Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I always....and I mean always get the run around here in Indiana with our local pediatrician. He says as long as she is drinking a little water and producing tears she'll be ok. How do you get the kids admitted before it is almost too late? I am sick of them not listening to me. I thought that even for the most minor infections hospitalization should be a major consideration??? I do not know how to get thru to them. And since she always looks ok and not sick people do not take her illnesses as serious as they should be. And also, I have read posts about Tylenol. They have always given her Tylenol and not even told me to not give it to mito kids???? I am frustrated sorry to complain & ramble on forever. Debbie RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Debbie just curious where in indiana do you live. we live in connersville. RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Debbie just curious where in indiana do you live. we live in connersville. RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Debbie just curious where in indiana do you live. we live in connersville. RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 We live close to West Lafayette..where Purdue is. Debbie RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 When my child is toxic (lactic acidosis) she does this and dehydration has usually already set in. Hopefully you were able to rehydrate with sips of something or went to ER for IV fluids. Quote Link to comment Share on other sites More sharing options...
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