeks or so. so i went back to the private clinic the next morning, yesterday, to try to get them to do the ultrasound at least. which their surgeon agreed to do. it showed multiple polyps or possible impacted stomes but not blockng the

ducts, so they didnt think this was causing the pain. so he decides maybe its an ulcer??? and does an endoscopy. in the mean time when i got home from the hospital the night before i asked my son to please see what was wwrong with my back cause it was killing me on my right spine, burning and itching and feeling swollen and soemthing wrong wh ere the pain was. he said there was a rash like pimples but not really. no one bothered to look at my back at either hospital, they just reach and push and make me feel excruciating pain. and i cant see it. i could feel it and on my side and under my right breast, there is also some weird rash thats realy bugging me, but i figured they would surely say something if it was involved in anyway??? riht??? well the endoscopy showed some pretty bad esophagal and duodenal erosion but no ulcer at this point. so they said they cant explain this horrid pain. the

pain was worst than ever last night, despite my pain killers, antispasmatics, increased stomach meds, etc.... the rash was worst as well...and i finaly caught on myself..... today i went to the neuro and had to lift up the shirt and show them and ask does this look like anything to you? does the pain have anything to do with this??? and they said adfter a few minues silence its shingles.... just what i needed. i kept saying to every dr even that i had just had the remicade the days before, they should know to look for this. i am so sickened. they should know to look at the skin. now i have went how many days without treatment and horrid horrid pain and paid so much money for tests that were unnecesary, money i honesstly really needed and have no way to make up at all. now they gave me acyliclvor cream only..... so is this okay? or dont i need the oral tablets

to prevent trouble in the long run?? lets all play dr now. is the cream okay or do i need the tablets or is it just plain too late to do any good now anyway because its been since thursday night i think that this pain started? what else can go wrong? now i hve heart valve damage, and shingles, i learned of the stomach troubles, and the polyps or stones ..... and the ridiculous polyps in the gallbladder, that might or might not be stones , no one can decide, since they arent blocking any ducts, can i ignore them? they havent caused any trouble i dotn think, this is all from the shingles i think. how am i supposed to know?? love you all and sory i am so freaking self centered these days.... good news though - one of the drs asked for baughmans email. and took my tape recording of

my visit from him. though do i really trust them to do cytoxen? lets get real. take care and love you all it has to end soon right? lets hope in a positive way, or at least neutral way, you are all in my prayers and i cant thank you enough for yours kim

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