Re: son's illness and abnormal labs

[Guest guest]

, Don't quote me on this, but because there are so many different metabolic issues that go along with abnormal labs, a fresh muscle biopsy is how most of children on this list have gotten there diagnosis.

Are you bringing to any specialists ... that would be your best bet on getting a good answer to your question.

I wish you all the luck in the world!

(Mama to ,age 7, Mito complex IV)

[Guest guest]

:

Not to scare you, but DON'T wait another day. If your son has

a temp w/ vomiting he needs to be seen. He "should" be treated as

if he has Mito or an FOD until further tests say he does not have these.

He should received IV D-10 while in the hospital. A child with mito or

fod does not have to be dehydrated to need IV fluids. If you call

your pedi today and get no where with the oncall pedi I would call Dr.

Whitemans office and have the specialist on call paged.

Also, during an illness like this is the time to run the labs.

Good luck and please let us know what happens.

Kerry

Plymouth, MA

Hailey 4 yrs mito & fod

Brenna 2 yrs mito & FOD

Schmidt wrote:

My 5 year old son was hospitalized in October,

organic acid tests were

administered and the results were abnormal. Then we saw Dr.

Whiteman at the

Mayo but no official diagnosis yet. However, he is leaning towards

a fat

oxidation disorder. Now again, my son is ill- temp, lethargic,

vomiting for

unknown reason, etc. I am so concerned about him.

Our pediatrician feels

we should wait another day to see if he improves- if not, we will

run the

tests again and send them to the Mayo. Feeling lost and starving

for info

about my son. Does anyone know if you can have abnormal labs

one time and

not have a mito disorder? - son of (5)

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