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Mito Depletion Syndrome....

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Has anyone on the board have a child with it? Finding info on this

is not an easy task. I've done the google searches, gone to the MDA

website and it describes the disease very briefly. We have recently

registered with MDA, I'm hoping to get an appt with a MDA Doc soon

so I can discuss these questions with him, but in the meantime...

I've got you guys :-)

What is the lifespan? I think that is my major question that's been

nagging at me. Thanks for any info you can give me.

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