Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Has anyone on the board have a child with it? Finding info on this is not an easy task. I've done the google searches, gone to the MDA website and it describes the disease very briefly. We have recently registered with MDA, I'm hoping to get an appt with a MDA Doc soon so I can discuss these questions with him, but in the meantime... I've got you guys :-) What is the lifespan? I think that is my major question that's been nagging at me. Thanks for any info you can give me. Quote Link to comment Share on other sites More sharing options...
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