Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Debbie- What you are experiencing is NOT uncommon. It is very hard to get doctors to realize the serious nature of your child's condition. I think most of us have all heard the "But they look so good" line. You just have to continue to educate and advocate for yourself and your child. Praying for a breakthrough in IN. Hang in there and if need be just take her to the ER if your ped. won't admit her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Debbie- What you are experiencing is NOT uncommon. It is very hard to get doctors to realize the serious nature of your child's condition. I think most of us have all heard the "But they look so good" line. You just have to continue to educate and advocate for yourself and your child. Praying for a breakthrough in IN. Hang in there and if need be just take her to the ER if your ped. won't admit her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Debbie- What you are experiencing is NOT uncommon. It is very hard to get doctors to realize the serious nature of your child's condition. I think most of us have all heard the "But they look so good" line. You just have to continue to educate and advocate for yourself and your child. Praying for a breakthrough in IN. Hang in there and if need be just take her to the ER if your ped. won't admit her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Please be very careful with the dehydration. A few weeks ago Gracie had the flu. She started the vomiting during the night. Within 4 hours she was dehydrated, no urine, no tears dry lips/mouth. Luckily we were able to avoid the hospital because we were able to put pedialyte through her g tube, and it was short lived. It is essential that these children get fluids when they are like this. Dehydration can cause a crisis, which can cause permanent organ and muscle damage. You really need to have a good understanding with your pediatrician. We are on a basis with ours, that if I feel it is necessary, she will not second guess the decision. I would be able to get ahold of her at two in the morning if necessary. It is very nice because we have never had to go to an emergency room and deal with doctors who don't understand. To get throughout today, start with your pediatrician, if no luck go to an emergency room. Hope he feels better soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Please be very careful with the dehydration. A few weeks ago Gracie had the flu. She started the vomiting during the night. Within 4 hours she was dehydrated, no urine, no tears dry lips/mouth. Luckily we were able to avoid the hospital because we were able to put pedialyte through her g tube, and it was short lived. It is essential that these children get fluids when they are like this. Dehydration can cause a crisis, which can cause permanent organ and muscle damage. You really need to have a good understanding with your pediatrician. We are on a basis with ours, that if I feel it is necessary, she will not second guess the decision. I would be able to get ahold of her at two in the morning if necessary. It is very nice because we have never had to go to an emergency room and deal with doctors who don't understand. To get throughout today, start with your pediatrician, if no luck go to an emergency room. Hope he feels better soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Please be very careful with the dehydration. A few weeks ago Gracie had the flu. She started the vomiting during the night. Within 4 hours she was dehydrated, no urine, no tears dry lips/mouth. Luckily we were able to avoid the hospital because we were able to put pedialyte through her g tube, and it was short lived. It is essential that these children get fluids when they are like this. Dehydration can cause a crisis, which can cause permanent organ and muscle damage. You really need to have a good understanding with your pediatrician. We are on a basis with ours, that if I feel it is necessary, she will not second guess the decision. I would be able to get ahold of her at two in the morning if necessary. It is very nice because we have never had to go to an emergency room and deal with doctors who don't understand. To get throughout today, start with your pediatrician, if no luck go to an emergency room. Hope he feels better soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Look for dry mouth, no saliva. Is g-tube feed? If so try a Pedialite drip. This usually works for . The ER has told me that small amounts of salt settle the stomach .. like Pedialite, and saltine crackers. I would call your doctor and ask their opinion. Just tell them you don’t want to bring him in yet but want to get him stabilized. Sue Ann Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 signs of dehydration are : crying no tears, dry mouth, tongue, & or lips. That is all I know of that my pediatrician tells us. Hope this helps. How old is he? Debbie Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy.Any input would be great!!!Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 signs of dehydration are : crying no tears, dry mouth, tongue, & or lips. That is all I know of that my pediatrician tells us. Hope this helps. How old is he? Debbie Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy.Any input would be great!!!Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 signs of dehydration are : crying no tears, dry mouth, tongue, & or lips. That is all I know of that my pediatrician tells us. Hope this helps. How old is he? Debbie Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy.Any input would be great!!!Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Sounds to me like cyclic vomiting, my son gets it a lot! I would call the doctor as his neurologist has always told us that with any cyclic vomiting episodes she wants him in the hospital on an IV. Please let me know what you find out. Deb, Zak's mom Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Sounds to me like cyclic vomiting, my son gets it a lot! I would call the doctor as his neurologist has always told us that with any cyclic vomiting episodes she wants him in the hospital on an IV. Please let me know what you find out. Deb, Zak's mom Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Sounds to me like cyclic vomiting, my son gets it a lot! I would call the doctor as his neurologist has always told us that with any cyclic vomiting episodes she wants him in the hospital on an IV. Please let me know what you find out. Deb, Zak's mom Dehydration????? woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 We were told to never wait until the dry heaves started-we are to call our Doctor and he will admit her asap for dehydration. We're under the assumption that dehydration happens so fast with kids with Mito that we were not to wait. fairgrovejoe wrote: woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 We were told to never wait until the dry heaves started-we are to call our Doctor and he will admit her asap for dehydration. We're under the assumption that dehydration happens so fast with kids with Mito that we were not to wait. fairgrovejoe wrote: woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 We were told to never wait until the dry heaves started-we are to call our Doctor and he will admit her asap for dehydration. We're under the assumption that dehydration happens so fast with kids with Mito that we were not to wait. fairgrovejoe wrote: woke up at 2:00 this morning throwing up, it is almost a.m. and there has not been any change. He has thrown up around 10 times, now mostly dry heaves. What are the signs I look for, for dehydration? He hasn't kept anything down. He's just laying around, yet if he has the flu that will make him feel achy. Any input would be great!!! Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I agree with what everyone else said. We have a protocol for . If she cannnot keep food or fluid down or throws up for more than 4 hrs, she gets fluid. D10 at at least maintenence (if there is a fever, then 1 1/2 times maint.) Find any info you can online about dehydration and mito and take it with you to the ER. They will not get it, but be forceful. Hopefully you have a doc who will battle this for you. Good luck, and I hope he feels better soon, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I agree with what everyone else said. We have a protocol for . If she cannnot keep food or fluid down or throws up for more than 4 hrs, she gets fluid. D10 at at least maintenence (if there is a fever, then 1 1/2 times maint.) Find any info you can online about dehydration and mito and take it with you to the ER. They will not get it, but be forceful. Hopefully you have a doc who will battle this for you. Good luck, and I hope he feels better soon, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I agree with what everyone else said. We have a protocol for . If she cannnot keep food or fluid down or throws up for more than 4 hrs, she gets fluid. D10 at at least maintenence (if there is a fever, then 1 1/2 times maint.) Find any info you can online about dehydration and mito and take it with you to the ER. They will not get it, but be forceful. Hopefully you have a doc who will battle this for you. Good luck, and I hope he feels better soon, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I always....and I mean always get the run around here in Indiana with our local pediatrician. He says as long as she is drinking a little water and producing tears she'll be ok. How do you get the kids admitted before it is almost too late? I am sick of them not listening to me. I thought that even for the most minor infections hospitalization should be a major consideration??? I do not know how to get thru to them. And since she always looks ok and not sick people do not take her illnesses as serious as they should be. And also, I have read posts about Tylenol. They have always given her Tylenol and not even told me to not give it to mito kids???? I am frustrated sorry to complain & ramble on forever. Debbie RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I always....and I mean always get the run around here in Indiana with our local pediatrician. He says as long as she is drinking a little water and producing tears she'll be ok. How do you get the kids admitted before it is almost too late? I am sick of them not listening to me. I thought that even for the most minor infections hospitalization should be a major consideration??? I do not know how to get thru to them. And since she always looks ok and not sick people do not take her illnesses as serious as they should be. And also, I have read posts about Tylenol. They have always given her Tylenol and not even told me to not give it to mito kids???? I am frustrated sorry to complain & ramble on forever. Debbie RE: Dehydration????? no tears, dry mouth are to long to wait with a Mito patient. We go in for IV fluid way before dehydration sets in because with mito they sometimes (most of the time) need the fluids to get them through the illness. With my girls it helps them through it quicker. If they were a "typical" kid they would send you home, but because our mito MD has trained the ER staff well we don't get the run around. 1 example ~ a few months ago they were up vomiting like you described all night. We were at the hospital and getting labs early afternoon, they were dry, but not severely dehydrated. Their labs were all off and while they looked like they could have lasted a few more hours at home we were lucky that we decided to go when we did. It doesn't take much for our children to be in need for fluids and they do not have to be dehydrated to need them. Good luck and I hope he is feeling better soon. Kerry -----Original Message-----From: LILQT4U1984@... Sent: Wednesday, March 24, 2004 10:05 AMTo: Mito Subject: Re: Dehydration????? A major sign of dehydration is not urinating more than once in a 24hr period. In my opinion thats too long to wait for someone who already has a medical condition like mito. Also a low grade temp., lethargy, unable to make tears, dry mouth,etc. Can he suck on ice cubes? I would do anything you can to get some sort of fluids in him. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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